Ferdi Magellan · @FerdiMagellan
181 followers · 3595 posts · Server aus.social

@craigjoseph

Thank you. What science has achieved is extraordinary. 🙇‍♂️

There are so many reasons for installing air scrubbers and air quality monitors in hospitals, schools and workplaces. What’s good for people with cystic fibrosis is good for us all.

#

#airquality #COVID19 #cysticfibrosis

Last updated 1 year ago

CharitĂ© Berlin · @ChariteBerlin
779 followers · 45 posts · Server wisskomm.social

is a rare genetic disease that often leads to chronic lung inflammation. Researchers from have now shown that a triple combination therapy brings lasting improvement for patients: The mucus in the airways is not as sticky, inflammation in the lungs significantly reduced.

👉 charite.de/en/service/press_re

#cysticfibrosis #chariteberlin #cf #charitepaper #charitepediatrics #medicine #sciencemastodon

Last updated 1 year ago

CharitĂ© Berlin · @ChariteBerlin
779 followers · 45 posts · Server wisskomm.social

ist eine seltene Erbkrankheit, die häufig zu einer chronischen Entzündung der Lunge führt. Forschende der zeigen jetzt, dass eine Dreifachtherapie auch langanhaltende Verbesserung für Betroffene bringt: Der Atemwegsschleim ist weniger zäh, die Entzündung in der Lunge geht zurück.

👉 charite.de/service/pressemitte

#mukoviszidose #chariteberlin #cysticfibrosis #cf #charitepaper #charitepadiatrie #medizin #wissenschaft

Last updated 1 year ago

kirabug · @Kirabug
257 followers · 1677 posts · Server wandering.shop

Has anyone seen or heard of this p. aeuriginosa variant crossing from eyes into cystic fibrosis lungs (yet)? I want to know how worried to be.

mastodon.social/@arstechnica/1

#cysticfibrosis #cf #fuckinghell

Last updated 1 year ago

Phys.org · @physorg_bot
466 followers · 12342 posts · Server social.platypush.tech
The-14 · @The14
21 followers · 729 posts · Server mastodon.world
kirabug · @Kirabug
251 followers · 1501 posts · Server wandering.shop

Ok y’all, where’s the () / community hiding?

#cysticfibrosis #cf #cfrd

Last updated 2 years ago

Phys.org · @physorg_bot
428 followers · 10417 posts · Server social.platypush.tech
stjuderesearch · @stjuderesearch
21 followers · 55 posts · Server ohai.social

from and integrated techniques to better understand the transmembrane conductance regulator, providing new treatment clues. Learn about the @Nature study. bit.ly/3LKSQ1i

#scientists #stjude #rockefelleruniversity #structuralbiology #cysticfibrosis #stjuderesearch #raredisease

Last updated 2 years ago

Eirik Gumeny · @EGumeny
36 followers · 29 posts · Server writing.exchange

Check out this interview I did with the Keeping It Under Wraps team, in advance of the release of Bodies, Uncensored. I've got an essay included, titled "On Being a Real-Life Frankenstein," about that time I was dead and then, y'know, not.

keepingitunderwraps.com/post/m

#transplant #cfirl #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
196 followers · 704 posts · Server fediscience.org

RT @pateixidor
Only 3 days to go! This is the final stretch of our campaign to better diagnose in . Help us make a difference! With your help, we can provide much-needed testing equipment to diagnose this rare disease. bit.ly/3XMlKQF @CFibrose_Muco @swissinfo_en

#africa #cysticfibrosis

Last updated 2 years ago

Eirik Gumeny · @EGumeny
7 followers · 2 posts · Server writing.exchange

Hello, new server, part two! Born with , I still have cystic fibrosis, because that’s how genetic diseases work. In 2014, I received a and technically died a little. I got better.

I don't always talk about it, but having a dead man's insides inside of you isn't exactly the kind of thing you get to forget.

#disability #chronicillness #CovidIsNotOver #immunocompromised #introduction #newhere #lungtransplant #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 686 posts · Server fediscience.org

RT @pateixidor
Just 7 days to go! Join the fight against in Africa so we can buy two test devices to diagnose this rare disease in medically underserved populations, like the one in which Hilal lives. Every donation counts! @wemakeit wemakeit.com/projects/cystic-f

#RDCongo #morroco #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 686 posts · Server fediscience.org

RT @pateixidor
You can make a difference! Help us provide essential testing equipment to detect in Africa. Donate to our crowdfunding campaign and help us improve healthcare in and . bit.ly/3XMlKQF @CFAware @SwissIonChannel @N_Mucoviscidose @RFIAfrique

#RDCongo #morroco #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 658 posts · Server fediscience.org

Thank you to the @snsf_ch for "boosting" our @wemakeit project " in Africa". Now, with more backers, we hope that, besides our colleagues at Fès, we can also buy a 2nd sweat test device for our pediatric colleagues at !
---
RT @pateixidor
We have reached our goal! @ScienceBooster backed our project with a pledge of CHF 5’000! But there are still 15 days to go and we have a new ta…
twitter.com/pateixidor/status/

#ScienceInAfrica #RareDiseases #unikinshasa #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 653 posts · Server fediscience.org

Michèle Fuhrer @MedUBern_Deans arbeitet an ihrer Doktorarbeit in unserem Labor! Sie arbeitet zusammen mit Nada El Makhzen daran, die Crowdfunding-Kampagne erfolgreich zu machen wemakeit.com/projects/cystic-f

- Ihr Interview: berneroberlaender.ch/medizinst

#ScienceInAfrica #cf #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 653 posts · Server fediscience.org

RT @pateixidor
is a rare disease, which means it is found in less than 1 out of 2'000 patients. Since most are of genetic origin, they are challenging to diagnose accurately in African countries. Help us to diagnose it more efficiently. bit.ly/3XMlKQF

#RareDiseases #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 653 posts · Server fediscience.org

RT @pateixidor
Pour les millions de familles qui ont besoin de diagnostic, aide nous en nôtre campagne pour acheter un test de la sueur ! Il sera utilisé en @CHGen_Unikin @christinatshis @DeniseNyakeru @OAFLAD @SwissIonChannel wemakeit.com/projects/cystic-f

#rarediseaseday2023 #cysticfibrosis

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 642 posts · Server fediscience.org

This is the perfect day: we still need CHF 530 to reach our goal!
---
RT @pateixidor
In our @wemakeit crowdfunding campaign we are trying to raise enough money to buy a Nanoduct® device that will improve the diagnosis of in Africa. @AxonlabAG would you contribute in this ? @SwissIonChannel @UDNIss wemakeit.com/projects/cystic-f
twitter.com/pateixidor/status/

#rarediseaseday2023 #cysticfibrosis #cftr #cf #ScienceInAfrica

Last updated 2 years ago

Hugues Abriel · @SwissIonChannel
194 followers · 642 posts · Server fediscience.org

RT @pateixidor
In our @wemakeit crowdfunding campaign we are trying to raise enough money to buy a Nanoduct® device that will improve the diagnosis of in Africa. @AxonlabAG would you contribute in this ? @SwissIonChannel @UDNIss wemakeit.com/projects/cystic-f

#rarediseaseday2023 #cysticfibrosis

Last updated 2 years ago