Soheb · @soheb
72 followers · 1638 posts · Server pkutalk.com
Just done the blood spot. Very happy with the blood spot circles! #pku #Phenylketonuria #phenylalanine #bloodspot #bloodspots #blood
#pku #phenylketonuria #phenylalanine #bloodspot #bloodspots #blood
poconnor · @poconnor
20 followers · 240 posts · Server pkutalk.comTW: blood & needles
Tips for #PKU #BloodSpot
The #sapropterin trial meant daily #tests & I review different lancets & offer tips
TLDR: lancet has big effect on pain & healing as does choosing the site
#pku #bloodspot #sapropterin #tests #livingwithpku #lowprotein #adultpku #pcu #pkulife
Soheb · @soheb
46 followers · 1338 posts · Server pkutalk.comJust got my latest blood result, and it’s 449umol/L!
#pku #lowprotein #phenylketonuria #bloodspot #bloodspots
Soheb · @soheb
46 followers · 1298 posts · Server pkutalk.com
New blood spots!
First finger prick didn’t get too much blood out. The second one did the trick.
Given how the second finger (my usual go-to finger) is hurting and the other one feels like nothing happened to, I would say I probably didn’t put the needle close enough to the finger. Oh well.
#pku #pcu #bloodspots #bloodspot #blood #Phenylketonuria #phenylcetonurie #phenylalanine #health #nhs #lowprotein #diet #lowproteindiet
#pku #pcu #bloodspots #bloodspot #blood #phenylketonuria #phenylcetonurie #phenylalanine #health #nhs #lowprotein #diet #lowproteindiet
Soheb · @soheb
36 followers · 864 posts · Server pkutalk.com
Just done my blood spots for my PKU! The first circle is great, but I eventually loose steam by the end 😂
#pku #phenylketonuria #phenylcetonurie #bloodspots #bloodspot #blood #health #nhs #lowprotein #diet
#pku #phenylketonuria #phenylcetonurie #bloodspots #bloodspot #blood #health #nhs #lowprotein #diet
Soheb · @soheb
15 followers · 94 posts · Server pkutalk.comSo why is this done and how often is it done?
This is done to make sure that the phenylalanine (phe) levels in my bloodstream are at a reasonable level - #pku means my body is unable to break down phe properly so it can accumulate in my bloodstream, where it gets into my brain and causes brain damage (such fun!).
This is done every month to keep track of my levels. Some people need to do this more often (e.g pregnant women to make sure the baby is protected)
#pku #bloodtest #blood #bloodspot
Soheb · @soheb
14 followers · 92 posts · Server pkutalk.com
In case you are unfamiliar with me and my blood spots, I’ll catch you up to speed:
I’m not very good at them…
#blood #bloodspot #bloodspots #pku
Soheb · @soheb
14 followers · 91 posts · Server pkutalk.com
I’m glad to inform you that normal programming has resumed #bloodspot #bloodtest #pku