@craigjoseph

Thank you. What science has achieved is extraordinary. 🙇‍♂️

There are so many reasons for installing air scrubbers and air quality monitors in hospitals, schools and workplaces. What’s good for people with cystic fibrosis is good for us all.

##AirQuality #Covid19 #CysticFibrosis

#CysticFibrosis is a rare genetic disease that often leads to chronic lung inflammation. Researchers from #CharitéBerlin have now shown that a triple combination therapy brings lasting improvement for patients: The mucus in the airways is not as sticky, inflammation in the lungs significantly reduced.

👉 https://www.charite.de/en/service/press_reports/artikel/detail/triple_combination_therapy_brings_lasting_improvement_in_cystic_fibrosis/

#CysticFibrosis #CF #CharitéPaper #CharitéPediatrics #Medicine #ScienceMastodon

#Mukoviszidose ist eine seltene Erbkrankheit, die häufig zu einer chronischen Entzündung der Lunge führt. Forschende der #CharitéBerlin zeigen jetzt, dass eine Dreifachtherapie auch langanhaltende Verbesserung für Betroffene bringt: Der Atemwegsschleim ist weniger zäh, die Entzündung in der Lunge geht zurück.

👉 https://www.charite.de/service/pressemitteilung/artikel/detail/dreifachtherapie_fuehrt_zu_langanhaltender_verbesserung_bei_mukoviszidose/

#CysticFibrosis #CF #CharitéPaper #CharitéPädiatrie #Medizin #Wissenschaft

Has anyone seen or heard of this p. aeuriginosa variant crossing from eyes into cystic fibrosis lungs (yet)? I want to know how worried to be.

https://mastodon.social/@arstechnica/110397541714321593

#cysticFibrosis #cf #fuckingHell

Referenced link: https://medicalxpress.com/news/2023-04-ionocytes-cell-gene-therapy-cystic.html
Discuss on https://discu.eu/q/https://medicalxpress.com/news/2023-04-ionocytes-cell-gene-therapy-cystic.html

Originally posted by Phys.org / @physorg_com: http://nitter.platypush.tech/medical_xpress/status/1651977839590162435#m

RT by @physorg_com: Making ionocytes: A step toward cell or #genetherapy for #cysticfibrosis @bostonchildrens @nature https://www.atsjournals.org/doi/10.1164/rccm.202205-1010LE https://medicalxpress.com/news/2023-04-ionocytes-cell-gene-therapy-cystic.html

Canadian science pioneers’ role in the Human Genome Project shows why it’s crucial to fund research
#Canada #Health #Science #Genetics #DNA #ScienceHistory #Genomics #Genome #ResearchFunding #HumanGenomeProject #CysticFibrosis #NobelPrize
https://the-14.com/canadian-science-pioneers-role-in-the-human-genome-project-shows-why-its-crucial-to-fund-research/

Ok y’all, where’s the #cysticfibrosis (#cf) / #cfrd community hiding?

Referenced link: https://medicalxpress.com/news/2023-03-biology-clues-cystic-fibrosis-treatment.html
Discuss on https://discu.eu/q/https://medicalxpress.com/news/2023-03-biology-clues-cystic-fibrosis-treatment.html

Originally posted by Phys.org / @physorg_com: http://nitter.platypush.tech/medical_xpress/status/1638596955797331968#m

RT by @physorg_com: Integrated structural biology provides new clues for #cysticfibrosis treatment @nature https://www.nature.com/articles/s41586-023-05854-7 https://medicalxpress.com/news/2023-03-biology-clues-cystic-fibrosis-treatment.html

#Scientists from #StJude and #RockefellerUniversity integrated #StructuralBiology techniques to better understand the #CysticFibrosis transmembrane conductance regulator, providing new treatment clues. Learn about the @Nature study. http://bit.ly/3LKSQ1i #StJudeResearch #RareDisease

Check out this interview I did with the Keeping It Under Wraps team, in advance of the release of Bodies, Uncensored. I've got an essay included, titled "On Being a Real-Life Frankenstein," about that time I was dead and then, y'know, not.

#CysticFibrosis #CFirl #Transplant

https://www.keepingitunderwraps.com/post/meet-eirik-gumeny

RT @pateixidor
Only 3 days to go! This is the final stretch of our campaign to better diagnose #cysticfibrosis in #Africa. Help us make a difference! With your help, we can provide much-needed testing equipment to diagnose this rare disease. https://bit.ly/3XMlKQF @CFibrose_Muco @swissinfo_en

Hello, new server, part two! Born with #CysticFibrosis, I still have cystic fibrosis, because that’s how genetic diseases work. In 2014, I received a #LungTransplant and technically died a little. I got better.

I don't always talk about it, but having a dead man's insides inside of you isn't exactly the kind of thing you get to forget.

#NewHere #Introduction #Immunocompromised #CovidIsNotOver #ChronicIllness #Disability

RT @pateixidor
Just 7 days to go! Join the fight against #cysticfibrosis in Africa so we can buy two test devices to diagnose this rare disease in medically underserved populations, like the one in which Hilal lives. Every donation counts! #Morroco #RDCongo @wemakeit https://wemakeit.com/projects/cystic-fibrosis-in-africa?locale=en

RT @pateixidor
You can make a difference! Help us provide essential testing equipment to detect #cysticfibrosis in Africa. Donate to our crowdfunding campaign and help us improve healthcare in #Morroco and #RDCongo. https://bit.ly/3XMlKQF @CFAware @SwissIonChannel @N_Mucoviscidose @RFIAfrique

Thank you to the @snsf_ch for "boosting" our @wemakeit project "#CysticFibrosis in Africa". Now, with more backers, we hope that, besides our colleagues at Fès, we can also buy a 2nd sweat test device for our pediatric colleagues at #UniKinshasa! #RareDiseases #ScienceInAfrica
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RT @pateixidor
We have reached our goal! @ScienceBooster backed our project with a pledge of CHF 5’000! But there are still 15 days to go and we have a new ta…
https://twitter.com/pateixidor/status/1630843163463041024

Michèle Fuhrer @MedUBern_Deans arbeitet an ihrer Doktorarbeit in unserem Labor! Sie arbeitet zusammen mit Nada El Makhzen daran, die Crowdfunding-Kampagne erfolgreich zu machen https://wemakeit.com/projects/cystic-fibrosis-in-africa
#CysticFibrosis #CF #ScienceInAfrica
- Ihr Interview: https://www.berneroberlaender.ch/medizinstudentin-mit-herz-fuer-afrika-474605240830

RT @pateixidor
#CysticFibrosis is a rare disease, which means it is found in less than 1 out of 2'000 patients. Since most #RareDiseases are of genetic origin, they are challenging to diagnose accurately in African countries. Help us to diagnose it more efficiently. https://bit.ly/3XMlKQF

RT @pateixidor
Pour les millions de familles qui ont besoin de diagnostic, aide nous en nôtre campagne pour acheter un test de la sueur ! Il sera utilisé en @CHGen_Unikin #cysticfibrosis #RareDiseaseDay2023 @christinatshis @DeniseNyakeru @OAFLAD @SwissIonChannel https://wemakeit.com/projects/cystic-fibrosis-in-africa/show/rewards-and-details?locale=en

This is the perfect day: we still need CHF 530 to reach our goal! #ScienceInAfrica #CF #CFTR
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RT @pateixidor
In our @wemakeit crowdfunding campaign we are trying to raise enough money to buy a Nanoduct® device that will improve the diagnosis of #cysticfibrosis in Africa. @AxonlabAG would you contribute in this #RareDiseaseDay2023? @SwissIonChannel @UDNIss https://wemakeit.com/projects/cystic-fibrosis-in-africa
https://twitter.com/pateixidor/status/1630494060682047488

RT @pateixidor
In our @wemakeit crowdfunding campaign we are trying to raise enough money to buy a Nanoduct® device that will improve the diagnosis of #cysticfibrosis in Africa. @AxonlabAG would you contribute in this #RareDiseaseDay2023? @SwissIonChannel @UDNIss https://wemakeit.com/projects/cystic-fibrosis-in-africa