Paul Simpson · @dutchpaul
38 followers · 43 posts · Server mstdn.socialJust watched #SavingLives on BBC Two, featuring some neurosurgery for #Chiari at one of the amazing hospitals in Leeds. Had the same operation 26 years ago at King's College Hospital, London, under a consultant from Guy's. Brought it all back.
"Saving Lives in Leeds", Series 1: Episode 8: www.bbc.co.uk/iplayer/episode/m001l618
Paul Simpson · @dutchpaul
40 followers · 56 posts · Server mstdn.social
Just watched #SavingLives on BBC Two, featuring some neurosurgery for #Chiari at one of the amazing hospitals in Leeds. Had the same operation 26 years ago at King's College Hospital, London, under a consultant from Guy's. Brought it all back.
"Saving Lives in Leeds", Series 1: Episode 8:
https://www.bbc.co.uk/iplayer/episode/m001l618/saving-lives-in-leeds-series-1-episode-8
dystobot · @dystobot
5 followers · 5180 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1648544548660862976]
RT @Aaleayha: My daily struggle:
#hEDS, #CCI, #Chiari, #seizures, #Dystonia, #Dysautonomia, #POTs, #IIH #migraine, #asthma, C1-L5 herniated discs, spinal cord compression, #neuropathy, muscle spasms, #chronicpain #sciatica, #incontinence, #RheumatoidArthritis, stiffness, #IBS, #gastroparesis
#hEDS #CCI #chiari #seizures #dystonia #Dysautonomia #pots #iih #migraine #asthma #neuropathy #chronicpain #sciatica #incontinence #rheumatoidarthritis #ibs #gastroparesis
dystobot · @dystobot
5 followers · 2114 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1621535289389858818]
RT @LunaRivera96: Not very part of living with a chronic illness is visible!
#chronicillness #autoimmunedisease #invisibleillness #SLE #sjogrens #Fibromyalgia #lymedisease #CRPS #MultipleSclerosis #Dystonia #Dysautonomia #Chiari #depression #anxiety https://t.co/fTKGEcN2ov
#chronicillness #autoimmunedisease #InvisibleIllness #SLE #Sjogrens #fibromyalgia #lymedisease #crps #MultipleSclerosis #dystonia #Dysautonomia #chiari #depression #anxiety
dystobot · @dystobot
5 followers · 1331 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1615722042065620994]
RT @LunaRivera96: Sending hugs to all battling a chronic illness.
#SLE #lupus #sjogrens #Fibromyalgia #MultipleSclerosis #cancer #LymeDisease #CrohnsDisease #CRPS #dystonia #Dysautonomia #Chiari #diabetes https://t.co/N2zZyq4I97
#SLE #Lupus #Sjogrens #fibromyalgia #MultipleSclerosis #cancer #lymedisease #crohnsdisease #crps #dystonia #Dysautonomia #chiari #diabetes
· @ragusaibla
194 followers · 762 posts · Server mastodon.uno
RT @CarloCalenda@twitter.com
A #Chiari con #MassimoVizzardi che porterà l’esperienza di vita reale all’interno della Regione, come solo un Sindaco sa fare.
#LombardiaSulSerio
#Lombardia2023
🐦🔗: https://twitter.com/CarloCalenda/status/1613642984909639681
#chiari #massimovizzardi #lombardiasulserio #lombardia2023
dystobot · @dystobot
6 followers · 1085 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1613605538851323921]
RT @LunaRivera96: Diagnosis Journey of Chronic Illness
#SLE #lupus #Fibromyalgia #chronicillness #cancer #diabetes #epilepsy #sjogrens #lymedisease #MultipleSclerosis #rheumatoidarthritis #raynauds #crohnsdisease #CRPS #osteoarthritis #ankylosingspondylitis #dystonia #Dysautonomia #Chiari https://t.co/30OzuFhccO
#SLE #Lupus #fibromyalgia #chronicillness #cancer #diabetes #epilepsy #Sjogrens #lymedisease #MultipleSclerosis #rheumatoidarthritis #raynauds #crohnsdisease #crps #osteoarthritis #AnkylosingSpondylitis #dystonia #Dysautonomia #chiari
dystobot · @dystobot
6 followers · 1040 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1613202879535267842]
RT @LunaRivera96: It's normal to be angry about your illness!
#SLE #lupus #sjogrens #Fibromyalgia #dystonia #chiari #raynauds #rheumatoidarthritis #arthritis #MultipleSclerosis #cancer #lymedisease #gout #crohnsdisease #CRPS #osteoarthritis #IBS #LongCovid #cancer #sicklecell #diabetes #epilepsy https://t.co/I19SOss7It
#SLE #Lupus #Sjogrens #fibromyalgia #dystonia #chiari #raynauds #rheumatoidarthritis #arthritis #MultipleSclerosis #cancer #lymedisease #gout #crohnsdisease #crps #osteoarthritis #ibs #LongCovid #SickleCell #diabetes #epilepsy
dystobot · @dystobot
5 followers · 858 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1611372084008976384]
RT @LunaRivera96: Sending Hugs To All Chronic Illness Warriors!
#SLE #lupus #Fibromyalgia #LymeDisease #MultipleSclerosis #arthritis #rheumatoidarthritis #epilepsy #CRPS #Dystonia #Dysautonomia #sjogrens #diabetes #Chiari #trigeminalneuralgia #diabetes #migraines #thyroiddisease #sarcoidosis https://t.co/0sMVrZ651S
#SLE #Lupus #fibromyalgia #lymedisease #MultipleSclerosis #arthritis #rheumatoidarthritis #epilepsy #crps #dystonia #Dysautonomia #Sjogrens #diabetes #chiari #trigeminalneuralgia #migraines #thyroiddisease #sarcoidosis
dystobot · @dystobot
5 followers · 819 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1611015958683951106]
RT @LunaRivera96: WHY IS IT SO HARD TO LIVE WITH CHRONIC ILLNESS?
#SLE #lupus #chronicillness #fibromyalgia #MultipleSclerosis #cancer #lymedisease #CRPS #Chiari #diabetes #epilepsy #sjogrens #crohns #colitis #dystonia #migraines https://t.co/cH9hhfUPvT
#SLE #Lupus #chronicillness #fibromyalgia #MultipleSclerosis #cancer #lymedisease #crps #chiari #diabetes #epilepsy #Sjogrens #Crohns #colitis #dystonia #migraines
dystobot · @dystobot
5 followers · 817 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1611010947736371200]
RT @LunaRivera96: People living with chronic illness have a higher risk of depression. #SLE #lupus #Fibromyalgia #POTS #lymedisease #MultipleSclerosis #Dystonia #epilepsy #RheumatoidArthritis #dysautonomia #chiari #diabetes #gastroparesis #gravesdisease #sarcoidosis #sjogrens #depression https://t.co/qqUuG98Xmb
#SLE #Lupus #fibromyalgia #pots #lymedisease #MultipleSclerosis #dystonia #epilepsy #rheumatoidarthritis #Dysautonomia #chiari #diabetes #gastroparesis #GravesDisease #sarcoidosis #Sjogrens #depression
Stefano · @StefanoDoc
14 followers · 254 posts · Server mastodon.unoIL MUSICISTA-LOGGIONISTA: WALTER CHIARI https://il-musicista-loggionista.blogspot.com/2022/12/walter-chiari.html?spref=tw #Chiari #WalterChiari #Movie #Tv #Italy #Totò #Soldati #Monicelli #Welles #Loy
#chiari #walterchiari #movie #tv #italy #toto #soldati #Monicelli #welles #Loy
Nik · @ascreaminpossum
119 followers · 463 posts · Server disabled.social@Oryx I feel you completely. I spent 15-20 years begging drs to realize that there was other things going on than the #SpinaBifida and #chiari I was born with that they blamed everything on. I have since been diagnosed with a type of #MD, #Lupus, #Sjögrens , #RLS , #essentialtremor, #narcolepsy , #mcas, #mastocytosis, and I got sick every time I ate because my gallbladder was at 15% function which they ignored and told me I was fat. ALL of that was supposed to be JUST my Spina Bifida.
#SpinaBifida #chiari #md #Lupus #sjogrens #rls #essentialtremor #narcolepsy #mcas #Mastocytosis
Ruth Chaves Lizano ♿♿ · @ruticl
136 followers · 3078 posts · Server masto.nobigtech.es
Paul Simpson · @dutchpaul
10 followers · 4 posts · Server mstdn.socialLive in Blackwater Valley #edgelands on border of NE #Hampshire #Surrey #Berkshire Returned to area I grew up in after retiring early due to impact of neuro condition called #Chiari
Inspired by the 'commons' + the particular. Love #buses #trees #lufc #municipal power #familyhistory or #ancestry. Head turned by #linocut
Worked in #PR #publicrelations incl. #BBCRadio1 #KissFM #Shazam + in/around SW1 then #lecturer #University of Greenwich; University of the Arts/LCC.
🏳️🌈🌳
#University #lecturer #shazam #kissfm #bbcradio1 #publicrelations #pr #linocut #Ancestry #familyhistory #municipal #lufc #Trees #buses #chiari #berkshire #surrey #hampshire #edgelands #introductionpost
Paul Simpson · @dutchpaul
29 followers · 17 posts · Server mstdn.socialLive in Blackwater Valley #edgelands on border of NE #Hampshire #Surrey #Berkshire Returned to area I grew up in after retiring early due to impact of neuro condition called #Chiari
Inspired by the 'commons' + the particular. Love #buses #trees #lufc #municipal power #familyhistory or #ancestry. Head turned by #linocut
Worked in #PR #publicrelations incl. #BBCRadio1 #KissFM #Shazam + in/around SW1 then #lecturer #University of Greenwich; University of the Arts/LCC.
🏳️🌈🌳
#University #lecturer #shazam #kissfm #bbcradio1 #publicrelations #pr #linocut #Ancestry #familyhistory #municipal #lufc #Trees #buses #chiari #berkshire #surrey #hampshire #edgelands #introductionpost
Phoenix · @MilaPhoenix
39 followers · 182 posts · Server disabled.socialMy cat being the stubborn ass he is made me climb over him into bed tonight. My head is pounding and it’s time to cuddle up with him and try to sleep even though I know it probably won’t happen for a while. Gnight. #ChronicPain #Chiari #goodnight #cats
#chronicpain #chiari #goodnight #Cats
Nik · @ascreaminpossum
43 followers · 131 posts · Server disabled.socialI just realized I don't think I introduced me yet. I'm Nik, I just turned 41. I live in Tennessee, US with my partner @MilaPhoenix and our two cats. I am multi-diagnosis disabled and immunocompromised. We are #COVIDSafe and have been isolated since late Feb 2020 except for dr appts. Here are some # I align with. #trans #LGBTQIA2S #SpinaBifida #Lupus #Sjögrens #ocd #AuDHD #adhd #autistic #cptsd #chiari #POTS #EDS #science #BlackLivesMatter #blacktranslivesmatter #ProtectBlackWomen #WearAMask
#covidsafe #trans #LGBTQIA2S #SpinaBifida #Lupus #sjogrens #ocd #AuDHD #adhd #autistic #cptsd #chiari #pots #eds #science #BlackLivesMatter #blacktranslivesmatter #ProtectBlackWomen #WearAMask
Karrie Higgins · @karriehiggins
88 followers · 16 posts · Server disabled.socialIntro post!
I am a writer, Intermedia artist, fabric designer, sewist, ink-maker and performance + video artist currently working on a couple of books & an NEA-funded project about a local disaster. Oh -- I also rescue cats and take care of a large feral cat colony.
Longtime #DisabilityTwitter member with #EDS, #Chiari, #Syringomyelia, #MCAS, #Epilepsy + I am #ActuallyAutistic & #nonbinary (pronouns they/she). Very glad to among friends!
#disabilitytwitter #eds #chiari #syringomyelia #mcas #epilepsy #actuallyautistic #nonbinary
TheresasMastodon · @TheresasMastodon
459 followers · 428 posts · Server mstdn.social@White_Bite I have #Chiari which basically does the same thing when triggered, so it would be a double hit for me to get #Covid
Thanks for posting this great explainer.