Judyintheskynet · @Judyintheskynet
8 followers · 11 posts · Server social.tchncs.de
Das Gesundheits-Magazin Ourbodies hat meine Geschichte erzählt, wie es so plötzlich zu meiner schweren Behinderung kam und es mir damit geht, mit Schwerpunkt auch auf Aufklärung zu #CFSleak nach Lumbalpunktion, #MECFS, aber auch ganz allgemein. Und mein coping (wenn es denn das überhaupt gibt bei ME) mit der Kunst und unser Projekt, mit dem wir mehr awareness schaffen wollen.
https://ourbodies.at/suechtig-nach-leben-in-einem-paralleluniversum/
#nichtgenesen #mecfs #spinalleak #csfleak #disabilityawareness #Lumbalpunktion
#lumbalpunktion #disabilityawareness #csfleak #spinalleak #mecfs #nichtgenesen #cfsleak
Genx.PoohBear 🏴☠️ · @hmichel
104 followers · 41 posts · Server disabled.social
I’ve been on leave from work since 8/29. What have I learned? My coping strategy is to distract myself until I physically can’t anymore. Then I lay perfectly flat, cry myself to sleep, sleep 12 plus hours and do it again. #POTS #Dysautonomia #cfsleak #ehlersdanlossyndrome #midjouney
#pots #Dysautonomia #cfsleak #ehlersdanlossyndrome #midjouney
Heather Michel · @hmichel
70 followers · 43 posts · Server universeodon.com@LongCovidAdvoc Hi! I have #EDS #POTS #Dysautonomia #CFSME and a #CFSLeak . I am super careful about #covid and wear a mask everywhere. My issues are not from covid. I've had them my whole life. I like #Latchhooking #knitting and #cats . My training was in #Environmental #Science but I work as a #technicalwriter (Although I am currently out on #disability #Leave ) I #boost #environment #toots , #cat #toots , and #covid #toots . lol....cat toots.
#eds #pots #dysautonomia #cfsme #cfsleak #covid #latchhooking #knitting #cats #environmental #Science #technicalwriter #disability #leave #boost #environment #toots #cat
Heather Michel · @hmichel
55 followers · 31 posts · Server universeodon.comIntroduction time! Hi!!! I am new at his tooting business. I am a mom with two kids and one fur baby. I have #EDS #Pots #Dysautonomia #CFS #ME and a chronic occult #CFSLeak (sounds witchy doesn't it??). I came from #twitter which was mostly used to gather #covid info for my family, get updates on the war in #ukraine and fangirl over #JohnnyDepp . We will see how this goes and how fast #elonmusk can sink #Twitter
#eds #pots #dysautonomia #cfs #ME #cfsleak #Twitter #covid #ukraine #johnnydepp #elonmusk