ahimsa · @ahimsa_pdx
570 followers · 3643 posts · Server disabled.social

Here's where you can sign up for Solve ME Advocacy Week:

solvecfs.org/advocacy/advocacy

In addition to the higher energy activities, such as meeting with Congress representatives, there are lower energy activities such as email, phone calls, and posting on social media.

#mecfs #LongCovid #pwme #solveme #advocacy #advocacyweek

Last updated 3 years ago

ahimsa · @ahimsa_pdx
570 followers · 3643 posts · Server disabled.social

"ET: Long Covid has caused Solve ME to expand our mission to look more closely at post infectious illnesses in general. Post infectious illness is a board term covering a whole family of illnesses. It’s a similar concept to cancer, which has a lot of different subtypes. Post infectious disease also has a lot of subtypes. We are looking at them as a family of diseases to see what can be learned at a more macro level."

#mecfs #LongCovid #pwme #solveme #advocacy #advocacyweek

Last updated 3 years ago

ahimsa · @ahimsa_pdx
570 followers · 3643 posts · Server disabled.social

"MK: For folks not intimately involved in the ME/CFS or Long Covid community, can you describe Solve ME and what your primary mission is? Has Long Covid changed anything for Solve ME?

ET: Solve ME is a non-profit organization dedicated to research, education and advocacy for post infectious illnesses, specifically ME/CFS and Long Covid."

#mecfs #LongCovid #pwme #solveme #advocacy #advocacyweek

Last updated 3 years ago

ahimsa · @ahimsa_pdx
570 followers · 3643 posts · Server disabled.social

"I had the honor of interviewing Emily Taylor, Vice President of Advocacy and Engagement at Solve ME. Solve ME is one of the oldest ME/CFS advocacy groups, founded in 1987. We chatted about Solve ME in general, Long Covid, and their upcoming Advocacy Week program.

Patients, caregivers, and allies, this is your chance to participate in a major advocacy event that already has momentum. Momentum creates more momentum, so jump on board!"

#mecfs #LongCovid #pwme #solveme #advocacy #advocacyweek

Last updated 3 years ago

ahimsa · @ahimsa_pdx
570 followers · 3643 posts · Server disabled.social

From Calling all ME/CFS Allies!

"Solve ME Advocacy Week: Sign Up Today!"

An interview with Solve ME (Emily Taylor) about this year's upcoming Advocacy Week:

"No One Tells your Story Better than You"

encephalogirl.substack.com/p/s

I'll post a few quotes from the blog post in the replies.

@mecfs @longcovid

#mecfs #LongCovid #pwme #solveme #advocacy #advocacyweek

Last updated 3 years ago