Judyintheskynet · @Judyintheskynet
30 followers · 19 posts · Server social.tchncs.de

@annakern_np I have to specify that I didn't get floaters with my ME, but with the combination of ME and a !

#csfleak

Last updated 2 years ago

Judyintheskynet · @Judyintheskynet
8 followers · 11 posts · Server social.tchncs.de

Das Gesundheits-Magazin Ourbodies hat meine Geschichte erzählt, wie es so plötzlich zu meiner schweren Behinderung kam und es mir damit geht, mit Schwerpunkt auch auf Aufklärung zu nach Lumbalpunktion, , aber auch ganz allgemein. Und mein coping (wenn es denn das überhaupt gibt bei ME) mit der Kunst und unser Projekt, mit dem wir mehr awareness schaffen wollen.

ourbodies.at/suechtig-nach-leb

#lumbalpunktion #disabilityawareness #csfleak #spinalleak #mecfs #nichtgenesen #cfsleak

Last updated 2 years ago

Judyintheskynet · @Judyintheskynet
8 followers · 11 posts · Server social.tchncs.de

One of the , severe . Ex researcher and co-founder of blackferkstudio.com (art for ME)

和平 💙

#queer #Postvac #mcas #csfleak #mecfs #millionsmissing

Last updated 2 years ago

Kathleen Burnard :BP_cuff: · @kburnard
218 followers · 113 posts · Server med-mastodon.com

Hi! I’ve never done something like this before, but it’s so why not? My name is Kathleen, and I’m disabled. I’ve got (that acts suspiciously like vEDS), , , , , essential tremor, occipital neuralgia…the list goes on and on. You can read about my recent neuro/vision struggles in the Nerve Block Saga link in my profile. This is an Amazon wishlist (also in my profile), mostly for related products, if you’re so inclined: amazon.com/hz/wishlist/ls/19RH

#idpwd #hEDS #pots #mcas #severeasthma #csfleak #disability

Last updated 2 years ago

Jodi Ettenberg · @legalnomads
89 followers · 20 posts · Server mastodon.online

Hello! So excited to be here that I forgot to do an . I'm a former lawyer who fell into a new career as a food & travel . For 10 years, I traveled and wrote (& ate!), with bylines at NatGeo, CNN, The Guardian, BBC, & more, until a lumbar puncture left me with a chronic in 2017, & disabled.

I now write about curiosity, health, & loss. For more about my story please see my site, Legal Nomads, or this piece: edition.cnn.com/travel/article

#csfleak #writer #introduction

Last updated 2 years ago