[Automatic repost https://twitter.com/dystobot/status/1648310550797877249]
RT @RZTherapy: Robert F. Kennedy Jr.'s Rare Voice Disorder. Kennedy suffers from "spasmodic dysphonia", an involuntary movement disorder that affects the voice box and can cause loss of one's voice #dysphonia #spasmodicdysphonia #voicedisorders #SLP #Speechtherapy https://t.co/MBSDx08pjB
#dysphonia #spasmodicdysphonia #voicedisorders #SLP #speechtherapy
More sensory stuff:
Shirts want to kill me, I can feel every seam. Random smells, ie trying to cook dinner and the plant nearby smells like I jammed my head in a bag of potting soil. High piano notes are like a tin can banging against my head. The water from the shower feels like needles hitting my legs. Trying to talk on the phone disorients, making my face, arms, and soles of my feet tingle. Just lots of super fun. #dysphonia, #fnd
The kids and I had a great time at the show. I bought a shirt from the opening act. It has that unreadable metal font, a skeleton, some atomic explosions; everything you need in a rock tee. The band member who sold it to me was very kind & understanding with my #dysphonia. Unfortunately, touching the shirt I knew instantly it was going to be too uncomfortable due to my #sensory issues. I'm wearing it now and the neck is making me insane. Going to cut the neck and sleeves out, for "aesthetics".
[Automatic repost https://twitter.com/dystobot/status/1644374525553803268]
RT @sjpetherbridge: Robert F Kennedy Jr who announced his campaign for #elections2024 suffers from a voice disorder – #spasmodicdysphonia also known as #laryngealdystonia
#elections2024 #spasmodicdysphonia #laryngealdystonia #dystonia #dysphonia
I did go out last night. The meetup turned out to be an actual party, and although I still arrived late, it was far too early and only two people were there. I awkwardly tried to make conversation, but they weren't so receptive. I'm assuming good intentions, that since they are film fans, they are also socially awkward, so it's fine, but I left early and cringed all night afterwards wishing I had just stayed home.
Might stop in at my old workplace tonight for a film fest meetup, but I don't know. Being in public is hard when speaking is difficult. So many people that'll need an explanation for my disorder. I don't want to isolate myself, but staying home is just so damn easy.
[Automatic repost https://twitter.com/dystobot/status/1638951297335578624]
RT @lacroix_becky: #ataxia #dysphonia #dystonia #naf #RareDisease #ataxiaandme #naf https://t.co/eXdQjLD9xq
#ataxia #dysphonia #dystonia #naf #RareDisease #ataxiaandme
[Automatic repost https://twitter.com/dystobot/status/1631402828114587648]
RT @Virgiaj: am suffering from Spasmodic #Dysphonia for the past 6 years.
A person with #Dysphonia experience
loss of speech.There is no cure.
I suffer 7-12 days pm from #Dysphonia
At the moment, I am speechless again
#prayers please
#DysphoniaInternational
#Dysphonia
#dysphonia #prayers #dysphoniainternational
[Automatic repost https://twitter.com/dystobot/status/1631365072957104139]
RT @Virgiaj: I am suffering from Spasmodic #Dysphonia for the past 6 years.
A person with #Dysphonia experience
loss of speech.There is no cure.
I suffer 7-12 days pm from #Dysphonia
At the moment, I am speechless, after being without a voice for 8 days, just 1 week ago
#prayers please
[Automatic repost https://twitter.com/dystobot/status/1622134213959876610]
RT @AusDystoniaSG: Use of Botulinum Toxin in Spasmodic #Dysphonia: A Review of Recent Studies #Dystonia
https://t.co/qt2txhAehK
[Automatic repost https://twitter.com/dystobot/status/1617221845220048897]
RT @don1372: Thank you to my friends, family, and amazing coworkers for all the support and patience you’ve shown me during this time.
#spasmodicdysphonia #voicedisorder #voicedisorders #dysphonia #SD #laryngeal #dystonia #laryngealdystonia #spasmodic #dysphonia
#spasmodicdysphonia #voicedisorder #voicedisorders #dysphonia #sd #laryngeal #dystonia #laryngealdystonia #spasmodic
@AmbularD I have Spasmodic #Dysphonia, so it's difficult to speak. I fight all day with Alexa, who either can't hear me or understand me.
After months of being in limbo, it looks as though I'll actually be transferred into another department at work. My boss said, "We'll miss your, um, interesting sense of humor". I'm still unsure how to process that, exactly. Until recently, I would have taken this in stride. To quote Elliott Smith, I'm not uncomfortable feeling #weird. But now that I'm unable to speak due to my #dysphonia, it bothers me. A lot, actually.
@maries_cake @Mrfunkedude I have #dysphonia, and when I can speak, it's often at a whisper. Alexa and I argue quite a bit because she can rarely hear or understand me. I imagine she's mocking me when she responds in a whisper.
[Automatic repost from the bird https://twitter.com/dystobot/status/1604888087703830529]
RT @vocalscience: Spasmodic dysphonia (or laryngeal dystonia) is a voice disorder characterized by involuntary movements of one or more muscles of the larynx (vocal folds in the voice box) during speech.
https://t.co/ArEqOzCdHj
#SpasmodicDysphonia #VocalHealth #VocalScience #Dysphonia https://t.co/V1wDAIf3ey
#spasmodicdysphonia #vocalhealth #vocalscience #dysphonia
I want to post more, I'm just having difficulty finding words, not just physically but mentally too.
I want to post more, I'm just having difficulty finding words, not just physically but mentally too.
#comicbooks (Golden Age, Shazam, Justice Society)
#goth
#badmovies
#80smusic (ha, that's just a start)
#classicfilm
#outsiderart
#weird
#dysphonia
#randomthingstoknowme #comicbooks #goth #badmovies #80smusic #classicfilm #outsiderart #weird #dysphonia
Hello! Not at all sure how this works yet, but hoping to link in with people with interests in #SLT #ENT #SpeechAndLanguageTherapy #Voice #Dysphonia #Dysphagia #LongCovid #ILO #UpperAirway (and away from work #TrailRunning #LakeDistrict #DumfriesAndGalloway )
#DumfriesAndGalloway #lakedistrict #trailrunning #upperairway #ilo #LongCovid #dysphagia #dysphonia #voice #speechandlanguagetherapy #ent #slt
A blatant re-promote of a recent blogpost about #Halloween, #oreos, #grapes, #FunfettiFrosting, and #dysphonia.
https://stabforddeathrage.blogspot.com/2022/10/im-just-not-in-holiday-spirit.html
#halloween #oreos #grapes #FunfettiFrosting #dysphonia