Lisa Quilty Hill · @Quilty
217 followers · 1302 posts · Server mastodon.nu

Look at the cost if my son's epilepsy med before applying Good RX.

Also, why I'll never vote Republican again.

#epilepsy #epilepsyawareness

Last updated 1 year ago

Lisa Quilty Hill · @Quilty
214 followers · 1277 posts · Server mastodon.nu

Well my boys no longer qualify for medicaid. I now get to figure out how to budget medications. Thankfully my boy with epilepsy can take generic medications. That will help, however, I shudder to think what ADHD meds will cost.

I think the worst part is that if the neurologist were to recommend another EEG, the cost becomes a huge Factor in our decision rather than whether it would be beneficial for our child.

#epilepsyawareness #healthreform

Last updated 1 year ago

Lisa Quilty Hill · @Quilty
214 followers · 1273 posts · Server mastodon.nu

Our healthcare system is so broke in the U.S. We spent the last 2 weeks waiting to see if these two were approved for Medicaid and they've been denied. The kicker is the last two weeks they've been uninsured. We run out of ADHD meds. And let's not forget that the wild hair teen has epilepsy.

#adhd #epilepsyawareness #heathcarereform

Last updated 1 year ago

Becky Whinnerah · @BeckyWhinnerah
141 followers · 421 posts · Server mstdn.social

Daughter just had a 30 minute focal seizure 😟 I fannied about not knowing if I should give emergency meds as she kept looking like she was going to come out. Epilepsy is such a shit confusing thing. Anyway, she's fine and sleeping it off.

I'm so awake now at horrible 2am

#epilepsyawareness #epilepsy

Last updated 1 year ago

Becky Whinnerah · @BeckyWhinnerah
143 followers · 439 posts · Server mstdn.social

Daughter just had a 30 minute focal seizure 😟 I fannied about not knowing if I should give emergency meds as she kept looking like she was going to come out. Epilepsy is such a shit confusing thing. Anyway, she's fine and sleeping it off.

I'm so awake now at horrible 2am

#epilepsyawareness #epilepsy

Last updated 1 year ago

Lisa Quilty Hill · @Quilty
207 followers · 1220 posts · Server mastodon.nu

First drive with his permit!

#epilepsyawareness #epilepsy

Last updated 1 year ago

Lisa Quilty Hill · @Quilty
207 followers · 1218 posts · Server mastodon.nu

My kid got his permit today. He is legal to drive with a parent. There are those that do not understand that people with epilepsy that can be controlled, can do things like driving. It's no different than any other condition that needs to be managed.

So proud of my boy!

#epilepsyawareness

Last updated 1 year ago

Somosdisca :vf: · @Somosdisca
30 followers · 227 posts · Server masto.es

Hola Titánicos, cada 24 de mayo se conmemora el día nacional de la epilepsia, recordándonos la importancia que tiene para esta enfermedad estar informado, conocer de primera mano cómo poder abordar esta patología o reaccionar ante una de .

somosdisca.es/dia-nacional-de-

#crisis #epilepsia #epilepsy #epilepsyawareness #epilepsiarefrataria #epilepsiaespana #epilepsie #discapacidad #somosdisca #crisisepileptica #gentetitanica #visibilidad #cuidados #prevencion #salud

Last updated 1 year ago

Anna Who? Doc! · @CityHoosier
235 followers · 4051 posts · Server mysportgallery.com
Simon McCorry · @simonmccorry
139 followers · 167 posts · Server mastodon.sdf.org

Struggling with topiramate today & still have a way to go increasing the dose. These anticonvulsants aren’t much fun

#epilepsyawareness

Last updated 2 years ago

Simon McCorry · @simonmccorry
139 followers · 165 posts · Server mastodon.sdf.org

Now available on Bandcamp - Mood Purple - for Epilepsy Awareness Day. Proceeds to go to epilepsy.org.uk. If you not into the music donate directly. Or if you are into the music but rather not go via Bandcamp/PayPal or even me, donate directly & dm me, I’ll happily send you a dl code.

simonmccorry.bandcamp.com/albu

#epilepsy #epilepsyawareness #epilepsyawarenessday #purpleday #modularsynth #ambientdrone #experiementalmusic #electronicmusic #eurorack #dronemusic

Last updated 2 years ago

HollyV · @klewlis
60 followers · 243 posts · Server mindly.social

Every day is a struggle still, but we just keep putting one foot in front of the other.

#epilepsy #epilepsyawareness

Last updated 2 years ago

Antinous the Gay God · @antinousgaygod
107 followers · 588 posts · Server social.anoxinon.de

🪷 is the international day for . On 26 March we wear purple for to raise funds and awareness for people living with epilepsy. 💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜 🪷

#purpleday #epilepsyawareness #internationalepilepsyday

Last updated 2 years ago

The Hockey Hoosier · @CityHoosier
214 followers · 2957 posts · Server mysportgallery.com

I'm so tired of there being no resources for epileptics on whether a game is safe to play or not. It's 2023, why aren't there any? Sigh. I'm going to have to make said resource myself, aren't I?

#epilepsy #epilepsyawareness #Gaming

Last updated 2 years ago

nonsequiturcat · @nonsequiturcat
116 followers · 179 posts · Server ohai.social

Mark your calendar!

#epilepsyawareness

Last updated 2 years ago

Lisa Quilty Hill · @Quilty
189 followers · 1034 posts · Server mastodon.nu