Hispanic/Latinx children less likely to have diagnosed developmental disabilities: Cultural differences in knowledge/understanding of what constitutes a disability or differential treatment within the healthcare system may be the reason.

https://pubmed.ncbi.nlm.nih.gov/31292923/

#NICHDImpact #Disability #Healthcare #DevelopmentalDisabilities #ChildDevelopment #HealthDisparities #RacialDisparities

https://bcmj.org/articles/health-care-supportive-housing-facilities “In total, 42 tenants (38%) and 30 staff members (75%) were interviewed. Seventy-two percent of tenants interviewed had unmet #HealthNeeds; those with #DevelopmentalDisabilities experienced the highest percentage of unmet needs. Long-term conditions such as #diabetes, high #BloodPressure, #heart disease, and #liver disease were also associated with unmet needs.

Newcomer to #SeaOtterClassic in 2023: Adventure for All.

We have no experience with Adventure for All and have not researched them, beyond a very fast peek at their website, which still includes a lot of "coming soon." Nonetheless, sharing this for any of you who may want to check them out. https://adventureforall.org

#Inclusive #Bicycling
#Exceptionalism #Disabilities #AutismSpectrum #DownSyndrome #CerebralPalsy #ADHD #DevelopmentalExceptionalities #DevelopmentalDisabilities #IntellectualExceptionalities #IntellectualDisabilities

#MontereyCounty #BikeFestival

Global News BC: Victoria disability sports festival announces 2023 is final year, volunteers still needed https://globalnews.ca/news/9555195/disability-sports-festival-2023-final-year/ #globalnews #britishcolumbia #news #developmentaldisabilitiessportevent #developmentaldisabilitiescamp #developmentaldisabilities #BCvolunteerorganization #VolunteerOrganization #OperationTrackshoes #VolunteersNeeded #BCsportsevent #Victoria #Sports #BC

International Women’s Day Hero of Invisible Disability Rights – Elaine Wilson:

In celebration of International Women's Day, OutOfExile_IDR honors Elaine Wilson, champion of invisible disability rights and the Olmstead Act.  It seems germane, as March is also Developmental Disabilities Month.

During Martin Luther King week, I posted about Lois Curtis, a champion for Invisible Disability Rights (link below).  Lois, togather with another woman, Elaine Wilson, fought all the way to the US Supreme Court (SCOTUS) for the right to live in the community, rather than being institutionalized.  Fighting courageously for their freedom, they won the right to freedom for all people with invisible disabilities.  The case is often refered to as the “Brown v. Board of Education” for people with (Invisible) disabilities.

Excerpt below & image of Elaine from:
https://www.olmsteadrights.org/iamolmstead/history/

[“Elaine Wilson became seriously ill when she was one years old. She was hospitalized with a raging fever and it was unclear whether she would survive... When the fever finally broke and Elaine was …sent home, ….Elaine had lost some of her early motor function abilities, such as crawling or even sitting up by herself. The doctors assured Elaine's mother that (it) was only a lingering effect of the illness…. Elaine eventually did recover, but very slowly”.[]

In school, Elaine lagged behind other students having difficulties with focus and learning , eventually being diagnosed with an Acquired Brain Injury (ABI) attributed to the prolonged high fever as an infant.  Likley, this was the correct diagnosis.

She was reevaluated as a teen upon enrollment at “Gracewood State School and Hospitol” in Georgia.  There, she was diagnosed with an ableist slur containing the “R" word, once used in reference to PEOPLE living with Down Syndrome. Providers believed the only recourse was institutionalization. (I am bitting my tongue and holding back my opinions on the lot of it.)

She would spend about a decade living in institutions (State hospitals) against her will.  Following that, in the 1980s, she would be “ping-ponged" from care homes to hospitals, back and forth for nearly two decades of her life.

“When I was in an institution, I didn't like myself," Elaine says. "I was trapped. . . . I had no hope. I thought, Oh God, Oh God - When am I ever going to leave here?"

Another hero deserving mention on IWD is Sue Jamieson, the Atlanta Legal Aid Society Attorney who brought the case.  Sue and Lois Curtis were joined by co-plaintiff Elaine Wilson, to blaze the path of freedom for countless individuals with disabilities in their wake.

After more than 30 years and 36 psychiatric institutions, at times living homelessness and in varous “care homes", Elaine along with Lois Curtis, were victorious and finally free.

The 1997 ruling by Senior U.S. District Judge Marvin H. Shoob said that “… denying the women a community-based life amounted to segregation of people covered by the Americans With Disabilities Act.”  Judge Shoob later remarked “They were both so articulate” in regard to the testimony of Elaine Wilson and Lois Curitis.

Elaine passed in 2004 at the age of 53 but, will be forever remembered as a Disability Rights Legend for her resilience, strength and courage.  As part of her testimony, she told the court: “When I was in an institution, I felt like I was in a little box and there was no way out”.

Thanks to Elaine Wilson and Lois Curtis, people with invisible disabilities are afforded the right to live in freedom at home, instead of confinement in a “box", cage or institution, merely because of a health issue.  Thanks and honor to Elaine, Lois and Sue on this International Women’s Day.

“The Brave and the Strong” Lois Curitis – OutOfExile_ID:
https://kolektiva.social/@OutOfExile_IDR_Voice/109690867328587920

Elaine’s story continued:
http://www.olmsteadrights.org/iamolmstead/history/item.5405-Elaine_Wilsons_Story_Continued

More on Olmstead and Elaine’s impact:
https://olmsteadrights.wordpress.com/tag/elaine-wilson/

More from disabilityjustice.org:
https://disabilityjustice.org/olmstead-v-lc/

ADA – Community Intergration for Everyone:
https://archive.ada.gov/olmstead/olmstead_about.htm

International Women’s Day Image from:
https://www.desicomments.com/womens-day/international-womens-day-5/

IMAGE CW - (eye contact)
Don't forget the ALT text.

#InternationalWomensDay #ElaineWilson #LoisCurtis #Hero #OlmsteadAct #SueJamieson #SCOTUS #freedom #home #gratitude #CommunityIntergration #DevelopmentalDisabilities #IntellectualDisabilities #BrainInjury #TBI #ABI #AcquiredBrainInjury #MentalHealth #disability #InvisibleDisabilityRights #Hero #DisabilityJustice #EmbraceEquity

@disabilityjustice
@disability

Student with Downs Syndrome Excluded:

A post by @JDS linked an article about an Alabama elementary school girls basketball team that won the championship in a boys league.  Despite defeating all the boys teams they faced enroute to the top, the league refused to award the trophy to the girls team.  As if this example of “exclusion by bigotry” was not enough to get the juices flowing, the article linked another #disability related story that I couldn’t pass up.  So much for easing back into it.

Morgyn Arnold, who lives with down syndrome, worked as the manager of her Junior high school’s cheerleading team. The cheer team at Shoreline Junior High School in Layton, Utah, chose to take two team photos; one with Morgyn and one without.  The photo excluding her is the one used on social media and printed in the yearbook.  Her name was not even mentioned as part of the team.  Despite all of her “hard work and dedication to the team”, she was excluded .

 According to a relative of Morgyn's,  this “was the second time in three years” that she had “been left out of the yearbook” and had been left off the class list of students by the school in the past.  The school issued a statement on social media that was later deleted.  Is that the “swooshing" of brooms I hear?

I personally have had a similar taste of this elixir of exclusion during my time broadcasting for one university hockey team.  Among the numerous discriminatory and ableist acts I experienced, I too was never mentioned or thanked in anyway by that team.  I felt as if I was a dirty secret or that the team that raved about my broadcasts, was ashamed of me. 

The big difference? Down Syndrome is not one of my disabilities and I was not 14 years old like Morgyn.  Even with my experience, I can’t imagine how she must have felt being subjected to these patronizing, demeaning and deplorable ableist acts of exclusion.

In the mind of the offenders, exclusion, discrimination and bigotry doesn’t have to make sense.  Oftentimes, they assume the people living with invisible, developmental or intellectual disabilities to be clueless or lacking reason and intelligence.  In actuality, this type of behavior and “stigmatude” suggests that perpetrators may be lacking in some of these areas.

For this blatant act of ableism and oblivion to inclusion, Community Intergration and equality I have no cheers, only jeers.
“HIP HIP! Shame on you.”

OutOfExile_IDR #InvisibleDisabilityRights

Link to the article and photos: https://www.ibtimes.sg/utah-school-under-fire-after-leaving-student-down-syndrome-out-cheerleading-team-photo-claims-it-58223?utm_source=Internal&utm_medium=article&utm_campaign=related

#EndAbleism #EndBigotry #InvisibleDisabilities #IntellectualDisabilities #DevelopmentalDisabilities #DownSyndrome #CommunityIntergration #inclusion #equality #stigmatude

@disabilityjustice @disability

Happy #TerminologyTuesday! Today let’s learn more about OTs and their role in special education. #SpecialEducation #DevelopmentalDisabilities #OccupationalTherapy

On this #TerminologyTuesday, we’ll learn more about physical therapists and how they can support students with disabilities. #SpecialEducation #DevelopmentalDisabilities #PhysicalTherapy

On this #TerminologyTuesday, let’s continue to learn more about different professionals who may be involved in special education programs. #SpecialEducation #DevelopmentalDisabilities

My housemate Alex has Down Syndrome and often comes up with interesting alternate pronunciations for things. The other day he asked me what kind of rock music I like, and the first band that popped into my head was Heart. He asked me what they played, so I pulled up a song on my phone and played it for him. As soon as it started he said, "Oh yeah! Annacoonda!" He was close. It was Barracuda.
#DownSyndrome #DevelopmentalDisabilities #RockMusic #Heart #Barracuda

Effective special education programs often rely on many types of professionals including a variety of educators, health professionals, and student support staff. #TerminologyTuesday #SpecialEducation #DevelopmentalDisabilities

Although CBT is certainly not be the best approach for everyone, it can be a quite effective approach for supporting individuals who have both mental disorders and developmental disabilities. #TerminologyTuesday #MentalHealth #DevelopmentalDisabilities

Last #TerminologyTuesday, we learned about psychologists and the types of care they can provide. This week, let’s learn about one of the other most common types of mental health professionals- psychiatrists. #MentalHealth #DevelopmentalDisabilities

Great news for #artists with #disabilities in #California. Dr. Olivia Raynor, Founder/Director of the UCLA National Arts and Disability Center and Director Emerita of the UCLA Tarjan Center University Center for Excellence in #DevelopmentalDisabilities has been appointed as a Council Member for the California Arts Council. https://arts.ca.gov/press-release/california-arts-council-welcomes-new-gubernatorial-appointees #Equity @disability

When looking for mental health support and care, it can be difficult to determine which type of professional may be best for you and your family. Let’s learn more about these different professional roles. #TerminologyTuesday #MentalHealth #DevelopmentalDisabilities

A social experiment.
👇 👇
The results are in and somewhat sad.

I did a social experiment last night: "Rolos vs IDR - Invisible Disability Rights."

I posted two pieces and the above "social experiment" toot simultaneously so they would appear on the timeline together. Links to both are below.

The score was:
Rolos 9 - IDR 1

The response for Rolo included favoring, boosting and two comments from the same Mastodonian that seemed to want to give a lesson on geometry in reference to the shape of Rolos.

Only one responce for IDR, a single boost. Thanks Jack. :solidarity:

Social change comes with support from all, abled and disabled individuals alike. As long as candy takes precedence over the abuse, mistreatment, exclusion and inequality of human beings, the future looks bleak for persons with invisible disabilities. Experiment failure.

Invisible Disability Rights are #HumanRights and #DisabilityIsDiversity

Heinous abuse of people with invisible disabilities by humanity (cw):
https://kolektiva.social/@OutOfExile_IDR_Voice/109549519506159425

Rolos candy:
https://kolektiva.social/@OutOfExile_IDR_Voice/109674897422321516

#equality #change #amplify #inclusion #support #listen #EndBigotry #EndAbleism #disability #MentalHealth #DevelopmentalDisabilities #IntellectualDisabilities #TBI
#DisabilitySolidarity #Love4All #DisabilityCommunity #InvisibleDisabilityRights #Legend #LoisCurtis #ElaineWilson #OlmsteadDecision #heros

@autisticadvocacy @disabilityjustice @disability

Image courtesy of psu.com

A social experiment.
👇 👇
The results are in and somewhat sad.

I did a social experiment last night: "Rolos vs IDR - Invisible Disability Rights."

I posted two pieces and the above "social experiment" toot simultaneously so they would appear on the timeline together. Links to both are below.

The score was:
Rolos 9 - IDR 1

The response for Rolo included favoring, boosting and two comments from the same Mastodonian that seemed to want to give a lesson on geometry in reference to the shape of Rolos.

Only one responce for IDR, a single boost. Thanks Jack. :solidarity:

Social change comes with support from all, abled and disabled individuals alike. As long as candy takes precedence over the abuse, mistreatment, exclusion and inequality of human beings, the future looks bleak for persons with invisible disabilities. Experiment failure.

Invisible Disability Rights are #HumanRights and #DisabilityIsDiversity

Heinous abuse of people with invisible disabilities by humanity (cw):
https://kolektiva.social/@OutOfExile_IDR_Voice/109549519506159425

Rolos candy:
https://kolektiva.social/@OutOfExile_IDR_Voice/109674897422321516

#equality #change #amplify #inclusion #support #listen #EndBigotry #EndAbleism #disability #MentalHealth #DevelopmentalDisabilities #IntellectualDisabilities #TBI
#DisabilitySolidarity #Love4All #DisabilityCommunity #InvisibleDisabilityRights #Legend #LoisCurtis #ElaineWilson #OlmsteadDecision #heros

@autisticadvocacy @disabilityjustice @disability

Image courtesy of psu.com

Diagnosis of developmental disabilities and mental health disorders are often based on criteria described in the DSM-5. On this #TerminologyTuesday, let’s learn more about the DSM-5. #MentalHealth #DevelopmentalDisabilities

This is my most recent addition to my personal art gallery painted by one of the other artists at the art program my housemate George goes to. I love this artist's work so much!
#art #painting #DevelopmentalDisabilities #HotPotato