One year ago today, my son suffered an aortic dissection and stroke. Surgery was successful, but then he developed a reaction to heparin that filled his lungs with clots and nearly killed him. He was on ECMO and dialysis, and placed in a coma.

Today, we celebrate his recovery which is not fully complete, but considering the alternative is fully a miracle.

#aorticdissection
#bicuspidvalve
#miracles

Great to hear England's Chief Medical Officer Professor Chris Whitty engaging with #PPI & calling for more focus on hard-to-reach groups, creation of assessment access beyond primary care & preventative risk-based advice.

For patients with #aorticdissection secondary prevention is critical to limit future complications.

https://www.bmj.com/content/380/bmj.p201

Thoracic #AorticDissection (type A+B) in Nova Scotia, Canada🇨🇦2005-2015

382 scheduled thoracic #AorticAneurysm repair
294♂️vs 88♀️

345 dissection events
212♂️vs 133♀️
4.4 vs 2.4 per 10,000 person-years🧐

Dr. Claudia Cote lab #CJCOpen 2022
https://www.cjcopen.ca/article/S2589-790X(22)00176-7/fulltext

Please check out myaorticjourney.org - my story plus a growing list of resources for aortic disease education, awareness, management, research, and support. #aortaed #aorticdissection #tad #htad #marfan #loeysdietz #veds #bav #cardiogen #cardiology

RT @MDSolomonMD
Our paper out in @JAMACards studied ~6400 nonsyndromic Pts with thoracic aortic aneurysm (N=838 >5cm)

Risk of #AorticDissection very low < 5.5cm, supporting consensus guidelines -> Consider early surgery judiciously

Paper: https://ja.ma/3V26eAf
Story: http://ibit.ly/z85x

I’ve basically been living with my partner (in large part due to this stuff), but I’m worried for my father. And come early January, I’m not sure how to easily get out of a family visit, especially in a way that doesn’t cause him further harm.
#CovidIsNotOver #Immunocompromised #RareDisease #WearAMask #MaskUp #COVIDisAirborne #ChronicIllness #Thread #Covid #MyastheniaGravis #AorticDissection

Anyway, today is extra emotional, clearly. We didn’t know we’d get to have this day. He’s one of the best, most compassionate, most brilliant people I know (he was a literal rocket scientist, you guys), and I’m just so happy he’s still here. Thanks for reading all of that ❤️ #MedMastodon #DisabilityAdvocacy #DisabilityMastodon #RareDisease #AorticDissection :Aorta:

RT @AorticDissectCT: Patients, families and health care professionals come together in the #aorticdissection lunchbox session at #SCTS2022 on Sunday to share their outlook and ambitions for the future of #aortic care.

Come and join in. We’re looking forward to seeing you there 🙌 #Aorta #AortaEd

🐦🔗: https://nitter.eu/chhcalling/status/1523282505222483968