Mandy Watson · @MandyCanUDigIt
167 followers · 389 posts · Server beekeeping.ninja

Day 3 of enforced bedrest. Slightly better, in that aches, shivers have gone and sore throat and headache have improved. BUT still exhausted, breathless, coughing, no appetite, no sense of smell and everything tastes weird. Also pulled ribs hurt and my usual problems of hip/back/neck pain have worsened. It's NOT just a cold or .

#covid #ankylosingspondylitis #coldvid #maskup #coviduk #covidisntover

Last updated 1 year ago

WinnebagoJay · @WinnebagoJay
1 followers · 2 posts · Server mstdn.social

After years of nothing but bad news, I get a little good news. I got accepted to the patient assistance program with Abbvie. They're covering my Humira. It's worth a mint. I have no choice with all these expensive autoimmune diseases I have. I lost insurance when COBRA ran out. So having Abbvie help is a big deal. It's the only way to afford expensive biologics when your insurance is iffy.

Have you had a good day?

Peace, love all, hate none


#ankylosingspondylitis #autoimmunedisease

Last updated 2 years ago

Boots Chantilly · @BootsChantilly
258 followers · 250 posts · Server mstdn.social

The shitty part about is being unable to sleep on my back because the pain makes it impossible šŸ˜©šŸ¤§ then I lose feeling my my left leg šŸ‘ or right, but mostly cause Iā€™m left dominant. Why did I end up with the worst outcomeā€¦.

#ankylosingspondylitis #psoriasis

Last updated 2 years ago

Boots Chantilly · @BootsChantilly
137 followers · 121 posts · Server mstdn.social
Boots Chantilly · @BootsChantilly
80 followers · 81 posts · Server mstdn.social
Boots Chantilly · @BootsChantilly
80 followers · 81 posts · Server mstdn.social
Queen Hazel · @Alyshelchi
34 followers · 34 posts · Server jorts.horse

My chronic illness has gotten significantly worse in 2022. I worked as a nanny until May when I found out we'd been chosen to adopt my daughter, now just under 6 months. I became immunocompromised due to a new med and I'm now on my third biologic of the year trying to find something that works. In the past 6 weeks or so I've been barely able to get out of bed. Caring for my daughter has mostly fallen to my husband and the grandparents, who I'm very lucky to have.

#ankylosingspondylitis

Last updated 2 years ago

RnD · @rndyounghowze
14 followers · 36 posts · Server mastodon.sdf.org
AndrĆ©a Paulus · @andreadalilap
12 followers · 9 posts · Server qoto.org
Elizabeth · @ejk
450 followers · 827 posts · Server mathstodon.xyz

Chronic illness makes you play life on hard mode. Itā€™s only fair, Iā€™d be overpowered otherwise.

#ankylosingspondylitis #uveitis #autoimmune

Last updated 6 years ago