I have #endometriosis and #CFS Every day is a struggle with pain and fatigue but it has helped me appreciate the little things in life
#EndoWarrior #spoonie #ChronicFatigueSyndrome #chronicpain

I designed this digital period tracker for Adenomyosis Awareness Month. You can have it free if you subscribe to my email list:

https://fussygeekwares.co.uk/free-period-tracker/

The link also includes a slower version of this video, for tips on how to use the tracker.

#adenomyosis #adenomyosisawarenessmonth #periodtracker #bulletjournal #bujo #journaling #EndoWarrior

I created this #angryuterus t-shirt using one of my pin designs, so I could help spread the word of #Endometriosis & #Adenomyosis

April is Adenomyosis Awareness Month, the lesser known sister illness to Endo.

Having an angry uterus is more than just difficult periods. It can be a debilitating illness and is definitely an invisible one.

#chronicpain #endometriosis #adenomyosis #chronicallyill #AdenoApril2023 #Adenowarrior #EndoWarrior #invisibleillness

So it’s endometriosis awareness month and I had forgotten how distressing that can be.

The media is full of other people’s stories of their experiences, often presented as “they suffered for years and then they got surgery” with the implication that everything was better after that. Which makes me go into the stupid chronic illness spiral of feeling like I haven’t done enough to “beat it” even though I know rationally (and have the agreement of all the expert professionals in my health management team) that it’s not true.

Friends and family also want to try to really understand my experience, which is great. But it means temporarily stepping out of my safe little bubble of living day by day to look at and talk about my future as a whole. Acknowledging that the physical pain and the associated physical and mental side effects are something I will most likely be dealing with every day for decades to come is devastating.

So yeah, endometriosis is a thing experienced by 1 in 9 people with a female reproductive system and it sucks.

#endometriosis #EndoWarrior #ChronicPain #ChronicIllness #Spoonie

I think the thing I hate second most about having chronic pain (the first is obviously the pain) is that it stops me communicating. My thoughts often feel so scrambled, and the effort to turn them into something coherent feels so big that it’s exhausting to even think about, much less do. So much of what I would once have said or written now just stays as messy, tangled thoughts in my head. #Endometriosis #EndoWarrior #Spoonie #ChronicPain #ChronicIllness

#EndometriosisActionMonth Today’s WTF: 80% of pain studies are conducted on male mice or human men but cca 70% of those who suffer from chronic pain are women #endometriosis #endowarrior #chronicillness #chronicpain #endowarrior #WomensHealth #EndometriosisAwarenessMonth

Day 2 #EndometriosisActionMonth
Second #illustration to all of us walking like all is good. Endo is very painful but worst - misunderstood by many (MDs, politicians, employers, friends and family) #endometriosis
#endowarrior
#LightUpYellow #WomensHealt #chronicillness

Day 1 endometriosis awareness month. This illustration to all amazing and incredibly strong #endowarriors. Let’s raise more than just awareness. It’s not just period pain #endometriosis #EndometriosisActionMonth #endowarrior #chronicillness #LightUpYellow #WomensHealth

Friday meme: This year, this is how I see my endometriosis #endometriosis #ChronicPain #chronicillness #endowarrior #endowarrior #mentalhealth #endometriosisawareness #womenshealt #Memes

Having some kind of routine with chronic illness is incredibly hard. You try to set up a schedule but your disease doesn’t care about it. Trying to guess how much energy you will have it’s like a new kind of fortune telling SO welcome to class of divination #endometriosis #endowarrior #chronicillness #chronicpain #schedule #digitalart #illustration

Meme Friday every time my endometriosis flares up I can count on these holy three symptoms. What are your most usual symptoms #endometriosis #endowarrior #ChronicPain #chronicillness #WomensHealth #Memes

My body has a messed up sense of humour. Yesterday I told my doctor I felt like I was managing the pain in a sustainable way. Today has been so horrific it’s almost unbelievable. Possibly one of my worst days ever. #Endometriosis #EndoWarrior #ChronicPain #Spoonie #ChronicIllness

Being in pain and having chronic fatigue feels like all color from life disappear. How do you see it and how do you deal with it? #endometriosis #endowarrior #endometriosisawareness #chronicpain #womenshealth #womenempowerment

Preparing for my next visit so I can be my best advocate -Do not underestimate the power of red blood cell evaluation in #endometriosis #WomensHealth #chronicillness #endowarrior http://sumo.ly/15oGY via
@newsforendo

Every endowarrior we are truly amazing (and everyone fighting chronic illness) we walk here like nothing hurts and everything is fine. I bow to you #endometriosis #chronicillness #ChronicPain #mentalhealth #MentalHealthMatters #endowarrior #digitalart

Like wow what endometriosis can't infiltrate #endometriosis #endowarrior #chronicillness #ChronicPain #WomensHealth #womenshealthmatters

Normally I write fiction, but I was so happy to have a piece of #creativenonfiction published last month about when I was diagnosed with #endometriosis and wanted to share it here.

#cnf #endowarrior

https://pleaseseeme.com/issue-12-diagnosis/nonfiction/lighter-psm-12-cnf-diane-gillette/

Seeing this makes me so angry. Is it because it's women's illness or why? Suffering every day and no answers or just some gaslighting -every woman has a painful period that's normal and so on. #endometriosis #WomensHealth #chronicillness #endowarrior

What I wish regarding endometriosis ? That you believed me when I said I'm in pain, I'm not well. Mainly don't tell me "you don’t look sick" to me. Please trust me I'm not making it up. #endometriosis #endowarrior #chronicillness #womenshealth

My pain is real and I am alone with it . #endometriosis #chronicillness #endowarrior #womenshealth