September newsletter from the Bateman Horne Center:

https://batemanhornecenter.dm.networkforgood.com/emails/2742865

#MEcfs #LongCovid #Research #BatemanHorne

Here's a seven minute video from the Bateman Horne Center, originally posted in May for ME Awareness, that has some images and poems from patients.

"Reflections of ME/CFS | FM | LC"

https://www.youtube.com/watch?v=7Udon3SDMLM

Note: This video shows images with music and there is no transcript. I'll add the YouTube summary information and some description of what is shown in the video in the replies.

https://www.youtube.com/watch?v=7Udon3SDMLM

#MEcfs #Fibromyalgia #LongCovid #ChronicIllness #NEISvoid #BatemanHorne

Bateman Horne Center will host a free "Lunch & Learn" online event on Thursday, July 20, 10:30 am Pacific (11:30 am Mountain / 1:30 pm Eastern)

Presentation Topic: Can even small amounts of joy and imagination benefit health?

Advance registration required.

Agenda and other details here:

https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/

#MECFS #Fibromyalgia #LongCOVID #ChronicIllness #BatemanHorne

From #BatemanHorne Center:

"Brain Fog in ME/CFS and Long COVID"

"We believe that the closer to onset we study ME/CFS, the more likely we are to identify possible pathways that are causing the symptom(s) that can be targeted with treatment"

https://batemanhornecenter.org/brain-fog-in-me-cfs-and-long-covid/

#LongCovid #MEcfs #Dysautonomia #OrthostaticIntolerance #BrainFog #Research #NIH

From Bateman Horne Center

(not exact quote - expanded abbreviations, moved hashtags to the end)

"Med Ed Monday - Continued and repeated episodes of PEM are associated with worsened long-term functional capacity for people ME/CFS and Long COVID. This handout explains exertion and the push-crash cycle to medical professionals."

PEM, post-exertional malaise, is also called PESE, post-exertional symptom exacerbation.

https://batemanhornecenter.org/wp-content/uploads/2023/05/Push-Crash-Cycle-05_2023.pdf

#MEcfs #LongCovid #PEM #PESE #MedEd #BatemanHorne

From Bateman Horne Center:

"The Cost of ME/CFS: An Occupational Therapist's Lived Experience"

"Barbara McMaster, BSc (OT) and education series co-author, shares her personal and professional experience with ME/CFS."

https://batemanhornecenter.org/the-cost-of-me-cfs-an-occupational-therapists-lived-experience/

#MEcfs #LongCovid #Disability #MedEd #Rehab #BatemanHorne

From Bateman Horne Center:

"How the Basics of PT & OT Can Help People with ME/CFS"

https://batemanhornecenter.org/how-the-basics-of-pt-ot-can-help-people-with-me-cfs/

For folks who have trouble with abbreviations (*ahem* 🙋🏻‍♀️):

PT = Physical therapy
OT = Occupational therapy

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

#MEcfs #PwME #LongCovid #Fibromyalgia #PEM #BatemanHorne

From Bateman Horne Center:

"Bring awareness to your experience, and share a reflection of your disease in the form of a picture/poem/art.

Please email submissions by Wednesday, May 3rd to outreach@batemanhornecenter.org with the subject line: Awareness Reflections"

#MEcfs #FIbromyalgia #LongCOVID #BatemanHorne

Blog post from Bateman Horne Center:

"Communication – Meeting Your Critical Needs"

"During a crash, it can be difficult to communicate with others. This section references downloadable and printable communication cards to help you communicate your needs.

Consider keeping these [cards] in your bedside Crash Care Kit or on your electronic device to point/show your caregiver, loved one, or support services."

https://batemanhornecenter.org/communication-meeting-your-critical-needs/

#MEcfs #LongCovid #PwME #SevereME #PEM #BatemanHorne

Blog post from Bateman Horne Center, part of their "MedEd Mondays" series:

"This blog post covers the fourth chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with Long COVID and other multi-system chronic complex illnesses that have a PEM component."

Read more here:

https://batemanhornecenter.org/conserve-energy-during-movement-daily-life/

#MEcfs #LongCovid #PEM #MedMastodon #MedEd #BatemanHorne

"A unique and important aspect of this study was the inclusion of ME/CFS patients with short-duration illness. Dr. Lucinda Bateman saw 'new onset' patients as one of the biggest gaps in ME/CFS research and designed the study to compare short-duration ME/CFS patients to ME/CFS patients sick for a long time."

#MEcfs #Microbiome #Research #NIH #BatemanHorne

From the Bateman Horne Center:

Potential Targets for ME/CFS Clinical Trials

"This week showcased Bateman Horne Center’s strategic plan in action. The new research published in two separate papers in the prestigious journal, Cell Host & Microbe, provided further evidence that the microbiome and metabolome contribute to the pathology of ME/CFS."

https://batemanhornecenter.org/potential-targets-for-me-cfs-clinical-trials/

#MEcfs #Microbiome #Research #NIH #BatemanHorne

From the Bateman Horne Center:

News Release: Microbiome Disturbances in ME/CFS

"Signature microbiome disturbances in ME/CFS may point to biomarker and treatment trials"

https://batemanhornecenter.org/news-release-signature-microbiome-disturbances-in-me-cfs-may-point-to-biomarker-and-treatment-trials/

#MEcfs #Microbiome #Research #NIH #BatemanHorne

From the Bateman Horne Center:

A free online support group is scheduled for January 10 starting at 1 PM MST (noon PST / 3 PM PST)

This support group is for "people with ME/CFS, FM, Long COVID, and co-existing conditions [as well as] supporters and loved ones."

Sessions are led by Meredith Mehner, LCSW, who has personal experience living with chronic illness.

https://batemanhornecenter.org/event/online-support-group-39/

#MEcfs #PwME #LongCovid #Fibromyalgia #Support #ChronicIllness #BatemanHorne