@annakern_np I have to specify that I didn't get floaters with my ME, but with the combination of ME and a #CSFleak !

Das Gesundheits-Magazin Ourbodies hat meine Geschichte erzählt, wie es so plötzlich zu meiner schweren Behinderung kam und es mir damit geht, mit Schwerpunkt auch auf Aufklärung zu #CFSleak nach Lumbalpunktion, #MECFS, aber auch ganz allgemein. Und mein coping (wenn es denn das überhaupt gibt bei ME) mit der Kunst und unser Projekt, mit dem wir mehr awareness schaffen wollen.

https://ourbodies.at/suechtig-nach-leben-in-einem-paralleluniversum/

#nichtgenesen #mecfs #spinalleak #csfleak #disabilityawareness #Lumbalpunktion

One of the #millionsmissing, severe #MECFS. Ex researcher and co-founder of http://www.blackferkstudio.com (art for ME)
#CSFleak #MCAS #PostVAC #queer
和平 💙

Hi! I’ve never done something like this before, but it’s #IDPwD so why not? My name is Kathleen, and I’m disabled. I’ve got #hEDS (that acts suspiciously like vEDS), #POTS, #MCAS, #SevereAsthma, #CSFLeak, essential tremor, occipital neuralgia…the list goes on and on. You can read about my recent neuro/vision struggles in the Nerve Block Saga link in my profile. This is an Amazon wishlist (also in my profile), mostly for #disability related products, if you’re so inclined: https://www.amazon.com/hz/wishlist/ls/19RHSTWOMQDQ0?ref_=wl_share

Hello! So excited to be here that I forgot to do an #introduction. I'm a former lawyer who fell into a new career as a food & travel #writer. For 10 years, I traveled and wrote (& ate!), with bylines at NatGeo, CNN, The Guardian, BBC, & more, until a lumbar puncture left me with a chronic #CSFleak in 2017, & disabled.

I now write about curiosity, health, & loss. For more about my story please see my site, Legal Nomads, or this piece: https://edition.cnn.com/travel/article/jodi-ettenberg-legal-nomads-csf-leaks-wellness-cmd/index.html