The Consumer Voice · @beuc
593 followers · 566 posts · Server eupolicy.social

Join us and uncover the findings of our heat pump 'mystery shopping' project at the next instalment of our on 27 September. After our study presentation, our panelists will address obstacles consumers encounter and brainstorm strategies to boost the adoption of eco-friendly heating solutions. beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1101 posts · Server eupolicy.social

OK @beuc's event on is over.

tl;dr:

🤩 @TheProgressives MEP seems to have patients' right to front and centre. Kudos!

😖 The @EU_Commission seems to neither understand nor their own law . Sad!

💸 The wants to milk us for more profits. Surprise!

🤔 And defends ' rights but for some reason less so when it comes to the secondary use of records by 3rd parties.

*** END ***

#consumerdebates #EHDS #petarvitanov #Privacy #bigdata #Dataprotection #gdpr #insurance #industry #beuc #patients #Medical

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1100 posts · Server eupolicy.social

Of course the lobbyist gratefully jumps on that falsehood, throwing all the and medical advancement journey BS that the insurance industry allegedly provides at us.

#insurance #innovation #EHDS #consumerdebates

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1099 posts · Server eupolicy.social

It's mind-boggling how the @EU_Commission rep just says "don't worry, anonymised records are not personal data" while ignoring a decade of and de-identification .

Example: vimeo.com/91204492

#Medical #computer #Science #research #anonymisation #Privacy #EHDS #consumerdebates

Last updated 1 year ago

Jan Penfrat · @ilumium
1122 followers · 1098 posts · Server eupolicy.social

Oh my, lobbyist pulls out the "data will cure " argument. And because data collection allegedly leads to lower insurance prices, it's really about not . 🤦

Sure.

#insuranceeurope #hiv #inclusion #discrimination #consumerdebates #EHDS

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1096 posts · Server eupolicy.social

Great push-back from @beuc's against the insurance lobby: the whole idea of is the of , so abusing medical records for individual premiums and prices breaks the entire system.

#moniquegoyens #insurance #mutualisation #risk #consumerdebates

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1095 posts · Server eupolicy.social

MEP points again at vulnerable folks 💪 Women in seeking abortion (abroad) need the protection provided by a regime.

Abuse risks are all over the Commission's proposal.

#petarvitanov #poland #consent #EHDS #consumerdebates

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1094 posts · Server eupolicy.social

Lobby group wants our medical records so they can be "competitive in the market", otherwise "higher prices", sorry folks.

Some people really have no shame.

#insuranceeurope #consumerdebates #EHDS #Privacy #Dataprotection

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1093 posts · Server eupolicy.social

The 's entire secondary use regime for records is so shaky that the European doctors' association calls to completely exempt doctors from it. 🤐

#EHDS #Medical #cpme #consumerdebates #Privacy #Dataprotection #HealthData

Last updated 1 year ago

Jan Penfrat · @ilumium
1121 followers · 1091 posts · Server eupolicy.social

So good to see MEP pushing back and emphasising the risks of and abuse in particular for people when medical records are shared without consent as foreseen by the .

#petarvitanov #discrimination #marginalised #EHDS #consumerdebates

Last updated 1 year ago

The Consumer Voice · @beuc
550 followers · 481 posts · Server eupolicy.social

Only 51% of consumers are willing to share their health data with healthcare practitioners across EU member states to secure good treatment when they are abroad.

Join us on 4 May to join the discussion: beuc.eu/events/consumerdebate-

#EHDS #consumerdebates

Last updated 1 year ago

The Consumer Voice · @beuc
550 followers · 477 posts · Server eupolicy.social

Don't miss out! George Veliotes (Insurance Europe) will be our final panelist for on the European Health Data Space. Register now before it's too late and join us on 4 May: beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 2 years ago

The Consumer Voice · @beuc
550 followers · 476 posts · Server eupolicy.social

"European Health Data Space: use or abuse of consumers’ health data?" that is the question!
Join us on 4 May for the results of our survey and an engaging panel discussion with MEP Petar Vitanov. Register now: beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 2 years ago

The Consumer Voice · @beuc
550 followers · 461 posts · Server eupolicy.social

Medical and health records aren't just useful for doctors. They're valuable to public health agencies, governments, researchers, and businesses across industries. But what are consumers comfortable with sharing?

Join the discussion with @SJMRoda (@CPME_EUROPA) at our next . Register now: beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 2 years ago

The Consumer Voice · @beuc
550 followers · 460 posts · Server eupolicy.social

Next on our panel to discuss the European Health data space is Maria Roubtsova from our 🇫🇷 member group @UFCquechoisir. Register now to join the conversation "European Health Data Space: use or abuse of consumers’ health data?" on 4 May: beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 2 years ago

The Consumer Voice · @beuc
550 followers · 458 posts · Server eupolicy.social

Join us and @FulviaRaffaelli (@EU_Health) on 4 May to discuss whether the EU health data space respects consumers’ preferences (or not). Don't miss out on this : beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 2 years ago

The Consumer Voice · @beuc
550 followers · 454 posts · Server eupolicy.social

Curious about consumers' attitudes towards sharing their health data?
Find out more on 4 May during our online . We'll be revealing the results of a survey conducted in 8 EU countries. Don't miss out: beuc.eu/events/consumerdebate-

#consumerdebates

Last updated 2 years ago

The Consumer Voice · @beuc
511 followers · 363 posts · Server eupolicy.social

Coming up this week: our latest event on energy communities. Last chance to register and join us: beuc.eu/events/consumerdebates

RT @beuc@twitter.com

Are energy communities the answer for consumers looking for more choice and control? Join our expert panel on 2 February to find out! Register now for our online event. beuc.eu/events/consumerdebates

#consumerdebates #energycommunities

Last updated 2 years ago

The Consumer Voice · @beuc
510 followers · 355 posts · Server eupolicy.social

Are energy communities the answer for consumers looking for more choice and control? Join our expert panel on 2 February to find out! Register now for our online event. beuc.eu/events/consumerdebates

#consumerdebates #energycommunities

Last updated 2 years ago

The Consumer Voice · @beuc
508 followers · 350 posts · Server eupolicy.social

@LeonardoMeeus@twitter.com @FSR_Energy@twitter.com Our @MoniqueGoyens@twitter.com will join our panel: "Energy communities: How can we better protect consumers?" as we'll dive into the results of BEUC’s novel research into consumer rights in energy communities. Register now: beuc.eu/events/consumerdebates

#consumerdebates

Last updated 2 years ago