#Today my friend is driving me to the doctor. I am so grateful. Because of her, my hubby can save a family leave day.
Having a #ChronicIllnessDisability is hard on care takers, too.

I was recently asked by my Pain Dr when I last experienced a Truly joyful day and I was taken back by my lack of an immediate response. 🤔
I checked my calendar.. September 3rd, 2019. A truly wonderful day.

When was the last time you were truly happy?

#Mindfulness #Happyness #SelfReflection #ChronicIllnessDisability #LivingWithPain #Perseverance

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate