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Neferure · @Neferure
494 followers · 1233 posts · Server eldritch.cafe

What is your best pain relief hack apart from taking prescribed medication? Let's share some good ideas.

Remember we are all individuals: what works for you, will not work for everyone. However, I think we have all probably tried a myriad of things over the years and therefore have expertise in this area.

#eds #flexiblelife #ehlersdanlossyndome #edschat #hypermobility #connectivetissuedisorder #HSD #ehlersdanloslife #bendy #ehlersdanlos

Last updated 2 years ago
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Neferure · @Neferure
396 followers · 1171 posts · Server eldritch.cafe
STAT - Revenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromes

#sciencemastodon #MedMastodon #medicine #genetics #medicalnegligence #science #ehlersdanlossyndrome #eds #HMS #HSD #hypermobility #ehlersdanloslife #research #edschat #mastomedics #MastoMed #mastoscience #healthcareprofessionals

Last updated 2 years ago
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Neferure · @Neferure
368 followers · 1036 posts · Server eldritch.cafe

I want to reconnect with my community. So, let's start with a chat.

What's the most original way you have managed to injure yourself?

Also welcome to comment are Marfans Syndrome, Hypermobility Syndrome, or any other connective tissue disorder people.

#ehlersdanlossyndrome #ehlersdanlos #eds #hyperlaxite #hypermobility #hypermobilitat #hiperlaxitud #edschat #chronicpain #chronicillness #pots #mcas #chronicfatigue #HMS #edslife #disability #neisvoid #disabledresilience #ehlersdanloslife #エーラースダンロス症候群 #veds #תסמונותאהלרסדנלוס #flexibilidad #bendy #wobbly #flexibility #connectivetissuedisorder #marfanssyndrome

Last updated 2 years ago
Original post