People who look down their noses and sneer at those who are disabled, on welfare or their carers or assume they are thieves are the worst kind and I am glad that not everyone is like that. #CarersWeek

I am a carer.
My son has #AtaxiaTelangiectasia
It affects all muscles in the body. Leads to the inability to walk, talk and use fine motor skills because of the neurological impairment.
I get paid €118 a week. If something happens to him💔
I will be told: Farewell.
#carersweek

Many many unpaid carers across the UK are doing it tough with little or no acknowledgement from govt, not least economic support. #CarersWeek #CarersWeek2023 #UnpaidCarers #DWP

RT @RachelCurtis82@twitter.com

To kick off #CarersWeek can I ask my fellow parent carers what do you feel are your main challenges as the carer of a disabled child? What would you like to change to improve the quality of life of your family? Give me a shout! #RealCarersWeek
@WeAreCarers@twitter.com

🐦🔗: https://twitter.com/RachelCurtis82/status/1665631881822457857

I am a carer of a boy, with #AtaxiaTelangiectasia.
I help him wash, dress up, carry him on my back down the stairs.
Go to appointments for/with him.
Speak to DRs
It's my job to know what vaccines he had and when. His medical history since birth.
I'm also him mum.
#CarersWeek

About helpful things... https://open.substack.com/pub/paulbackhouse/p/helpful-things

#Carersweek #caring #carers