Denis · @constantorbit
1011 followers · 2633 posts · Server hachyderm.io

My partner moved into the memory care/assisted living place today (from rehab).

Fully expecting the first period may be rough but hopefully it's a good environment for her.

I have to resist trying to be over there all the time.

This should have been more obvious to me, but finally sinking in that I need to move to a new role in her life.

I'm no longer the hands-on caregiver. I need to learn to trust others to take good care of her day-to-day.

It's hard.

@caregivers

#caregivers #caregiving

Last updated 1 year ago

ZhiZhu · @ZhiZhu
1729 followers · 13578 posts · Server newsie.social
Texas Observer Lives! · @TexasObserver
16415 followers · 4539 posts · Server texasobserver.social

Previously: Disabled Texans struggle to get the care they need outside of state institutions because of forced low pay rates for , which are among the worst in the nation.
texasobserver.org/community-ba

#caregivers #disability #txlege #news #politics #uspol #humanrights #workers

Last updated 1 year ago

Texas Observer Lives! · @TexasObserver
16410 followers · 4508 posts · Server texasobserver.social

Texas has remained second-to-last in funding in for our most needy citizens since that metric has been tracked.

Wages for community-based caregivers for those with intellectual and developmental disabilities remain pegged at $10.60/hour, below the starting pay for most fast food workers. Cody Clark, who runs an agency that provides these , shares his struggle to offer safe, lifesaving care: texasobserver.org/community-ba

#caregivers #disability #txlege #news #politics #uspol #workers #texas

Last updated 1 year ago

Matteo Cesari · @macesari
44 followers · 83 posts · Server med-mastodon.com

Technology-Based Interventions to Address Social Isolation and Loneliness Among Informal Dementia Caregivers: A Scoping Review

"...-based interventions addressing isolation and loneliness in informal have the potential to overcome barriers to low uptake of services and withdrawal from interventions and improve the sustainability of the interventions..."

jamda.com/article/S1525-8610(2

#technology #social #dementia #caregivers #health #care

Last updated 1 year ago

ahimsa · @ahimsa_pdx
910 followers · 9541 posts · Server disabled.social

The monthly support group for partner caregivers is tomorrow

Sunday, September 3rd
12 pm PT / 3 pm ET / 8 pm BST

Caregivers who are spouses, partners, or significant others of people with ME/CFS, Long Covid, and associated conditions are invited to join.

meaction.net/event/me-partner-

#meaction #mecfs #pwme #LongCovid #pwlc #support #caregivers

Last updated 1 year ago

🔾Daniele Turra🔾 · @RookieNerd
10 followers · 163 posts · Server hachyderm.io

It was just the case of a married couple that felt sexual disconnection, like so many out there...

Instead, Sari van Anders and friends from turned it in an amazing paper targeting the root causes that frame the role of women in our society as oppressed household laborers and .

(just a few out-of-context inputs on neoliberism for my taste, but a must read for every interested in creating new political discourse)

link:

sci-hub.hkvisa.net/10.1007/s10

#queensuniversity #caregivers #feminist #scihub

Last updated 1 year ago

Steven Saus [he/him] · @StevenSaus
485 followers · 9258 posts · Server faithcollapsing.com
Cindy Weinstein · @CindyWeinstein
1124 followers · 2722 posts · Server zirk.us

"More than 6 million people in the United States have Alzheimer’s, and about two-thirds of them are women." washingtonpost.com/wellness/20 (gifted)
To those who voted against providing assistance to in the legislation that would have helped those caring for loved ones with and other , read this and confront what your lack of means.

#politicians #caregivers #biden #dementia #illness #empathy #endalz

Last updated 1 year ago

getmisch · @GetMisch
58 followers · 736 posts · Server masto.nyc
Desert Dweller · @jnye
784 followers · 4 posts · Server mas.desertviews.us

One significant difference between this account and my alt one on Firefish is that this will be home base for some more detailed discussions on and . If that is of any particular interest to you, please let me know, preferably with a response here. I have a goal to try to develop some thoughts, resources, and sense of community around that point that I haven't yet seen in the Fediverse.

#dementia #caregivers

Last updated 1 year ago

cobalt · @cobalt
1169 followers · 3840 posts · Server awscommunity.social

@constantorbit woukd like to read it but a paywall. Is there a gift link? What I’m wondering is: do families with one or more members who have or or have more of these life changes that average? It always seems like we run into far more and faster episodes.

#chronicillness #disability #caregivers

Last updated 1 year ago

The James Irvine Foundation · @IrvineFdn
8 followers · 126 posts · Server sfba.social

What can make the conditions for better? Alva Rodriguez says, "$25 per hour can't solve everything. But it would make this job, one of the toughest and worst-paying you will find, a little bit better."

Read on: irvine.ly/44IxurX

#caregivers #healthcare

Last updated 1 year ago

ConstantOrbit · @constantorbit
916 followers · 2127 posts · Server hachyderm.io

Remember how I was worried about my partner falling? Well here we are at the ER. @caregivers

#caregiver #caregivers #Parkinsons

Last updated 1 year ago

ConstantOrbit · @constantorbit
887 followers · 2003 posts · Server hachyderm.io

@caregivers

I've always assumed a bad fall is somewhere in her future, but we don't hover over her, and have let caregivers know they shouldn't really, either, for the most part.

It's one of those quality-of-life balances you just have to make. She doesn't like being treated like an invalid, and I (and her family) feel like she should have as good a life as possible while she can.

(No, we're not reckless, we take plenty of precautions & care.)

#caregivers #Parkinsons

Last updated 1 year ago

ConstantOrbit · @constantorbit
887 followers · 2002 posts · Server hachyderm.io

okay, that was mildly terrifying.

I've always been very happy that every time Alyssa sees her doc or neurologist & they ask "any falls recently?" we've always been able to say "none".

She's now fallen 3 times since May. Luckily none with any injury.

Just now walking the dogs, she completely ignores the curb and so went right over. LUCKILY landed on the grass, but her head was an inch or so from a fire hydrant.

That could have been really, REALLY bad. Yikes.

@caregivers

#caregivers

Last updated 1 year ago

Saffron (they/them) · @saffron
29 followers · 61 posts · Server artisan.chat

My headmates and I knitted for 7 hours total over the past 2 months. Now, with a couple established, I've knitted for 3 hours total in the past 3 *days*, and I'm excited to do more. It's incredible what a difference it makes to have our basic needs met!

#caregivers

Last updated 1 year ago

ConstantOrbit · @constantorbit
866 followers · 1952 posts · Server hachyderm.io

@abejaclaustro @cobalt @thundergod97 @nathanlovestrees @JosephMeyer @Sedunker @dbaplanb @vigour_mortis

so fwiw, if we want to use it... I did go ahead and create a group at @caregivers . Basically, if you follow it you see what anyone posts to that group. Similarly, if you post to the group, goes to everyone following. đŸ€·â€â™‚ïž

FYI here a.gup.pe

#caregiver #caregiving #caregivers

Last updated 1 year ago

Cindy Weinstein · @CindyWeinstein
956 followers · 2273 posts · Server zirk.us
Cindy Weinstein · @CindyWeinstein
881 followers · 2009 posts · Server zirk.us