⚫ More investment in R&I and cooperation in and outside of Europe
⚫An increase in the use, sharing, and gathering of data while maintaining privacy
⚫Raising awareness for the need of better health systems
@jelenamalinina @drjameelnazir @psdparleuropeu @EPPGroup @ppdpsd
RT @evoke_incisive: What will it take to address the #UnmetMedicalNeeds of people living with a #RareDisease?
With @EUCOPE we are proud to join the #Partnering4PNH community & MEPs @istvan_ujhel…
🐦🔗: https://n.respublicae.eu/mgracacarvalho/status/1630969535384649739
#UnmetMedicalNeeds #raredisease #Partnering4PNH
RT @evoke_incisive: What will it take to address the #UnmetMedicalNeeds of people living with a #RareDisease?
With @EUCOPE we are proud to join the #Partnering4PNH community & MEPs @istvan_ujhelyi @kympouropoulos @mgracacarvalho to celebrate #RareDiseaseDay2023 & discover their #PNH consensus paper
🐦🔗: https://n.respublicae.eu/mgracacarvalho/status/1630968775498399750
#UnmetMedicalNeeds #raredisease #Partnering4PNH #RareDiseaseDay2023 #PNH