This is… not much of a poem. But it’s what I’ve got and where I'm at. #poems #chronicilness #scleroderma

I just don’t know what to do anymore. I’m scared of everything. I‘ve got so much trauma from doctors. I’m scared my GP will yell at me today and I won’t get a chance to get my treatment, scripts, go though very bad bloodwork and figure out what to or follow up referrals. I really need my IV. He’s dragging his heels. He yelled at me a few days after my mother had a stroke. That’s why I need to record this guy. How can I do this all in 10 minutes? The clinic won’t even let me email them to pass anything on in preparation. They denied it for 8 months but finally admitted it. I can’t go anywhere else because don’t have the energy. I’ve got no support. I ask one disability advocate to help they say they don’t do that and pass me on to another one that sends me back. Don’t know what to do. Hospital doesn’t help. What the hell do I do? I’m not asking a lot. I just want treatment and people who should be helping me to stop treating me like shit.

#SevereME #ChronicIlness #LongCovid #PwME #MECFS
#CoerciveControl #Abuse coming from everywhere.
@mecfs

I just don’t know what to do anymore. I’m scared of everything. I‘be got so much trauma from doctors. I’m scared my GP will yell at me today and I won’t get a chance to get my treatment, scripts, go though very bad bloodwork and figure out what to or follow up referrals. He yelled at me a few days after my mother had a stroke. How can I do this in 10 minutes? The clinic won’t even let me email them to pass anything on in preparation. They denied it for 8 months but finally admitted it. I can’t go anywhere else because don’t have the energy. I’ve got no support. I ask one disability advocate to help they say they don’t do that and pass me on to another one that sends me back. Don’t know what to do. Hospital doesn’t help. What the hell do I do. I just want treatment and people who should be helping me to stop treating me like shit.

#SevereME #ChronicIlness
#CoerciveControl #Abuse coming from everywhere.

I had forgotten that Paul Berg, the Nobel Prize-winning biochemist who was instrumental in developing recombinant DNA and developing the first rules for how not to misuse it, was also a board member of the Open Medicine Foundation, dedicated to curing myalgic encephalomyelitis/chronic fatigue syndrome. Berg played "a significant role in moving the needle forward on ME/CFS" says OMF founder Linda Tannenbaum. #MEcfs #ChronicIlness #Genetics #Medicine

The road to hell is paved with paperwork Unsure about good intentions.

“You know that essay you wrote? Yeah, didn’t read it” or “You aren’t eligible.” You couldn’t have told me this?

How can there be any more forms left to fill in? Questions to answer?Are there any people left to contact? Underfunded #social #services to work through?

How can I rest? My #adrenals will burn out completely if I continue like this. I need to stop adding #hydrocortisone #steroids to get things done. I didn’t just suddenly wake up. This is VERY bad for me.

If only #help and #housing was #safe and #accessible. It’s hard enough for the #abled. I need an #advocate. More forms.

#ChronicIlness is a full time unacknowledged job. #Abuse is the sprinkles.

#severeME #pwme #mecfs #LongCovid #ChronicPain #Disability #NEISVoid

@dustcircle

As someone who is autistic, having 12x higher suicide rates, fibromyalgia, at 10x suicide rate of general population, and having alcoholism and 100x the suicide rate, I beat the statistics daily. I don't go on as some testament of victory. I go on in spit, to whole a middle finger up to life 🖕

#addiction #mentalhealth #depression #chronicilness #fibro

@rheum_cat So do you direct share from Twitter and it's pulling the preview? I joined during the #ACR22 convergence while listening to sessions and noticing my own #ChronicIlness and #ChronicPain communities in meltdown mode. Also have no idea what I'm doing.

#introduction We are doping hashtags, right? #trans #gay #actuallyautistic #actuallyadhd #AuDHD #rubyonrails #chronicilness #COVIDisAirborne Another refugee from Twitter, but haven’t tweeted in a long time, for mental health reasons.

Any #nurses or #medical folk out there willing to give IVs? They change my life but I can’t get them. Lying in bed wasting my life instead.
Never had a bad reaction.

#Melbourne #Australia.

#Neisvoid #pwME #severeME #mecfs #ChronicIlness #Migraine #ChronicPain

To follow the trend here; hi here's some things I love and enjoy or things important to me. If you want to connect 🙇🏻‍♀️

#lgbtqia
#spoonie
#chronicilness
#gaming
#keyboards
#tea
#japanese
#CornishRex