My partner moved into the memory care/assisted living place today (from rehab).

Fully expecting the first period may be rough but hopefully it's a good environment for her.

I have to resist trying to be over there all the time.

This should have been more obvious to me, but finally sinking in that I need to move to a new role in her life.

I'm no longer the hands-on caregiver. I need to learn to trust others to take good care of her day-to-day.

It's hard.

#caregivers #caregiving @caregivers

@gbhnews

In #Texas the state pays care givers $10.60/hr. A new Dairy Queen employee in Austin is paid $15.60/hr.
https://www.texasobserver.org/community-based-caregiver-wages-2023/

👀 @TexasObserver
https://newsie.social/@TexasObserver@texasobserver.social/111024916484919822

#Texas #Healthcare #Caregivers #Labor #Politics #USA #News

Previously: Disabled Texans struggle to get the care they need outside of state institutions because of forced low pay rates for #caregivers, which are among the worst in the nation.
https://www.texasobserver.org/community-based-caregiver-wages-2023/

#disability #TXlege #news #Politics #USpol #HumanRights #workers

Texas has remained second-to-last in funding in for our most needy citizens since that metric has been tracked.

Wages for community-based caregivers for those with intellectual and developmental disabilities remain pegged at $10.60/hour, below the starting pay for most fast food workers. Cody Clark, who runs an agency that provides these #caregivers, shares his struggle to offer safe, lifesaving care: https://www.texasobserver.org/community-based-caregiver-wages-2023/

#disability #TXlege #news #Politics #USpol #workers #Texas

Technology-Based Interventions to Address Social Isolation and Loneliness Among Informal Dementia Caregivers: A Scoping Review

"...#Technology-based interventions addressing #social isolation and loneliness in informal #dementia #caregivers have the potential to overcome barriers to low uptake of services and withdrawal from interventions and improve the sustainability of the interventions..."

#Health #Care

https://www.jamda.com/article/S1525-8610(23)00713-2/fulltext?dgcid=raven_jbs_aip_email

The monthly #MEAction support group for partner caregivers is tomorrow

Sunday, September 3rd
12 pm PT / 3 pm ET / 8 pm BST

Caregivers who are spouses, partners, or significant others of people with ME/CFS, Long Covid, and associated conditions are invited to join.

https://www.meaction.net/event/me-partner-caregivers-support-group/2023-09-03/

#MEcfs #PwME #LongCovid #PwLC #Support #Caregivers

It was just the case of a married couple that felt sexual disconnection, like so many out there...

Instead, Sari van Anders and friends from #QueensUniversity turned it in an amazing paper targeting the root causes that frame the role of women in our society as oppressed household laborers and #caregivers.

(just a few out-of-context inputs on neoliberism for my taste, but a must read for every #feminist interested in creating new political discourse)

#SciHub link:

https://sci-hub.hkvisa.net/10.1007/s10508-021-02100-x

From 15 Aug: If women in the US got paid for their caregiving work, they would make an additional 27 billion per year, according to a new analysis. - https://www.bloomberg.com/tosv2.html?vid=&uuid=b0038117-3b6b-11ee-939c-4f6272637566&url=L25ld3MvYXJ0aWNsZXMvMjAyMy0wOC0xNC91cy13b21lbi13b3VsZC1tYWtlLWFuLWV4dHJhLTYyNy1iaWxsaW9uLWlmLXBhaWQtZm9yLWNhcmVnaXZpbmc/c3JuZD1wcmVtaXVt #equality #feminism #caregivers #economics

"More than 6 million people in the United States have Alzheimer’s, and about two-thirds of them are women." https://www.washingtonpost.com/wellness/2023/08/09/male-caregivers-alzheimers-challenges-tips/ (gifted)
To those #politicians who voted against providing assistance to #caregivers in the #Biden legislation that would have helped those caring for loved ones with #dementia and other #illness, read this and confront what your lack of #empathy means. #EndAlz

GQP-led states are seeing a brain drain.
#LGBTQ #rights #are #human rights #GQP #GOP #states #see #brain #drain #teachers #doctors #therapists #counselors #medical #professionals #nurses #caregivers #caretakers #leave #leaving #southern #south #midwest #bible #belt #cities #hospitals #schools #colleges https://www.nbcnews.com/nbc-out/out-news/gay-louisiana-doctor-says-s-leaving-state-discriminatory-legislation-rcna97867

One significant difference between this account and my alt one on Firefish is that this will be home base for some more detailed discussions on #dementia and #caregivers. If that is of any particular interest to you, please let me know, preferably with a response here. I have a goal to try to develop some thoughts, resources, and sense of community around that point that I haven't yet seen in the Fediverse.

@constantorbit woukd like to read it but a paywall. Is there a gift link? What I’m wondering is: do families with one or more members who have #ChronicIllness or #Disability or #Caregivers have more of these life changes that average? It always seems like we run into far more and faster episodes.

What can make the conditions for #caregivers better? Alva Rodriguez says, "$25 per hour can't solve everything. But it would make this job, one of the toughest and worst-paying you will find, a little bit better."

Read on: https://irvine.ly/44IxurX

#healthcare

Remember how I was worried about my partner falling? Well here we are at the ER. @caregivers #caregiver #caregivers #parkinsons

@caregivers #caregivers

I've always assumed a bad fall is somewhere in her future, but we don't hover over her, and have let caregivers know they shouldn't really, either, for the most part.

It's one of those quality-of-life balances you just have to make. She doesn't like being treated like an invalid, and I (and her family) feel like she should have as good a life as possible while she can.

(No, we're not reckless, we take plenty of precautions & care.)

#parkinsons

okay, that was mildly terrifying.

I've always been very happy that every time Alyssa sees her doc or neurologist & they ask "any falls recently?" we've always been able to say "none".

She's now fallen 3 times since May. Luckily none with any injury.

Just now walking the dogs, she completely ignores the curb and so went right over. LUCKILY landed on the grass, but her head was an inch or so from a fire hydrant.

That could have been really, REALLY bad. Yikes.

@caregivers #caregivers

My headmates and I knitted for 7 hours total over the past 2 months. Now, with a couple #caregivers established, I've knitted for 3 hours total in the past 3 *days*, and I'm excited to do more. It's incredible what a difference it makes to have our basic needs met!

@abejaclaustro @cobalt @thundergod97 @nathanlovestrees @JosephMeyer @Sedunker @dbaplanb @vigour_mortis

so fwiw, if we want to use it... I did go ahead and create a group at @caregivers . Basically, if you follow it you see what anyone posts to that group. Similarly, if you post to the group, goes to everyone following. 🤷‍♂️

FYI here https://a.gup.pe

#caregiver #caregiving #caregivers

#TheLongestDay. Here are some links that might be helpful if #dementia has entered your life.
https://act.alz.org/site/SPageServer?pagename=the_longest_day
https://memory.ucsf.edu/
https://www.nia.nih.gov/health/alzheimers-disease-research-centers
https://pennmemorycenter.org/

There are 33 ADRCs (Alzheimer's Disease Research Centers) in the US funded by the #NationalInstituteOnAging. Many have #clinicaltrials, #outreach, and #supportgroups for #caregivers.

#EndAlz

The emphasis on #caregiving, and #RosalynCarter's deep commitment to #caregivers, in this article is so important. Let's support #caregivers. #EndAlz https://www.washingtonpost.com/politics/2023/05/30/rosalynn-carter-health-dementia-jimmy-carter/