Ihr Lieben 😊

gibt es hier in den Weiten des „Universums“ Menschen die ebenfalls an CRPS/Morbus Sudeck erkrankt sind?
Ich selbst bin seit 7 Jahren erkrankt, Typ II, rechte Hand, mittlerweile bis zum Ellenbogen und seit Oktober 2022 linke Hand.

Über einen Austausch/eure Erfahrungen würde ich mich freuen.
#CRPS #MorbusSudeck #Pain

Über boost wäre ich dankbar.

! meine Antworten sind eigene Erfahrungen u. zusammengetragene Infos z.B. a. Selbsthilfegruppen. Bei jedem verläuft d. Erkrankung anders

Been awake since 4am. Went to bed with shoulder pain and head ache verging on Migraine, woke up with... Shoulder pain and head ache. Boy I hope it's not #CRPS rearing its ugly head after 8 years of freedom!

Schon den 2. Tag, das die Feinmotorik „spinnt „. Das gefällt mir nicht, schreiben fällt schwer und malen funktioniert auch nur so semi. Mal schauen wie es morgen ist.
#CRPS #MorbusSudeck #meinLebenmitCRPS #Pain

Auch das ist CRPS, am Papier geschnitten und nicht bemerkt ☹️nicht schlimm, aber es erschreckt mich immer, das meine nervliche Wahrnehmung immer mehr abnimmt.
#CRPS #Pain

I got #acupuncture for my #CRPS yesterday and 1. I have tremendous pain relief (yay!) 2. I am completely exhausted (also kinda yay!). 3. I slept all night for the first time in years.

Eines das mir persönlich am Herzen liegt

Fire & Ice #CRPS die Zerissenheit, ständiger Schmerzzustand, Schmerzschübe, Verlust/Einschränkung d. Grob.-u. Feinmotorik durch Nervenschädigung, u.v.m.

!BT Aquarell, abstract, blau, rot, weiß

Und wie immer das Copyright liegt bei mir

‘I’m being burnt alive Mum’: Young woman diagnosed with ‘suicide disease’ faces race against time | The Independent
https://www.independent.co.uk/news/health/suicide-disease-crps-pain-gofundme-b2371384.html

#CRPS
#SuicideDisease
#ComplexRegionalPainSyndrome

@licked like u, I have #CRPS. 1 thing that aggravates me is when non disabled ppl complain about automated and/or driverless cars.

For some of us, it'd be our ONLY way to have the freedom to "drive" (read: go) somewhere (assuming we could afgord such a vehicle, I can't bit principle stands still) as buses & trains don't service everywhere (nearest bus or train to me? 50miles away, to far for an Uber)

Anyone else out there with #adhd that continue to struggle with low energy days even when on medication? My dark days are fewer, and farther apart, but they still hit me like a brick. Especially after "high output" weeks with a lot of tasks on the plate. Seems like my reward system is too broken to benefit fully from medication. I guess having #crps and #chronicpain on top doesn’t help. #dopamine #add #procastination #fatigue

[Automatic repost https://twitter.com/dystobot/status/1659611164911845406]

RT @MommaJacy: When you have #FMCFS #ChronicSevereMigraines #Dystonia #Dystonia #CRPS and a lot of autoimmune diseases....somehow, it's all in your head. Yes, my migraines have been deemed autoimmune. https://t.co/n5MntdKRv5

[Automatic repost https://twitter.com/dystobot/status/1645800172000276481]

RT @suzanneleavey: #RSD #CRPS #DYSTONIA. One question for those that have CRPS with Dystoni how many of us the CRPS have it? Does anything help you?

[Automatic repost https://twitter.com/dystobot/status/1638601579627421702]

RT @SmartCrutchUSA: #MarchMadness through 3/31/23, free crutch bag w every #smartcrutch to keep your remote close.

#smartcrutch #ehlersdanlossyndrome #potssyndrome #mctd #crps #RSD #rhuematoidarthritis #arthritis #CFS #functionalneurologicaldisorder #dystonia #veterans #multiplesclerosis #MS https://t.co/WORrenr5Bd

[Automatic repost https://twitter.com/dystobot/status/1633502877972058112]

RT @SmartCrutchUSA: What is your choice? Give Up, Give In, or Give It All You've Got?

#smartcrutch #eds #potssyndrome #mctd #crps #RSD #arthritis #CFS #fibromyalgia #functionalneurologicaldisorder #dystonia #veterans #multiplesclerosis #MS #cerebralpalsy #mobilityaid #disability #hypermobility https://t.co/J2oLKm7Tfe

[Automatic repost https://twitter.com/dystobot/status/1631550107672821760]

RT @LindseySellars: Rave me the best supportive and adaptive shoe for someone learning to walk again and with major nerve damage. #disabled #Nike #vessi #adidas #advocate #fnd #crps #dystonia #warrior #helpmehelpyou #Health #adaptive #learningtowalk

„Ein besonderer Moment ist der wenn meine Leichtigkeit wie eine Feder über den Asphalt schwebt.“
~
Dankbar für mittlerweile 9 Jahre auf zwei Beine, laufend, durch die Straßen. Dankbar für Menschen die diese Wege begleiteten, für Zuspruch, Geduld, Verständnis.💜 #thankful #morbussudeck #crps #handicap #schmerzsyndrom #trauma #newshoes #happy

RT @JanetBultitude
Very pleased to see that our RCT of prism adaptation received the highest quality rating (93%) in this review of 38 trials of non-pharmaceutical treatments for #CRPS.
https://journals.sagepub.com/doi/10.1177/17589983221138610#bibr9-17589983221138610

So now my Dr has transitioned me completely off opioids. No side effects from tapering but my nerve disease, #CRPS, pain is extra brutal. They helped so much but misguided rules prevent me & many from what we need for quality of life.
On Lyrica & CBD now.
#ChronicPain
#DisabledSocial

The musical high point of my life was seeing Layne and AIC at Ritchey at U of M, 1994?

I keep having these pains from my big toe to my mid-torso. Like jolting, wake me up, ball shriveling pain.

#CRPS

I have been very quiet for a while. I have not had enough support worker hours and I have had to do too much. My whole body has been overloaded, particularly my arms. I ended up needing to just lie flat in bed all day, and my arms quit being arms. My migraine flared as well of course, and I have been pretty despairing. It has been a bad time with so much pain and so much skin feeling like it is on fire. #crps #disability #neis #Migraine

@Scott1984FP
So sorry

#chronicpain #pain #mentalhealth #uk #Scott1984FP #nhs #socialmedia #goldingtonavenuesurgery #BedsHour #bedford #bedfordshire #rsd #rsds #crps #CRPSType1 #ukpolitics #brokenbritain