Hey #disabled #NEISvoid friends and those who spend lots of time in bed or are #Bedbound
What’s your favourite pillow for laying on your back for extended periods of time? My current pillow is great for when I’m actually asleep as I’m a side sleeper, it during the day I’m on my back and it’s too high. I see those cervical pillows a lot- do they help? Or should I just get a flat pillow?
This is SO much better than being #BedBound! I LOVE having a wheelchair. And I’m going to be moving in a little over a month - I’m going to find an accessible apartment. I’m really excited!
But it sucks for now. :( I COULD wheel over to the grassy area there and look at the plants, or probably make it to the apartment complex’s playground, except that there are /stairs/. :(
Hi, I'm Chartreuse! I'm a member of a plural system. A few of my headmates have been on the Fediverse for a while at @fern, @cobalt, and @primrose, and I wanted my own account. I don't front as often as them, but when I do, I tend to have thoughts about being #disabled.
My system has #MEcfs and (I think?) #POTS, along with various other things. We're mostly #bedbound, and I really hate it. I want to DO things!! :(
Mostly, I'll post about that, as well as boosting cat photos. #introduction
#disabled #mecfs #pots #bedbound #introduction
"The Gurney Guide for Severe ME Transportation" by Galen Warden
https://www.galenwarden.com/post/gurney-guide
I haven't read this free guide. It looks like it focuses on the US with a little discussion on the UK & Australia
#SevereME #SevereMECFS
#SevereCFS #VerySevereME @severeme #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #NeuroME #Bedbound
#SevereME #severemecfs #severecfs #verysevereme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #meeps #cfsme #cfids #seid #NeuroME #bedbound
Do you need this floof on a Monday? They often sleep near each other when it's cold. Maybe touching. But this was next level this weekend.
I'm still not turning up the heat. #Dysautononia
#dysautononia #tortico #cat #GreatPyrenees #dog #bedbound #viewsfrombed
#BedBound problems:
Sadie cat has strong feelings that now that winter is here my lap is hers. The current position of my lap is apparently unacceptable. I just heard myself say, "It's not your job to tell me what I'm supposed to do with my body."