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Tom Kindlon · @tomkindlon
777 followers · 2065 posts · Server disabled.social

8/

"It’s discouraging and isolating, especially when you feel that you can’t make plans simply because you do not know that you’ll be able to carry them out."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2060 posts · Server disabled.social

7/

"You may have to start cancelling plans, which can leave you feeling flaky and unreliable, especially when those plans were with someone that saw you on a good day recently."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2059 posts · Server disabled.social

6/

"Fluctuating conditions are also shockingly unpredictable, especially at first, when you don’t know what will trigger a flare or are not yet experienced enough to recognize the warning signs."



@chronicillness @spoonies @mecfs @longcovid

#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2038 posts · Server disabled.social

2/

"There are so many ways that an or can fluctuate, so many ways that the effects of such can change. But when you do have a or disability, it often comes with many of the same pitfalls of a . Judgement from those uneducated in the realities of disability, high expectations that are realistically beyond your capabilities, assumptions from others."


#illness #disability #fluctuatingillness #hiddendisability #chroniclife #hiddenillness #InvisibleIllness #spoonies #spoonie #chronicallyill #mecfs

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
773 followers · 2007 posts · Server disabled.social
Open media

#illnesshumour #illnesshumor #chronicillness #chroniclife #spoonielife #ChronicIllnesses #spoonies #spoonie #chronicallyill #mecfs #cfs #pwme

Last updated 1 year ago
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mywildlens · @mywildlens
554 followers · 1520 posts · Server kinkyelephant.com
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Back through the wild lens -

I feel like this again today. Chronic illness is relentless.

mywildlens.com/2022/11/13/scre

#nude #chronicillness #photography #chroniclife #boobs #bath

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
701 followers · 1712 posts · Server disabled.social
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#parenting #parents #orthostaticintolerance #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #chronicillness #chroniclife #spoonielife #hiddenillness #InvisibleIllness #pots

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
676 followers · 1556 posts · Server disabled.social
Open media

: Alice Evans, , and reflections on infectious causes of chronic disease

academic.oup.com/cid/advance-a

“Many long COVID patients today will recognize the fatigue Evans describes in her request for work-from-home accommodations, & the frustration she describes at her colleagues’ suggestion that chronic Brucella infection is merely an excuse to collect disability insurance.”

@longcovid @chronicillness @spoonies



#LongCovid #brucellosis #NEISvoid #chronicillness #chroniclife #chronicpain #spoonielife

Last updated 1 year ago
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Dreadful Sanity :heart_pan: · @dreadfulsanity
439 followers · 4885 posts · Server mstdn.games

Barely slept. hangover. Exhausted.

#migraine #chronicpain #chroniclife #spoonie

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
651 followers · 1446 posts · Server disabled.social
Open media

#chronicillness #chroniclife #chronicpain #spoonielife #mecfs #cfs #myalgice #pwme

Last updated 1 year ago
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Dreadful Sanity :heart_pan: · @dreadfulsanity
434 followers · 4807 posts · Server mstdn.games

I had a massive attack and I'm completely off. Brain fog, inside trembling, and generally feeling like shit. 😭

#migraine #chronicpain #chronicillness #chroniclife #spoonie

Last updated 1 year ago
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Malka Beth · @BrahmaBelarusian
14 followers · 429 posts · Server regenerate.social

Not having a twisted/sprained right ankle would definitely ease my errands today but.... 1st of next month I'll just order a new set of ankle braces, as I'll need them & my wrist ones next month for cleaning out the basement. Then hopefully by January I'll have built myself better ones.

#chroniclife #heds

Last updated 1 year ago
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ahimsa · @ahimsa_pdx
667 followers · 5727 posts · Server disabled.social

A blog I was reading was asking for donations with a pop-up that said, "Like what you are reading?"

But my brain saw this instead:

"Like, WHAT are you reading?"

Which aptly describes my usual brain-fogged state, especially if I switch to a new tab! 😂

The other day I told my husband, "My super power is forgetting!" 💪

#mecfs #brainfog #chroniclife

Last updated 1 year ago
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Dreadful Sanity :heart_pan: · @dreadfulsanity
334 followers · 3538 posts · Server mstdn.games

When your brain is fucked up and you have problems to articulate your thoughts properly, get frustrated, because the person you're talking to can't read minds and you can't words until the frustration flips into anger and you lash out.

Me. Today. Already apologize but the self-hatred spiral is very... slippery today. 😒

#mentalhealth #chroniclife #spoonie #migraine #adhd #audhd #neurospicy #depression

Last updated 2 years ago
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Dreadful Sanity :heart_pan: · @dreadfulsanity
332 followers · 3505 posts · Server mstdn.games

You know what's funny? The neurologist I went for my migraines did not hesitate to inject me with Botox, but medical marijuana to try to reduce the severity of the pain was evil incarnate.

Now, there is no clinical trail conducted, but the research done on the topic so far does show promise.

I'm getting opioids for my RLS without a problem, but medical marijuana? Nope.

#chroniclife #chronicpain #migraines #medicalmarijuana

Last updated 2 years ago
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dystobot · @dystobot
5 followers · 5110 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @AChVoice: "The more I can tap into my side, the more I can produce the feel-good hormones so the rest of my day is more enjoyable": t.co/bzkZmtWrkw @dystoniabook1

#creative #reframing #Dysautonomia #chronicpain #chroniclife

Last updated 2 years ago
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Tricia🏴󠁧󠁢󠁳󠁣󠁴󠁿󠁧󠁢󠁳🇪🇺 · @ForfarFairLady
303 followers · 14681 posts · Server mastodon.scot

#chroniclife #fibromyalgia #spoonie #chronicpain

Last updated 2 years ago
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Dreadful Sanity :heart_pan: · @dreadfulsanity
318 followers · 3273 posts · Server mstdn.games

Me: "It's like that that sound a tuning fork makes? Just in pain."
Everyone else: staring in confusion.

Just me? Can't be just me, right?

#chroniclife #chronicpain #spoonie

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
552 followers · 835 posts · Server disabled.social

3/

It ends:

“All I ask is that next time, if you’re young and one of your friends has to keep canceling for mental or physical illness, give them the benefit of the doubt. And if you see someone young who is struggling, don’t tell them they should be grateful for their youth, give them your care, because they know all too well what they’re missing out on.”



@chronicillness @spoonies

#chroniclife #chronicallyill #spoonie #chronicillness #spoonielife

Last updated 2 years ago
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Malka Beth · @BrahmaBelarusian
10 followers · 175 posts · Server regenerate.social

them in bags of compost, with drainage holes, until I can get them in the ground. My schedule is definitely lagging behind but, I'll get there.

#chroniclife #foodforest

Last updated 2 years ago
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