Sara Lobkovich · @saralobkovich
698 followers · 715 posts · Server thinkydoers.social

We have some excellent GF beer here in the PNW but no GF + non-alcoholic. There are only a handful of brewed without gluten (not gluten-removed) non-alcoholic beers ✨globally✨.

I sprung for a shipment of Go Brewing’s (Naperville, IL) Freedom Cali Pale and absolutely love it. Hoppy, malty (without barley), fresh and refreshing. Brewed w/o gluten, & they mitigate cross-contamination risk using a gluten-removing enzyme. So rad.

#LongCovid #dysautomnia #sober #nonalcoholic #celiac #glutenfree

Last updated 1 year ago

The AntiChick · @theantichick
77 followers · 73 posts · Server disabled.social

Well, I have confirmation that I am hyper mobile. And a referral to an allergist/immunologist who knows about MCAS (mast cell activation syndrome) which is suspected. My self reported vitals imply POTS but an actual tilt table is needed. (To be scheduled). Doc has had bad luck with my insurance (through the hospital system I work for) but I will pay out of pocket and fight for reimbursement if I have to.

#dysautomnia #spoonielife #hypermobility

Last updated 2 years ago

The AntiChick · @theantichick
77 followers · 73 posts · Server disabled.social

That is the most thorough medical history I’ve ever had taken. Hopeful for this appointment. Glad they warned me it would be a long one. (Med student took the history, still waiting to see the doc)

#dysautomnia #spoonielife

Last updated 2 years ago

Nyx Witch · @NyxWitch
82 followers · 165 posts · Server mastodon.lol

I'm hitting my isolation limit though, so getting by on cognitive dissonance and sometimes asking people to test before hanging out. But often end up taking more risk than I'd like if I actually thought about the specifics. It's-Not great.

I worry that I'm at high risk of long covid that would cause dysautonomia in ways that would make my day to day much harder and me possibly more disabled. But of course the data isn't in yet.

#COVID19 #dysautomnia #disability

Last updated 2 years ago

Anna · @halcionandon
355 followers · 318 posts · Server aus.social

So hot. Makes so much worse. I covet all with air conditioning.

#pots #dysautomnia

Last updated 2 years ago

Wonderdog · @Wonderdog
247 followers · 817 posts · Server aus.social

I had a fasting blood test this morning.

Did not see my preferred phlebotomists. Will not make that mistake again.

Because I have dysautomnia, POTS, and I’m generally a fainter and not a morning person anyway, fasting blood tests are not fun. This one was made much worse when the phlebotomist decided that my pallor was caused by my N95 mask and tried to remove it!
“You don’t need that, dear, I have mine on.”

I am very tired of this attitude.

#pots #dysautomnia #COVID19 #COVIDisAirborne

Last updated 2 years ago