On a day when I am in pain and low on spoons, it's such a relief when I have finished cooking a healthy delicious meal, that I can not only eat for lunch, but also for dinner so that I don't have to worry what to eat for the rest of the day. There is always planB food in the freezer, but I am happy that I still had enough spoons for planA today.

#disabled
#Chronicallylll
#ActuallyAutistic

@Rhube from my experience, being #Chronicallylll is kind of a job in itself.
There's doctors appointments, getting meds, remembering to take the meds, getting the #ChronicalIllness status for insurance, getting #Disabled status for tax return, learning about your illness, and so on.

As my aunt said, you are off work because you are unfit for work. Feeling miserable is not necessary. Getting better is your new job and rest is necessary!

#PublicDiary I have been wondering if it us really helpful to know that you are #Chronicallylll

My mom didn't. Just lived her life and then died kind of early.

I do and I spend a lot of time trying to avoid that fate.

She got to be sporty and fearless.

I am not fit , no sports allowed, constantly worrying. At the doctors every couple of weeks.

What would you chose?

Me: we must be kind to ourselves. Especially #neurodiverse or #Chronicallylll folks. The world is louder, brighter, more overwhelming to us so we need to actively protect and nurture ourselves.

Also me: Oh come on, i can clean the apartment today. Look, im barely having much trouble standing!

So, they put paper sticks inside my eyelids today. TWICE! How is your day going? :blobcat_thisisfine:

#NEISvoid #Sicca #DryEyes #MedicalAppointments #FunHospitalAppoitments #Chronicallylll #Sjögrens

Hidradenitis suppurativa has ripped my "life" to shreds. I am a shell of shame and pain. 🤕

#HidradenitisSuppurativa #23_L #NEISvoid #DisabledinSTEM #Chronicallylll #ChronicPain #Disability #Sad #Trauma #CPTSD #PTSD #Grief #autoimmune #chemotherapy #dermatology

Feeling kinda isolated and with high covid levels in my area I'm gonna have to limit my in-person social activities. Anyone have recommendations of #zoom or other online meetups for #Chronicallylll / #Disabled folks that you enjoy?