dystobot · @dystobot
5 followers · 5145 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @RZTherapy: Robert F. Kennedy Jr.'s Rare Voice Disorder. Kennedy suffers from "spasmodic dysphonia", an involuntary movement disorder that affects the voice box and can cause loss of one's voice t.co/MBSDx08pjB

#dysphonia #spasmodicdysphonia #voicedisorders #SLP #speechtherapy

Last updated 1 year ago

evanskelly · @evanskelly
58 followers · 83 posts · Server lounge.town

More sensory stuff:

Shirts want to kill me, I can feel every seam. Random smells, ie trying to cook dinner and the plant nearby smells like I jammed my head in a bag of potting soil. High piano notes are like a tin can banging against my head. The water from the shower feels like needles hitting my legs. Trying to talk on the phone disorients, making my face, arms, and soles of my feet tingle. Just lots of super fun. ,

#dysphonia #fnd

Last updated 1 year ago

evanskelly · @evanskelly
57 followers · 78 posts · Server lounge.town

The kids and I had a great time at the show. I bought a shirt from the opening act. It has that unreadable metal font, a skeleton, some atomic explosions; everything you need in a rock tee. The band member who sold it to me was very kind & understanding with my . Unfortunately, touching the shirt I knew instantly it was going to be too uncomfortable due to my issues. I'm wearing it now and the neck is making me insane. Going to cut the neck and sleeves out, for "aesthetics".

#dysphonia #sensory

Last updated 1 year ago

dystobot · @dystobot
5 followers · 4669 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @sjpetherbridge: Robert F Kennedy Jr who announced his campaign for suffers from a voice disorder – also known as


t.co/x5AVE4eUzZ

#elections2024 #spasmodicdysphonia #laryngealdystonia #dystonia #dysphonia

Last updated 1 year ago

evanskelly · @evanskelly
54 followers · 72 posts · Server lounge.town

I did go out last night. The meetup turned out to be an actual party, and although I still arrived late, it was far too early and only two people were there. I awkwardly tried to make conversation, but they weren't so receptive. I'm assuming good intentions, that since they are film fans, they are also socially awkward, so it's fine, but I left early and cringed all night afterwards wishing I had just stayed home.

,

#dysphonia #socialanxiety

Last updated 1 year ago

evanskelly · @evanskelly
54 followers · 68 posts · Server lounge.town

Might stop in at my old workplace tonight for a film fest meetup, but I don't know. Being in public is hard when speaking is difficult. So many people that'll need an explanation for my disorder. I don't want to isolate myself, but staying home is just so damn easy.

,

#dysphonia #socialanxiety

Last updated 1 year ago

dystobot · @dystobot
6 followers · 4091 posts · Server med-mastodon.com
dystobot · @dystobot
5 followers · 3240 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @Virgiaj: am suffering from Spasmodic for the past 6 years.
A person with experience
loss of speech.There is no cure.
I suffer 7-12 days pm from
At the moment, I am speechless again
please

#dysphonia #prayers #dysphoniainternational

Last updated 1 year ago

dystobot · @dystobot
5 followers · 3232 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @Virgiaj: I am suffering from Spasmodic for the past 6 years.

A person with experience
loss of speech.There is no cure.

I suffer 7-12 days pm from

At the moment, I am speechless, after being without a voice for 8 days, just 1 week ago
please

#dysphonia #prayers

Last updated 1 year ago

dystobot · @dystobot
5 followers · 2173 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @AusDystoniaSG: Use of Botulinum Toxin in Spasmodic : A Review of Recent Studies
t.co/qt2txhAehK

#dysphonia #dystonia

Last updated 2 years ago

dystobot · @dystobot
5 followers · 1586 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @don1372: Thank you to my friends, family, and amazing coworkers for all the support and patience you’ve shown me during this time.

#spasmodicdysphonia #voicedisorder #voicedisorders #dysphonia #sd #laryngeal #dystonia #laryngealdystonia #spasmodic

Last updated 2 years ago

Stabford Deathrage · @stabforddeathrage
131 followers · 250 posts · Server mastodon.lol

@AmbularD I have Spasmodic , so it's difficult to speak. I fight all day with Alexa, who either can't hear me or understand me.

#dysphonia

Last updated 2 years ago

Stabford Deathrage · @stabforddeathrage
131 followers · 250 posts · Server mastodon.lol

After months of being in limbo, it looks as though I'll actually be transferred into another department at work. My boss said, "We'll miss your, um, interesting sense of humor". I'm still unsure how to process that, exactly. Until recently, I would have taken this in stride. To quote Elliott Smith, I'm not uncomfortable feeling . But now that I'm unable to speak due to my , it bothers me. A lot, actually.

#dysphonia #weird

Last updated 2 years ago

Stabford Deathrage · @stabforddeathrage
131 followers · 250 posts · Server mastodon.lol

@maries_cake @Mrfunkedude I have , and when I can speak, it's often at a whisper. Alexa and I argue quite a bit because she can rarely hear or understand me. I imagine she's mocking me when she responds in a whisper.

#dysphonia

Last updated 2 years ago

dystobot · @dystobot
2 followers · 112 posts · Server med-mastodon.com

[Automatic repost from the bird twitter.com/dystobot/status/16]

RT @vocalscience: Spasmodic dysphonia (or laryngeal dystonia) is a voice disorder characterized by involuntary movements of one or more muscles of the larynx (vocal folds in the voice box) during speech.

t.co/ArEqOzCdHj
t.co/V1wDAIf3ey

#spasmodicdysphonia #vocalhealth #vocalscience #dysphonia

Last updated 2 years ago

Stabford Deathrage · @stabforddeathrage
40 followers · 87 posts · Server mastodon.lol

I want to post more, I'm just having difficulty finding words, not just physically but mentally too.

, ,

#dysphonia #winter #anxiety

Last updated 2 years ago

Stabford Deathrage · @stabforddeathrage
131 followers · 250 posts · Server mastodon.lol

I want to post more, I'm just having difficulty finding words, not just physically but mentally too.

, ,

#dysphonia #winter #anxiety

Last updated 2 years ago

Stabford Deathrage · @stabforddeathrage
131 followers · 250 posts · Server mastodon.lol
Lorna Gamberini · @LornaGamberini
0 followers · 1 posts · Server mastodon.scot
Stabford Deathrage · @stabforddeathrage
24 followers · 59 posts · Server mastodon.lol