Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.

We toot post our progress.

We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.

#Parkinsons

Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491

@SecularJeffrey

I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.

As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.

1/2 A very common new diagnosis with long covid is postural orthostatic tachycardia syndrome (POTS). We may be seeing much more of POTS in the future. It can be mild or severe.

The 1st step in feeling better is knowing what the problem is. There are coping strategies.

This is a simple/easy test you can do at home, then discuss w your Dr. It is well worth looking into this so you know what to look for.

More info in detail: https://onlinelibrary.wiley.com/doi/epdf/10.1002/pmrj.12894

#POTS #dysautonomia #AutonomicDysfunction

I love my keyring cards. It's like having an easy-read, personalised book that summarizes my disability and needs - so I can quickly, effectively, and with minimum energy, let people know the essentials in a way that makes them smile, understand and accept.
See the full range at
https://stickmancommunications.co.uk/product-category/keyring-cards-product-type/
#Hypermobility #EDS #Pain #AutonomicDysfunction #Fatigue #DisabilityAwareness #DisabilityAcceptance #MentalHealth #

Having a racing heart for no reason is a common aspect of #AutonomicDysfunction (esp #PoTS) - and it can be both scary and debilitating. I've lost count of how many times I've gone to make a cuppa and ended up slumped on the floor waiting for my heart to calm down.
(Book from https://stickmancommunications.co.uk/product/you-know-you-have-autonomic-dysfunction-when-by-hannah-ensor/ )

#LongCovid #PoTS #MS #EDS #NEISVoid

ok mastodon: point me at the corner of here talking about the overlaps around #AutisticBurnout #POTS #eds #mcas #ADHD #ActuallyAustistic #cptsd #somatics and #autonomicDysfunction

Ooof, things are tough going at the moment! #AutonomicDysfunction #PoTS mean are quite messed up at the moment so talking = increased symptoms, and talking while on my feet = instant disabling symptoms, literally after one or two words. As a chatty person it takes HUGE concentration not to just reply to people. And to take all precautions before I do talk (sit or lie, feet up, core activated, fidgetting, somewhere cool, not having just eaten) as that makes the occasional conversation possible.

Still getting my head around this world...& Mastodon for that matter!
I'll be sharing #research updates & news from my world as an MSc qualified Reg. Nutritional Practitioner & the world of #nutrition #ehlersdanlossyndrome #EDS #hEDS #HypermobilitySpectrumDisorder #HSD that also crosses over into #POTS #AutonomicDysfunction #Gastrointestinal issues #ChronicPain #ChronicFatigue #MSK issues & much more ...stay tuned y'all. Hopefully this new platform will meet new & interesting connections 👋