#FindingTheRightWords turns 2 today. Here I am w/my co-author #Dr.BruceMiller, a #doctor whose #empathy, #knowledge, and #generosity knows no bounds. That my father died of #early-onset #Alzheimer's couldn't be changed, but writing the #memoir w/ Bruce changed me, helping to put that experience of profound fragmentation (my father's; mine) into something a little more whole. W/so much gratitude to Bruce and the many #neurologists working to #EndAlz always and esp. during #worldalzheimersmonth

It's the last day to get 30% off on #books published #JohnsHopkinsUniversityPress. Use the discount code HLAB23. And orders over $50 are free. My #memoir, written with #neurologist Dr. Bruce Miller, is included. Here's a link to the book website . https://weinsteinandmiller

#EndAlz

"More than 6 million people in the United States have Alzheimer’s, and about two-thirds of them are women." https://www.washingtonpost.com/wellness/2023/08/09/male-caregivers-alzheimers-challenges-tips/ (gifted)
To those #politicians who voted against providing assistance to #caregivers in the #Biden legislation that would have helped those caring for loved ones with #dementia and other #illness, read this and confront what your lack of #empathy means. #EndAlz

@cobalt @caregivers. I am so sorry. Sending strength and all the good thoughts I can muster. #EndAlz

It's hard to believe that the #memoir I wrote with #neurologist Dr. Bruce Miller turns 2 next month. In the hopes of sharing our experience and knowledge, we have been doing outreach at #ADRCs (Alzheimer's Disease Research Centers), podcasts (#Nocturnists, #Dementia Matters, et al), and presentations at #senior residences. Shortly after the book came out, #JohnsHopkinsUniversityPress invited us to talk about why we wrote the book. Here's what we said: https://www.press.jhu.edu/newsroom/finding-right-words-story-literature-grief-and-brain

#EndAlz

@CStamp @abejaclaustro. You are very welcome! #EndAlz

@StillIRise1963. Also, many #modifiableriskfactors that are at play in this horrible statistic: #airpollution, #socioeconomics, access to #education. #EndAlz

@abejaclaustro @CStamp. This doesn't answer your question but I thought you might find this brief clip interesting. It's about the work on #dementia being done in #Africa by people participating in the #GBHI program. https://www.youtube.com/watch?v=xBTiCaXAdJU
Also, there is amazing work being done on #dementia in #LatinAmerican countries. The organization is called #BrainLat, and here's the link to the website. https://brainlat.uai.cl/
#EndAlz

Dear reader, how sorry I am about your father's sudden death. Devastating. I'm glad, though, that despite our very different experiences of a beloved father's death, #FindingtheRightWords spoke to you. #EndAlz, #NarrativeMedicine, #neurology, #dementia, #grief.

It's #WorldBrainDay. Thanks to all of the #neurologists, #psychiatrists, #gerontologists, #nurses and many others for taking care of our #brains and teaching us how do to so. A special and personal #EndAlz to those whose brains are having difficulties.

@garry. Age-related #hearing loss is a #modifiableriskfactor for #dementia. It is so good to see the data backing up this fact and so important that #Biden made #OTD #hearingaids available (and more affordable). #EndAlz

@arstechnica. #EndAlz

https://www.washingtonpost.com/health/2023/07/06/alzheimers-drug-leqembi-fda-approval/

Daniel Gibbs, (a #neurologist with #Alzheimer's), writes about experiencing a #brain bleed (called #ARIA) in his excellent book, #ATattooOnMyBrain.

#EndAlz

https://www.salon.com/2023/07/06/new-study-shows-a-link-between-insecurity-and-cognitive-decline-in-older-adults/

Another study that supports a link between #socioeconomic status and #dementia.

#ModifiableRiskFactor
#EndAlz

This isn't a new intro but I picked up some new followers in the recent exodus & wanted to share a book I wrote with #neurologist #Dr.BruceMiller: Finding the Right Words: A Story of Literature, Grief, and the Brain. It's about my beloved dad's early-onset Alzheimer's. #JohnsHopkinsUniversityPress published it & they are currently have an amazing sale. 40% til July 7th w/discount code H4JUL23 & free shipping on orders $50 or more. Here's the book website. https://weinsteinandmiller.com
#EndAlz

@CindyWeinstein @abejaclaustro @nathanlovestrees @cobalt Agree #EndAlz but also #EndDementia

My grandmother on my mom's side had Alz....but my dad has FTD according to his neurologist. Sometimes forgets who I am to him, but has always known my name. Worst of it was when he said I wasn't HIS <my name>, but that only happened once. Sometimes get called his brother or cousin, but always knows my name.

@abejaclaustro @Masterofsorrow @cobalt @Sedunker @qurlyjoe @Sfwmson @dbaplanb @vigour_mortis @nathanlovestrees @thundergod97. The magnitude of everyone's suffering is enormous. I will never get over the horror of my father's death, and my heart goes out to those whose lives have been upended by this cruel, cruel disease. #EndAlz

@abejaclaustro @nathanlovestrees @cobalt @qurlyjoe @dbaplanb @Masterofsorrow @Sedunker @thundergod97 @Sfwmson @vigour_mortis. I'm honored that you included me in this list but didn't want to give anyone the wrong idea. You are all the heroes. #EndAlz

@abejaclaustro @thundergod97 @cobalt @nathanlovestrees @Sedunker @qurlyjoe @dbaplanb @Sfwmson @Masterofsorrow @vigour_mortis. Thank you for this acknowledgment, @abejaclaustro but I am not a caregiver. I do think about caregiving a lot and reach out to caregivers, knowing how challenging the experience can be. My mother was my father's primary caregiver. He had #early-onset #Alzheimer's decades ago. #EndAlz

Yes, today is the last day of #Alzheimer'sAndBrainAwarenessMonth, but you are in my thoughts, Dad, all the days. Love you always. #EndAlz.