Sascha H. Funk · @sayfun
11 followers · 72 posts · Server mastodon.online#AplasticAnemia r-ATG treatment day 1. Anyone else going through it right now? Let’s kick butt!
Jon P · @jpp
271 followers · 952 posts · Server mastodon.nz(Also: we didn't really know much about #PNH - paroxysmal nocturnal haemoglobinuria - nor how it related to our son's #AplasticAnemia. But it's a disease, that often coincides with #AplasticAnemia, which causes the membrane of red blood cells to fail, and then the heamoglobin"falls out" into the blood stream - called #haemolysis. This website was really useful: https://my-pnh.com/pnh-resources )
#pnh #aplasticanemia #haemolysis
Jon P · @jpp
265 followers · 882 posts · Server mastodon.nz
@sidawson yup, it *is* scary... but also, against the background of #AplasticAnemia, I *think* this is just a blip 🤞
Hopefully his scheduled stem cell transplant in early Feb is not jeopardised.
(There's a little more background here: https://givealittle.co.nz/cause/aplastic-isaac )
Jon P · @jpp
263 followers · 837 posts · Server mastodon.nz
Jon Pawley · @jpp
89 followers · 91 posts · Server mastodon.nz
#intro #introduction #introductions
Pākehā, Tangata Tiriti, #NZGreen
I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.
I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.
I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!
My son has recently been diagnosed with #AplasticAnemia https://givealittle.co.nz/cause/aplastic-isaac
#intro #introduction #introductions #nzgreen #goldenbay #wfh #softwareengineer #immigrant #father #husband #ClimateCrisis #lefty #green #Harder #faster #aplasticanemia
Jon Pawley · @jpp
89 followers · 91 posts · Server mastodon.nz#intro #introduction #introductions
Pākehā, Tangata Tiriti, #NZGreen
I live in beautiful #GoldenBay, where I #WFH as a #SoftwareEngineer. I am an #immigrant, thankful to be able to make Aotearoa my home.
I am a #father of two great kids and a #husband of one incredible wife! They each out-shine me.
I am heartbroken by the #ClimateCrisis. #Lefty #Green #NZGreen 💚. We need to go #harder and #faster!!
My son has recently been diagnosed with #AplasticAnemia https://givealittle.co.nz/cause/aplastic-isaac
#intro #introduction #introductions #nzgreen #goldenbay #wfh #softwareengineer #immigrant #father #husband #ClimateCrisis #lefty #green #Harder #faster #aplasticanemia