Found out today that I've had visual snow for quite a while. Was asked if I have any floaters at the opthalmologist. I said no floaters but I see "rainbow TV static pixels" everywhere and they can make it harder to see at night. Here's a picture that's supposed to show what having visual snow is like. I'm now seeing my opthalmologist yearly since I take #hydroxychloroquine and #dupixent which can affect vision. #VisualSnow
#hydroxychloroquine #dupixent #VisualSnow
First blog post in a while, this time a little bit of a personal one. It's about why, a few years ago, conferences suddenly became very difficult experiences for me, how I've learned to better cope since then, and what others can do to help.
Got an eye check-up (all good!) and finally met an eye doctor who knew about visual snow syndrome and confirmed my self-diagnosis of it. I can’t overstate what a relief it is to 1) be able to put a name to the problem and 2) know that many of my weird eye issues are just my brain playing tricks on me.
#eyesight #VisualSnow #VSS #opthamology #neurology
And I have a boyfriend who hates the internet so I hardly mention him and never by name.
Oh, and here's a repeat of all my hobbies and disabilities in hashtag form:
#blogging
( #candlemaking
#cycling )
#genealogy
#postcrossing
#reading
#sims4
#writing
#actuallyautistic
#adhd
#agoraphobia
#allergies (i once counted 20 of them)
#aphantasia
#asthma
#ChronicPain
#dispraxia
#eczema
#hayfever
#ibs
#mecfs
#pcos
#pots
#prosapognosia
#VisualSnow
#blogging #candlemaking #cycling #genealogy #postcrossing #reading #sims4 #writing #actuallyautistic #adhd #agoraphobia #allergies #aphantasia #asthma #chronicpain #dispraxia #eczema #hayfever #ibs #mecfs #pcos #pots #prosapognosia #VisualSnow