Emily Johnson · @emily_rj
778 followers · 857 posts · Server disabled.social

My best guess is hypogenic paroxysmal dystonic seizures: happens during NREM, have normal EEG, features night terrors — all present in my case

It makes sense that’s it’s an extension of my , not just neurospinal and neuroimmune damage — still scary 2/4

#dystonia #medstadon

Last updated 1 year ago

Arto · @artomelaranta
433 followers · 2933 posts · Server mastodontti.fi

Henkilökohtainen avustaja olikin no-show. Enkä nyt pääse itteni kanssa yhteisymmärrykseen oliko se hyvä vai huono.

#kipukroonikonelamaa #dystonia #neurologia #kipu #terveys

Last updated 1 year ago

Focal hand to add to the list. I guess I got the ?! That explains why the EMG showed no carpal tunnel.

#dystonia #yips

Last updated 1 year ago

Arto · @artomelaranta
451 followers · 2654 posts · Server mastodontti.fi

V*tutusviikot

Plus neurologin määräämä oxy vain kahdeksi kuukaudeksi aiemman vuoden sijaan

arkipaivainen.wordpress.com/20

#kipukroonikonelamaa #kipu #dystonia #terveys

Last updated 1 year ago

Phys.org · @physorg_bot
486 followers · 14059 posts · Server social.platypush.tech
Arto · @artomelaranta
443 followers · 2547 posts · Server mastodontti.fi
Arto · @artomelaranta
444 followers · 2542 posts · Server mastodontti.fi

Jos taju lähtee ja joudutte ensiapuun niin pitäkää tajunnan menetys omana tietona. Napsahtaa kolmen kuukauden ajokielto niin ettei ehdi päivää sanoa...

#vittukunvituttaa #kipukroonikonelamaa #kipu #dystonia #neurologia #terveys

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7394 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @FrontPartners: 📣If you're attending @dmrf and @dystoniaeurope 6th annual symposium next week, check out Dysonia, the official @frontpartners DMRF journal and a growing resource for .

Visit us at t.co/5GF7k4db1W to learn more! t.co/7RDyi1ludi

#dystonia #openaccess #dystoniaresearch

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7382 posts · Server med-mastodon.com
dystobot · @dystobot
5 followers · 7371 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ST_Dystonia: This reminds me of Howard’s Mantra, “I’m Alive, I’m Awake and I feel great!” t.co/ObrjJL59X3

#dystonia #dystoniaawareness #dystoniacureneeded #stdystonia

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7360 posts · Server med-mastodon.com
dystobot · @dystobot
5 followers · 7359 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

[ VIDEO ]

t.co/viFpNd5M2u

A case of “Cervical dystonia “

#dystonia

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7357 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @HeartBravoFl: So new thing over the last year is my face pulls my jaw over to one side and my jaw has been dislocated, it pops, and can last minutes. People can hear my jaw popping when it happens! Yes, it hurts. etc t.co/XY4j8RMWT5

#dystonia #chronicpain #neisvoid #chronicillmess #brainneuroma #tn #gp #mcas

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7342 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

[ VIDEO ]

t.co/pBrT1b60Vw

Shining a light on dystonia - a condition that affects both the body and the mind.

#dystonia

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7337 posts · Server med-mastodon.com
dystobot · @dystobot
5 followers · 7335 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ST_Dystonia: Some days you will be the light for others and some days you will need some light from them. As long as there is light, there is hope. t.co/03A4UFQadc

#dystonia #dystoniaawareness #dystoniacureneeded #stdystonia

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7329 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @SugarlipsN: Tired af definitely having a glass of wine soon. My Dystonia had me spasming in three different spots on my body until 5:30am hoping for a somewhat peaceful sleep tonight.

#dystonia #tired #wine #need #peaceful #sleep

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7327 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @HeartBravoFl: I explained I was not able to do that. She told me well she needed to scan the fern. No offer to get someone to help me. My daughter was with me but she can not carry the fern. She has her own cont. 2

#invisbleillness #ehlersdanlos #dystonia

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7312 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

[ VIDEO ]

t.co/40zrp00rih

DYSTONIA PARKINSONISM JOHNSON DRIVER HAVE YOU MET ONE? WELL THAT'S ME ~Mobile Legends: Bang Bang

#dystonia

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7306 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @TheBrainCharity: Parents/guardians of children with - help researchers understand your experiences of support with the survey below 👇 t.co/nKrCTT7Fry

#dystonia

Last updated 1 year ago