How do journals publishing palliative and end-of-life care research report ethical approval and informed consent?

https://microblogging.infodocs.eu/2023/09/11/how-do-journals-publishing-palliative-and-end-of-life-care-research-report-ethical-approval-and-informed-consent/

#bioethics #BiomedicalResearch #BodilHolmberg #Ethics #GertHelgesson #KnutJrgenVie #ScientificCommunication #StefanEriksson #ToveGodskesen #WilliamBlow

Next was an important conversation on pursuing #healthcare equity through systems improvement at the Harvard Medical School Center for #Bioethics with Kedar Mate, David Ansell, and Nancy Berlinger. I think a lot of the points here could be adapted to tech and business broadly https://www.youtube.com/watch?v=h8YPtrabCZ4 (7/13)

Next was a riveting talk by Harriet A. Washington on medical apartheid and bioethical erosion at the Harvard Medical School Center for #Bioethics. This is an essential talk, getting into the historical roots of racial mistreatment in US medical research and implications for contemporary ethical issues. Highly recommend https://www.youtube.com/watch?v=JAhlHAx5Luw (5/11)

Next was a moving panel on the ethical lessons of the USPHS syphilis study at Tuskegee at the Harvard Medical School Center for #Bioethics with Lillie Head and Riggins Earl, Jr. Head brings a personal view to this - her father was part of the "study" - a perspective that is lacking in most ethical reviews outside of bioethics - while Earl gives a fiery analysis. Highly recommend https://www.youtube.com/watch?v=-28ZiqRjjtU (7/10) #ethics

Wired: Scientists Just Tried Growing Human Kidneys in Pigs https://www.wired.com/story/scientists-just-tried-growing-human-kidneys-in-pigs/ #Tech #wired #TechNews #IT #Technology via @morganeogerbc #Science/Biotech #BuildingBlocks #stemcells #bioethics #medicine #Science #biotech #Biology #health

Next was a fascinating talk by Alondra Nelson on the intersection of race, reparations, and reconciliation with genetic testing at the Harvard Medical School Center for #Bioethics. Nelson demonstrates the inescapable connections between these different spheres and the implications for society https://www.youtube.com/watch?v=ADzBTol_rDg (10/11)

Next was an intriguing talk by Hiromitsu Nakauchi Hiro on the ethics of growing transplantable human organs in livestock at Harvard Medical School Center for #Bioethics. The points by Insoo Hyun on the implications of this new technology and why ethical frameworks have to be scientifically informed is broadly relevant https://www.youtube.com/watch?v=B7eclgs_9xc (8/10) #ethics

Next was a thought-provoking session on embryo modeling and cultivation in research at Harvard Medical School Center for #Bioethics with Jianping Fu and Insoo Hyun. The ethical framework here is impressive, incorporating medicine, theology, and politics (easter egg: look at the date of this in person event!) https://www.youtube.com/watch?v=dSmpuNvieqY (6/11)

Next was an interesting session on the #ethics of multi-cellular engineered living systems at Harvard Medical School Center for #Bioethics with Roger Kamm and Insoo Hyun. I love how far before widespread real-world applications of this technology scholars are already grappling with the ethical implications and what frameworks will be necessary moving forward https://www.youtube.com/watch?v=JKfb_-rzusQ (6/8)

Wired: Preferring Biological Children Is Immoral https://www.wired.com/story/ethics-children-parenting-family-biology/ #Tech #wired #TechNews #IT #Technology via @morganeogerbc #Reproduction #anthropology #NextNormal #bioethics #genetics #ethics #Ideas

Last was a compelling talk by Nenad Sestan on experimenting with large mammalian brains ex vivo at Harvard Medical School Center for #Bioethics with discussion by Robert Truog. Both the talk and the discussion cover the complex ethical issues here, continuous processes for navigating them, as well as potential improvements https://www.youtube.com/watch?v=aCaj6CrjE-8 (9/9) #neuroscience

First was a great panel on the #ethics of innovation in personalized experimental therapeutics at the Harvard Medical School Center for #Bioethics with David Brown and Martin McKneally. I loved the governance framework introduced here, as well as the Maimonides reference! Highly recommend https://www.youtube.com/watch?v=Z2hX6lf-jEg (2/9)

First was a good panel on justice concerns with the Moderna vaccine trials at the CU Center for #Bioethics and Humanities with Marilyn Coors, John Heldens, and Thomas Campbell. As always, the way folks with a bioethics background methodically stake out their goals before conducting a study and regularly review their ethical approach is impressive https://www.youtube.com/watch?v=hrD5GAmrBP8 (2/10) #ethics

Hi!

I am #Italian, posting from #Italy.

I recently abandoned X (formerly #Twitter) where I was interested to follow and write about #bioethics, #psychology, #mentalhealth #leadership, #democracy.

I look forward to fostering revitalizing conversations here and making new friends. Thank you!

#introduction #introductions

Public Health’s Post-pandemic Relationship with Coercion by Max Smith - now available on the Impact Ethics blog. #bioethics https://impactethics.ca/2023/08/22/public-healths-post-pandemic-relationship-with-coercion/

Next was an intriguing talk by Robin Lovell-Badge on global governance of #genome editing at the Harvard Medical School Center for #Bioethics. This was a great example of how to think about governance of impactful new technology, and I would encourage folks from tech and management to take notes https://www.youtube.com/watch?v=vMcMSMwtiRI (4/8) #ethics

Next was an important conversation on the science and #ethics of a new class of #cancer therapies at the Harvard Medical School Center for #Bioethics with Insoo Hyun and Caron Jacobson. Medicine has a much clearer ethical approach than tech and management when it comes to weighing tradeoffs of new technologies, and it shows in this discussion https://www.youtube.com/watch?v=RlujvFHFees&t=13s (5/7)

Next was an important talk by Abigail Lara on the #ethics of slow codes at the University of Colorado Center for #Bioethics and Humanities. The ethics of not doing one's utmost to save the life of a patient are extremely complex, and those complexities are laid bare in this emotionally wrenching talk https://www.youtube.com/watch?v=hEi-xXewELQ (4/6)

Next was an interesting panel on the #ethics of psychedelics research at the Harvard Medical School Center for #Bioethics with Sharmin Ghaznavi and Rick Doblin. This is a complex web of science, social norms, and regulations, and I enjoyed learning about the evolution of this area over time https://www.youtube.com/watch?v=KQ1F9PQiZaM (3/6)

Next was a fabulous conversation with Charisse Madlock-Brown on justice and bias in #healthcare #AI at the University of Colorado Center for #Bioethics and Humanities. This conversation touches on a lot of different areas (including a @timnitGebru shoutout but she forgot her name 😞), and directly indicts the approach of tech to these issues. Highly recommend https://www.youtube.com/watch?v=AnpjgdkxJL4 (5/11) #ethics