2022 was weird. It's been a year of massive highs, getting engaged, moving to a new town, seeing my best friend more, doing some incredible days out. But also some crazy, crazy, lows, catching covid, my juvenile Dermatomyositis being triggered into activity by that, losing a tonne of my strength, my mobility, my balance, my independence. Now I'm going into 2023 starting a drug in March and just hoping for progress #Spoonie #myositis #covid19 #disabledUK

Councils can't afford to run shopmobility anymore so it's now private services in a lot of places. Just called to book a scooter in Bath to enjoy the Christmas Market and mooch around but guess what, they're shut on weekends. What's the actual point? #disabledUK #shopmobility #spoonies #privatisation #chronicIllness

Councils can't afford to run shopmobility anymore so it's now private services in a lot of places. Just called to book a scooter in Bath to enjoy the Christmas Market and mooch around but guess what, they're shut on weekends. What's the actual point? #disabledUK #shopmobility #spoonies #privatisation #chronicIllness

Alrighty! So it's midnight and I should be sleeping but I'm #chronicallyDisabled and on prednisolone so sleep doesn't exist. Let's talk about it! I have juvenile Dermatomyositis #jdm , a type of #myositis and these tags are empty atm! I'm #disabledUK so connecting with others would be great! I've also started a PIP application so, you know, support through that arduous process will be good 😊 I'll post more info snippets soon!