My first #VEXAS pt! Male 70s yo referred for eval GCA w/ right facial & ear pain/swelling, double vision (CN VI palsy), LAD,β¬οΈplts, high ESR, CRP 150 mg/L. Temporal artery bx neg, BMBx results shown.
@maferradastrong@twitter.com @NIH@twitter.com @petercgrayson@twitter.com
RT @KDAO2011@twitter.com
Reminder of what #VEXAS stands for and clinical presentation. - Dr. Kaster #ACR22 @rheumnow@twitter.com
π¦π: https://twitter.com/KDAO2011/status/1591159242072809472
RT @VEXASfoundation@twitter.com
π’It's official! #VEXAS has been added to the medical hashtag community.
Thanks to all of you who have helped to achieve this goal.
β³οΈ17.333K impressions in the last 24hrs π
@maferradastrong@twitter.com @SophieGeorgin@twitter.com @TerrierBen@twitter.com @TheEBMT@twitter.com @MDedgeDerm@twitter.com @rheum_cat@twitter.com
π¦π: https://twitter.com/VEXASfoundation/status/1594892526896513024
If you can't get enough of the #VEXAS story
https://twitter.com/AMollaeianMD/status/1591155589765206017
RT @AMollaeianMD@twitter.com
Dr Daniel Kastner on auto inflammatory disorders
β Auto inflammatory disease primarily disorder of the inmate immune system
β FMF the grandaddy of the recurrent fever syndromes
Fever, sterile peritonitis , pleurisy, arthritis/ argralgia
π¦π: https://twitter.com/AMollaeianMD/status/1591155589765206017
#acr22 #icymi #VEXAS #ACRambassador
https://twitter.com/Ertugrul_cagri/status/1591149574273789953
RT @Ertugrul_cagri@twitter.com
πNotes/Highlights π¦
from 'Examples from Rheumatology: Discovery of the VEXAS Syndrome'
πππ
Thanks for wonderful talk!
Dr. Beck
@maferradastrong@twitter.com
@petercgrayson@twitter.com
all VEXAS team and colloborators!
@VEXASfoundation@twitter.com
#ACR22
#ACRAmbassador
π¦π: https://twitter.com/Ertugrul_cagri/status/1591149574273789953
#acr22 #icymi #VEXAS #ACRambassador
"This is fact stranger than fiction!"
πodd vacuoles in the myeloid precursor cells in the bone marrow
After discussion with heme path, they found more patients (seen 8 yrs prior) with #VEXAS
He's going to end with #VEXAS with the exclamation point
The story involves working backwards: genotype first, rather than collecting cases with similar phenotype