RaineVixen🦊 · @raine
4 followers · 57 posts · Server social.rainevixen.com
Usher Syndrome Ireland · @UsherSyndromeIreland
38 followers · 29 posts · Server mastodon.ie
🔊 BREAKING NEWS
Could tears tell us more about Usher syndrome?
Usher Syndrome Ireland & Stichting Ushersyndroom intends to find out by funding a novel research study for USH1B together!
We're very excited as it's the first time Usher Syndrome Ireland is funding #USH research! 🎉
Please learn more about this exciting research news here via link: https://usherireland.org/ush1b-research-study
#UsherSyndrome #USH1B #Research #Study #Christmas #TogetherWeCan #collaboration #science #researchers
#USH #UsherSyndrome #ush1b #research #study #christmas #TogetherWeCan #collaboration #science #researchers
Usher Syndrome Ireland · @UsherSyndromeIreland
36 followers · 27 posts · Server mastodon.ieWhat is it like to cook with Usher syndrome?
It’s week three of our Christmas campaign. Donate today, to support and give the gift of hope of sight & sound to children & adults living with Usher syndrome (USH). As a thank you for your donation, you’ll receive a link to access Christmas recipes from our USH community and friends.
Link: https://www.paypal.com/donate/?hosted_button_id=FR42QKV2G4MES
#UsherSyndrome #delicioUSHly #GiftOfHope #Christmas #Charity #TogetherWeCan #SupportUSH #CureUSH #Recipes #RareDisease #USH
#UsherSyndrome #delicioushly #giftofhope #christmas #charity #TogetherWeCan #supportush #cureush #recipes #RareDisease #USH
Usher Syndrome Ireland · @UsherSyndromeIreland
36 followers · 23 posts · Server mastodon.ie🎅All funds raised from this campaign is going towards hosting and running events in 2023, and into our USH research pot, to support and give hope to children and adults living with Usher syndrome (USH), a cruel, rare progressive condition beginning in childhood leading to deafblindness by midlife.
#UsherSyndrome #USH #NonProfit #charity #MastoDaoine #SupportUSH #CureUSH
#UsherSyndrome #USH #nonprofit #charity #mastodaoine #supportush #cureush
Usher Syndrome Ireland · @UsherSyndromeIreland
34 followers · 15 posts · Server mastodon.ieGiving our fundraising campaign, DelicioUSHly Good Christmas Recipes, a shot here on Mastodon!
❄️Donate as little as €1 to get delicioUSHly good Christmas recipes to help raise funds to provide support and hope to children and adults living with Usher syndrome (USH), a rare progressive condition that begins in childhood leading to deafblindness by mid-life.
https://www.paypal.com/donate/?hosted_button_id=CKB3WEWPTJGTJ
#Recipes #Fundraiser #Donate #Boost #UsherSyndrome #USH #Christmas #Help
#recipes #fundraiser #donate #boost #UsherSyndrome #USH #christmas #help
Raine 🦊 · @raine
2 followers · 45 posts · Server social.rainevixen.com
I've only now just saw this while going through my photos, but the metro and hotel shuttles at Universal Studios Hollywood now have their own tracking website. It shows dispatch/arrival times and current location of the shuttle. https://universalstudioshollywood.ridesystems.net/routes #ThemeParks #USH
robertmitchellv · @robertmitchellv
86 followers · 21 posts · Server hachyderm.iowould be great to find and connect with others who are also gradually losing sight via #RetinitisPigmentosa or similar (i actually have #USH and it's specifically my #USH2A gene that is causing issues for me)
in any case, please reach out if you're also traveling this road
#RetinitisPigmentosa #USH #USH2A
Usher Syndrome Ireland · @UsherSyndromeIreland
34 followers · 15 posts · Server mastodon.ieApologies for all the #s as we try to find members of our community! Do say hi if this is you 👋
#Introduction #MastoDaoine #IrishTwitter #UsherSyndrome #USH #NonProfit #Charity #IrishCharity #VisualImpairment #HearingLoss #Research #RareDisease #Genetics #GeneTherapy #CRISPR #AON #Ophthalmology #Audiology #Disability #Accessibility #IrishMastodon #RetinitisPigmentosa #RP #CochlearImplants #HearingAids
#s #introduction #mastodaoine #irishtwitter #UsherSyndrome #USH #nonprofit #charity #IrishCharity #visualimpairment #hearingloss #research #RareDisease #genetics #genetherapy #crispr #AON #ophthalmology #audiology #disability #accessibility #IrishMastodon #retinitispigmentosa #rp #cochlearimplants #hearingaids