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Anna · @halcionandon
475 followers · 1072 posts · Server aus.social

Australia is running dry of hydrocortisone.

I have to medication now!

If you’ve got any unused at home or ask your family/friends whoever I could use it!!!

There is no end date to this drought and nobody has it in stock.

Help please 🙏

@mecfs
@chronicillness@a.gup.pe
@ChronicIllness@gup.pe

#crowdfund #hydrocortisone #spoonie #NEISvoid #chronicillness #pwme #mecfs #LongCovid #adrenalinsufficiency #steroids #adrenaldisease

Last updated 3 years ago
Original post

Anna · @halcionandon
37 followers · 60 posts · Server disabled.social

is running dry of hydrocortisone.

I have to now!

If you’ve got any unused at home or ask your family/friends whoever, I can use it!!!

There is no end date to this drought and nobody has it in stock.

Help please 🙏

@mecfs
@chronicillness
@disabilityjustice@a.gup.pe
@DisabilityJustice@chirp.social

#australia #medication #addisondisease #crowdfund #hydrocortisone #spoonie #NEISvoid #chronicillness #pwme #mecfs #LongCovid #AdrenalInsufficiency #steroids #adrenaldisease

Last updated 3 years ago
Original post

Anna · @halcionandon
475 followers · 1071 posts · Server aus.social

Shit day already.

My throat feels rough so… I really hope it’s not

problems.

And to top it off:

Been informed there’s a shortage and I’m affected. Pharmacies are and the manufacturer can’t give a date for when it will be back in stock. The government has no stockpile of essential so I guess I’m fucked.

#covid #abuser #medication #medicines #spoonie #NEISvoid #chronicillness #pwme #LongCovid #adrenaldisease

Last updated 3 years ago
Original post

Anna · @halcionandon
37 followers · 60 posts · Server disabled.social

If I don’t get proper treatments soon this is going to kill me.

I need a proper doctor. Fluids. Proper meds and treatment.

Reaching out while still can.


@mecfs
@chronicillness
@chronicpain
@migrainechat

#LongCovid #SevereME #pwme #mecfs #adrenaldisease #NEISvoid #pots #Dysautonomia #Migraine #orthostaticintolerance

Last updated 3 years ago
Original post

Anna · @halcionandon
455 followers · 991 posts · Server aus.social

If I don’t get proper treatments soon this is going to kill me.

I need a proper doctor. Fluids. Proper meds and treatment.

Reaching out while still can.

Remove stress.

@mecfs
@chronicillness

#SevereME #pwme #mecfs #adrenaldisease #NEISvoid #pots #dysautonomia #orthostaticintolerance

Last updated 3 years ago
Original post

Anna · @halcionandon
37 followers · 60 posts · Server disabled.social

I’m severely by .

I have / & more, topped off with . Hi

Interests now include not being , in , or rejected by doctors for being too complex a patient. (Know good in taking patients?)

Need help with / & navigating the system. LMK!

1/

#introduction #chronicillness #SevereME #adrenaldisease #hypothyroidism #hyperparathyroidism #endometriosis #Migraine #pots #Dysautonomia #chronicpain #LongCovid #NEISvoid #exhausted #pain #doctors #gps #melbourne #accommodation #NDIS #gp #carer #caregiver #disabled

Last updated 3 years ago
Original post

Anna · @halcionandon
37 followers · 60 posts · Server disabled.social

#pwme #pwlc #adrenaldisease #myalgice #Migraine #spoonie #MyalgicEncephalomyelitis #chronicpain #LongCovid #crip #hypothyroidism #NEISvoid

Last updated 3 years ago
Original post

Anna · @halcionandon
443 followers · 865 posts · Server aus.social
Twitter - Anna🇦🇺needs good doctors & a safe place to live (@halcionandon) / Twitter

@princelysum

From my introduction:

I have

Which looks like this: (not me but my state of illness aus.social/@halcionandon/10937) / & more, all topped off with .
My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good in still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an to help with getting a good / & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape . Didn’t want to say that because I’ll wear it forever but hi.

Normally interests include & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.

twitter.com/Halcionandon for backstory.

#SevereME #adrenaldisease #hypothyroidism #hyperparathyroidism #endometriosis #migraine #pots #dysautonomia #chronicpain #LongCovid #doctors #melbourne #australia #advocate #accommodation #NDIS #gp #carer #caregiver #abuse #auspol #healthcare #science #medicalresearch #mmt #culturalstudies #philosophy #film #filmphotography #music #writing

Last updated 3 years ago
Original post

Anna · @halcionandon
436 followers · 731 posts · Server aus.social

Am at a loss to where to ask for help to find a who wants to help a patient with complex needs. Is there anywhere on Mastodon? I’ve been to FB *shudder* many times and nothing. If you’re an existing patient it’s ok but NEW patients are stuffed. Even more are retiring now it’s the New Year. What can I do?
Yes I’ve been to NIIM.

#doctor #gp #generalpractitioner #doctors #MedMastodon #pwme #mecfs #LongCovid #adrenaldisease #hypothyroidism #hyperparathyroidism #chronicpain #chronicillness #migraine #disability

Last updated 3 years ago
Original post

Anna · @halcionandon
390 followers · 400 posts · Server aus.social

First hot meal since… ?Sunday? I really can’t remember, but plenty of stress and yelling just to get it. No yelling my end just stress.

Living on a pack of biscuits.

I can’t get up to GET a meal let alone MAKE one. People don’t get this.

I think I need to get out of here.



#cripabuse #neglect #disabled #SevereME #LongCovid #adrenaldisease #cfsme #getmeoutofhere

Last updated 3 years ago
Original post

Anna · @halcionandon
342 followers · 306 posts · Server aus.social

I really just need to sleep and get through this crash without losing baseline.
That’s my post of the day. Not being able to communicate is one of the worst things. You don’t know how long it’s going to last and when it starts coming back to you, language is totally scrambled. If you see an old post of mine being reblogged, don’t be annoyed, it’s the only thing I can do to say hi.

#SevereME #pwme #mecfs #adrenaldisease

Last updated 3 years ago
Original post

Anna · @halcionandon
313 followers · 274 posts · Server aus.social

Anyone out there with health issues: if your doctor offers you (, ) or something else for whatever you’ve got, take the something else. Or absolute minimum dose of steroids. They’re not called the “Devil’s Tic Tacs” for nothing.

This is why I can barely get to sleep atm- they’re giving me fake energy and I have to wean down very slowly to a dose ideal for me/ my weight. I took a bit more for a while to get things done (don’t do that! It fries your adrenal glands and HPA axis at the least). They actually overdosed me to begin with…

Doctors don’t warn their patients enough.

Oh and the side effects. MANY.

Just a friendly warning.

Medical mode: off.

#hydrocortisone #prednisone #NEISvoid #chronicillness #adrenaldisease #mecfs #steroids #disabilitysocial

Last updated 3 years ago
Original post

Anna · @halcionandon
188 followers · 141 posts · Server aus.social

Please be mindful that I am energy limited and it takes a lot of effort to reply to posts, boost, ie. I’m putting a lot of effort into our interactions.

Also, getting an unfollow hits a little differently when you’ve got nothing left in the tank and you’ve been getting along. “Oh, I used all that energy…”

#chronicillness #disability #SevereME #mecfs #hypothyroidism #adrenaldisease

Last updated 3 years ago
Original post

Anna · @halcionandon
164 followers · 87 posts · Server aus.social
Buy Me a Coffee - Anna Halcionandon is creating a better life away from abuse

I’d be grateful if anyone could this, give if you can, or help in a practical way say if you know a good taking patients in or an or .
Any contribution is VERY appreciated!

I’m struggling to stay afloat.

I have multiple extremely disabling & worsening health conditions (including , , , ) while trying to escape an environment, arrange good , a / , , appeal with an , get , & the list goes on. It will be a long, difficult, expensive process but I am determined to get out & live my life.
Unsure how to itemise this!
Backstory on bird site @halcionandon

has a platform fee (for me).
can use free (both sides)

International :

buymeacoffee.com/halcionandon

Australians: (use Beem or Buy Me A Coffee).

beem.com.au

I’m @halcionandon on Beem.

Sign up, attach debit card, send $ or buy gift cards

Why Buy Me A Coffee? I was going to use it for but my & situation deteriorated so I can’t write anymore. 🙁

I’ve never done any type of crowdfunding before & feel very weird about it.

Thank you

TL;DR: In a crisis & crowdfunding.
Help @
International: buymeacoffee.com/halcionandon
Australia: beem.com.au

#crowdfunding #doctor #gp #melbourne #australia #advocate #carer #SevereME #adrenaldisease #migraines #chronicpain #abusive #housing #caregiver #healthcare #casemanagement #NDIS #buymeacoffee #beem #crowdfunder #writing #health #mutualaid #disabilitycrowdfund #chronicillness #NEISvoid #pwme #mecfs #boost #australians #LongCovid

Last updated 3 years ago
Original post

Anna · @halcionandon
164 followers · 87 posts · Server aus.social
Twitter - Anna🇦🇺needs good doctors & a safe place to live (@halcionandon) / Twitter

time.
This isn’t going to be great because I’m ill but would like to find my people here.

I’m by which is pretty bad at the moment. I have
/ & more, all topped off with . Hello .

My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good in still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)

I’m also looking for an to help with getting a good / & navigating the system. I can’t find good healthcare & running out of energy to do all this myself so I’m writing before I can’t reach out anymore. Happened before & hell it’s scary to have no energy to even open your eyes. For months.

Oh, also trying to escape . Didn’t want to say that because I’m going to wear it forever but hi.

Normally interests include & remembering what I’m interested in… Being sick & in survival mode stuffs up your leisure time.

I’m Twitter.com/Halcionandon for backstory.

It nice to be here.
I hope this place stays cosy.

(Some extra tags: )

#introduction #disabled #chronicillness #SevereME #adrenaldisease #hypothyroidism #hyperparathyroidism #endometriosis #migraine #pots #chronicpain #LongCovid #NEISvoid #doctors #melbourne #australia #advocate #accommodation #NDIS #gp #carer #abuse #auspol #healthcare #science #mmt #film #dysautonomia #caregiver #writing #mecfs #pwme #pwlc #myalgice #myalgicencephalomyelitis #spoonie #medicalresearch #culturalstudies #philosophy

Last updated 3 years ago
Original post