"It felt like the Hunger Games":
Between 6th birthdays that came too soon & insurance companies denying coverage, families scramble to get their 5 year-olds treated under Sarepta's narrow #FDA approval for #DMD
What a gut punch ending.
#health #healthcare #biotech #genetherapy #insurance #duchenne #musculardystrophy #parenting #medicine
#FDA #dmd #health #healthcare #biotech #genetherapy #insurance #duchenne #musculardystrophy #parenting #medicine
GEWINNE 5 × 1 KEY FÜR DEAD MAN’S DIARY
Jetzt auf #flashbassfm: #Gewinne 5 × 1 Key für „Dead Man’s Diary“ auf der #Xbox! Sei dabei und sichere Dir Dein kostenloses Exemplar dieses spannenden #Survival-#Games. Verpasse nicht die Chance, in eine fesselnde Welt voller Gefahren und Abenteuer einzutauchen. Mach mit und gewinne Deinen Key für „Dead Man’s Diary“!
#TMLStudios #TML #DMD #DeadMansDiary #flashbass #Radio #Gewinnspiel
🌐 Webseite: https://flashbass.fm
📹 Twitch: https://www.twitch.tv/flashbassfm
#flashbassfm #gewinne #xbox #survival #games #tmlstudios #tml #dmd #deadmansdiary #flashbass #radio #gewinnspiel
Gave up with code-d, hello IntelliJ IDEA with D-Lang plugin.
(It woooooorks, although SDL functions like to appear as `symbol potentially undefined`)
Alzheimer's Association campaigns for broader Leqembi coverage — FDA reverses course; will hold adcomm for Sarepta’s DMD gene therapy— Pfizer and Astellas report positive data from prostate cancer therapy trial -- See more on our front page news http://bit.ly/w28kSd #alzheimers #eisai #biogen #fda #dmd #duchenne #pfizer #astellas #clinicaltrials #prostatecancer #pharma #pharmanews #biotech #biopharma #biotechnology #cafepharma
#alzheimers #eisai #biogen #FdA #dmd #Duchenne #pfizer #astellas #clinicaltrials #ProstateCancer #pharma #pharmanews #biotech #biopharma #biotechnology #cafepharma
Duchenne muscular dystrophy: major trials and events to watch in 2023 — Biogen gets EU court ruling in favor of blocking Tecfidera generic entry— FDA offers radio silence on question of spring Covid boosters -- See more on our front page news http://bit.ly/w28kSd #dmd #duchenne #fda #clinicaltrials #europe #generics #biogen #multiplesclerosis #ms #covid #covid19 #vaccines #boosters #pharma #pharmanews #biotech #biopharma #biotechnology #cafepharma
#dmd #Duchenne #FdA #clinicaltrials #europe #generics #biogen #multiplesclerosis #ms #covid #covid19 #vaccines #boosters #pharma #pharmanews #biotech #biopharma #biotechnology #cafepharma
Spent all of today (in spring break) moving DMD program equipment into a new space. Had to move a bunch of other peoples stuff first. It’s good that we’re finally able to consolidate the design equipment into the same building, but it’s going to be a long process to get it all done! #consolidation #fgcu #dmd #design
#Consolidation #fgcu #dmd #design
I like this us vs them story they’re telling, but I am patiently waiting for #DMD to make that turn on Hayter #aew #aewdynamite
#Dungeon23 Day 52
- Testing Room
- Most of the lab equipment and machinery has been ripped out, recycled or dismantled.
- Edkin, the Machine Maker tinkers with new designs and chemical tests, alone and mad.
#Dungeon23 #map #creative #writing #gaming #drawing #DMD #TTRPG #RPG
#dungeon23 #map #creative #writing #gaming #drawing #dmd #ttrpg #rpg
https://www.bbc.co.uk/news/uk-england-leeds-64189002
[#duchenne #muscularDystrophy ]
https://www.duchenneuk.org/what-is-duchenne/
[i see this every day. people who love people with #DMD do not understand it. people who care for people with #DMD do not understand it. and worst, people who have #DMD are denied chances to understand it because there is no guaranteed proactive sharing of knowledge ]
[the impact on peoples quality of life Can Not be overstated ]
#disability #disabilityUK
#duchenne #musculardystrophy #dmd #disability #disabilityuk
The Doctor will see you now...
🦷 @RealBrittBaker #DMD 🦷
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#AEW #AEWDynamite #AEWRampage #AEWArt #ProWrestling #BrushPen #InkDrawing
#inkdrawing #brushpen #prowrestling #aewart #AEWRampage #aewdynamite #aew #dmd
The Doctor will see you now...
🦷 @RealBrittBaker #DMD 🦷
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#AEW #AEWDynamite #AEWRampage #AEWArt #ProWrestling #BrushPen #InkDrawing
#inkdrawing #brushpen #prowrestling #aewart #AEWRampage #aewdynamite #aew #dmd
New haircut and shorter beard.
#sheffield #hair #haircut #beard #disability #dmd #disabled #bipap
#bipap #disabled #dmd #disability #beard #haircut #hair #sheffield
#LliureDirecte #Ara parlem amb Maria José Alemany presidenta de #DMD País Valencià aprofitant la sentència absolutoria d'Ángel Hernández a LLIURE DIRECTE http://lliuredirecte.info - RÀDIO KLARA 104.4FM #València http://www.radioklara.org
#lliuredirecte #ara #dmd #valència
#LliureDirecte #Hui repàs als mitjans, la vostra #participació, espai @PerlaVidaPV, #DMD sobre absolució d'Ángel Hernández, @CIEsNO reobertura #CIE de Zapadores i KLARAMENTE a LLIURE DIRECTE http://lliuredirecte.info - RÀDIO KLARA 104.4FM #València http://www.radioklara.org
#lliuredirecte #hui #participació #dmd #cie #valència
#LliureDirecte #Ara parlem amb María José Alemany companya de #DMD #València sobre la llei d'eutanàsia a LLIURE DIRECTE http://lliuredirecte.info - RÀDIO KLARA 104.4FM #València http://www.radioklara.org
#lliuredirecte #ara #dmd #valència
Les ‘condemnes’ contra el primer metge que va practicar l’eutanàsia https://directa.cat/les-condemnes-contra-el-primer-metge-que-va-practicar-leutanasia/ #dretamorirdignament #MarcosHourmann #eutanàsia #medicina #AFons #DMD
#DretAMorirDIgnament #MarcosHourmann #eutanàsia #medicina #afons #dmd
Desterrar la mort indigna https://directa.cat/desterrar-la-mort-indigna/ #dretamorirdignament #suïcidiassistit #eutanàsia #AFons #DMD
#DretAMorirDIgnament #suïcidiassistit #eutanàsia #afons #dmd