Recent discussion with an OT has me wondering about whether or not it's worth getting into a fight with the #CareIndustry powers-that-be about operational guidelines compared to the legislation.

Have I/Can I/Will I - be able to cope and not fall into a heap?

#Today my Crohn's flare feels like it's subsiding, without much more intervention from me that slightly upping my prednisolone dose.

But only sort of. I am exhausted and still have the runs. The real meds will be here soon. Not subsidised so they're $160 for a month's supply.

What I need to do today is attend to my goldfish, and push as many things around the house as I physically can, because a bloke is coming next week to fix up a chunk of kitchen for me, so I need to find somewhere to put all the things that I need to get out of the kitchen, which means making space elsewhere. Aiiie!

I also have a video appointment with my case manager, but I think that will be over quickly. Nothing she said she would arrange over the last 6 weeks has actually happened. So there's nothing new to talk about.

#MyAgedCare #CareIndustry

#Today the care agency sent me a random for meal prep. It does sound like she knows what she's doing, but I'm sick of this shit. You can't send randoms in to do this stuff. I reckon it can take a good three weeks to get a new person doing meal prep the way you need/want it done.

My care package money is going to this agency. If they can't deliver, they need to tell me.

#CareIndustry #Care #MyAgedCare

Today is a day of poor care provision. I'm annoyed but see no point going into details. I'm going to have to take it up (and I will, don't worry) with my care provider. But not until the carer has gone. She's nice, doing her best, but HELLO if she can't do the tasks required in this shift, what is the fricking point?

To add to my concerns, my case manager is nowhere to be found. #CareIndustry #MyAgedCare

Back of the envelope calculations: my care package is maxed out for the coming year. And then some.

Aged care packages are a fixed sum. I'm on the highest level. Given I'm a youngster in the aged care system because of NDIS fuckups, I dunno how things will be in about 10 years. Doubt I will be needing less care than I do now. #MECFS #CareIndustry #Disability #Auspol