Reminder to my #pots #dysautnomia peeps, stay on top of your electrolytes! It’s already in the 80s here in the south east US!

I would like to kvetch mildly that only I could get completely chilled in a 74F dry house. Dysautonomia is a pain in my everything.

#EhlersDanlos #EDS #ChronicIllness #dysautnomia

Detecting #OrthostaticIntolerance in #LongCOVID in a Clinic Setting

“This…study found evidence of OI patients with LC, with impact on daily functioning. The [Nasa Lean Test] can be used to detect OI in a clinic setting. We would recommend using this test for all patients with LC & not just patients with classical OI symptoms, due to the high prevalence of OI in LC”

https://www.mdpi.com/1660-4601/20/10/5804

@longcovid #PostCovid #PostCovid19 #dysautnomia #pots @pots

I'm disappointed but not surprised to find #NHS #Scotland has a page of official advice for #LongCovid sufferers experiencing #anxiety which lists their 4 most rational concerns — reinfection, recovery, finances, & worry for others — & then recommends managing this through relaxation techniques & resuming activities like shopping. It doesn't advise prophylactic measures & can't recommend referral to LC or #dysautnomia specialists or clinics because Scotland has none https://www.nhsinform.scot/long-term-effects-of-covid-19-long-covid/signs-and-symptoms/long-covid-anxiety/

Todays the day… tilt table test. Had to track down dry ice for the blood samples. Dry ice is weird. Hate that it feels like so much is riding on this test. Chronic illness patients now the weirdness of wishing for an abnormal test result. Sigh. #dysautnomia #spoonieLife #lookingForAnswers

I would never say that nerve conduction testing is the worst thing I’ve ever experienced. It’s not even close. But my dominant arm is definitely out of commission for anything nor an absolute requirement the rest of the day. OUCH. #dysautnomia #spoonieLife #thisSucks #dontWanna

Had a dream yesterday previous to my tilt table test to see about my orthostatic intolerance. In my dream, I ended up in convulsions where I couldn't talk.

Guess what? #Dreams come true!
Found out I'm not a #pots person. My blood pressure & heart rate went up & up & then the convulsions started for the next few hours

#NEISvoid #Dysautnomia friends I need advice!

#ChronicIllness