Craftalytical · @Craftalytical
2 followers · 8 posts · Server mastodon.social
Being honest about bad days, sending supportive vibes to those who live with #chronicillness and #educatepeople who don't.
Join me as I discuss these things, like, subscribe and comment - share your thoughts and help my channel grow!
#eds #ehlersdanlossyndrome #ehlersdanloslife #chronicfatiguesyndrome #fibromyalgia #reallife #mentalhealth #physicalhealth
#chronicillness #educatepeople #eds #ehlersdanlossyndrome #ehlersdanloslife #chronicfatiguesyndrome #fibromyalgia #reallife #mentalhealth #physicalhealth
Sam :flag_nonbinary: · @Skreee
497 followers · 1873 posts · Server eldritch.cafe#EDS ist wenn du dir im Stehen einen Muskel im Bein zerrst. 🙄
#EhlersDanlosLife #EhlersDanlosSyndrome #heds
#eds #ehlersdanloslife #ehlersdanlossyndrome #heds
Sam :flag_nonbinary: · @Skreee
489 followers · 1813 posts · Server eldritch.cafeFeuerholz holen und dann erstmal meine Rippen wieder einrenken. 🙄 Aber irgendwie auch befriedigend, dass ich jetzt damit umgehen kann.
#EDS #EhlersDanlosLife #EhlersDanlosSyndrome
#eds #ehlersdanloslife #ehlersdanlossyndrome
Neferure · @Neferure
563 followers · 1744 posts · Server eldritch.cafeNot enjoying the side effects of stopping taking a medication that screams DO NOT STOP TAKING THIS WITHOUT CONSULTING YOUR GP on the box because the pharmacy decided it could wait until they have the other medication I take, which they don't have (but at the moment I do).
I wanted to have a nice day reading a book and relaxing, but instead I have hideous nerve pain, dizziness, brain zaps and cognitive problems which made grappling with pharmacy-based nonsense take longer. Who decided holding medication back was a good idea?
#withdrawal #ehlersdanloslife #eds #chronicpain
Sam :flag_nonbinary: · @Skreee
483 followers · 1665 posts · Server eldritch.cafeWenn mein Ellbogen sich dann langsam wieder beruhigen könnte, das wäre grossartig, danke. 🙄
#EhlersDanlosLife
Neferure · @Neferure
557 followers · 1650 posts · Server eldritch.cafeThe festivities have caught up with me - the hips, the back, the shoulders, the annoying pressure sore that refuses to go, the fatigue, the gastric problems and the weird sciatica kind of pain have all hit me today like a train. However, I have cats to cuddle so hurrah! :blob_pensive:
#ehlersdanloslife #ehlersdanlossyndrome #cats
Neferure · @Neferure
502 followers · 1256 posts · Server eldritch.cafeSorry, not posting much Ukrainian stuff today because my WiFi has been so intermittent for the last 24 hours and telegram is very data greedy.
I've also having EDS-based arm trouble on my phone tapping side.
I have had 4 naps, which is why I'm now awake.
I was also hungover earlier, which may also explain the arm problem and the 4 naps.
#ehlersdanloslife #ukraine #eds
Neferure · @Neferure
494 followers · 1233 posts · Server eldritch.cafeWhat is your best pain relief hack apart from taking prescribed medication? Let's share some good ideas. #EDS #FlexibleLife #EhlersDanlosSyndome #EDSchat #Hypermobility #ConnectiveTissueDisorder #HSD #EhlersDanlosLife #Bendy #EhlersDanlos
Remember we are all individuals: what works for you, will not work for everyone. However, I think we have all probably tried a myriad of things over the years and therefore have expertise in this area.
#eds #flexiblelife #ehlersdanlossyndome #edschat #hypermobility #connectivetissuedisorder #HSD #ehlersdanloslife #bendy #ehlersdanlos
Neferure · @Neferure
396 followers · 1171 posts · Server eldritch.cafe
Revenge of the gaslit patients: Now they’re Ehlers-Danlos scientists
https://www.statnews.com/2022/12/12/ehlers-danlos-syndrome-patients-turned-researchers/ #scienceMastodon #MedMastodon #medicine #Genetics #MedicalNegligence #Science #EhlersDanlosSyndrome #EDS #HMS #HSD #Hypermobility #EhlersDanlosLife #Research #EDSChat #MastoMedics #MastoMed #MastoScience #HealthcareProfessionals
#sciencemastodon #MedMastodon #medicine #genetics #medicalnegligence #science #ehlersdanlossyndrome #eds #HMS #HSD #hypermobility #ehlersdanloslife #research #edschat #mastomedics #MastoMed #mastoscience #healthcareprofessionals
Neferure · @Neferure
368 followers · 1036 posts · Server eldritch.cafeI want to reconnect with my #EhlersDanlosSyndrome community. So, let's start with a chat.
What's the most original way you have managed to injure yourself?
#EhlersDanlos #EDS #hyperlaxité #Hypermobility #Hypermobilität #hiperlaxitud #EDSChat #ChronicPain #ChronicIllness #POTs #MCAS #ChronicFatigue #HMS #EDSLife #EDS #Disability #NEISVoid #DisabledResilience #EhlersDanlosLife #エーラースダンロス症候群 #VEDS #תסמונותאהלרסדנלוס #flexibilidad #Bendy #Wobbly #flexibility #ConnectiveTissueDisorder #MarfansSyndrome
Also welcome to comment are Marfans Syndrome, Hypermobility Syndrome, or any other connective tissue disorder people.
#ehlersdanlossyndrome #ehlersdanlos #eds #hyperlaxite #hypermobility #hypermobilitat #hiperlaxitud #edschat #chronicpain #chronicillness #pots #mcas #chronicfatigue #HMS #edslife #disability #neisvoid #disabledresilience #ehlersdanloslife #エーラースダンロス症候群 #veds #תסמונותאהלרסדנלוס #flexibilidad #bendy #wobbly #flexibility #connectivetissuedisorder #marfanssyndrome