Lisa Quilty Hill · @Quilty
217 followers · 1302 posts · Server mastodon.nu
Look at the cost if my son's epilepsy med before applying Good RX.
Also, why I'll never vote Republican again.
Lisa Quilty Hill · @Quilty
214 followers · 1277 posts · Server mastodon.nuWell my boys no longer qualify for medicaid. I now get to figure out how to budget medications. Thankfully my boy with epilepsy can take generic medications. That will help, however, I shudder to think what ADHD meds will cost.
I think the worst part is that if the neurologist were to recommend another EEG, the cost becomes a huge Factor in our decision rather than whether it would be beneficial for our child.
#epilepsyawareness #healthreform
Lisa Quilty Hill · @Quilty
214 followers · 1273 posts · Server mastodon.nu
Our healthcare system is so broke in the U.S. We spent the last 2 weeks waiting to see if these two were approved for Medicaid and they've been denied. The kicker is the last two weeks they've been uninsured. We run out of ADHD meds. And let's not forget that the wild hair teen has epilepsy.
#adhd #epilepsyawareness #heathcarereform
Becky Whinnerah · @BeckyWhinnerah
141 followers · 421 posts · Server mstdn.socialDaughter just had a 30 minute focal seizure 😟 I fannied about not knowing if I should give emergency meds as she kept looking like she was going to come out. Epilepsy is such a shit confusing thing. Anyway, she's fine and sleeping it off.
I'm so awake now at horrible 2am
Becky Whinnerah · @BeckyWhinnerah
143 followers · 439 posts · Server mstdn.socialDaughter just had a 30 minute focal seizure 😟 I fannied about not knowing if I should give emergency meds as she kept looking like she was going to come out. Epilepsy is such a shit confusing thing. Anyway, she's fine and sleeping it off.
I'm so awake now at horrible 2am
Lisa Quilty Hill · @Quilty
207 followers · 1220 posts · Server mastodon.nu
Lisa Quilty Hill · @Quilty
207 followers · 1218 posts · Server mastodon.nuMy kid got his permit today. He is legal to drive with a parent. There are those that do not understand that people with epilepsy that can be controlled, can do things like driving. It's no different than any other condition that needs to be managed.
So proud of my boy!
Somosdisca :vf: · @Somosdisca
30 followers · 227 posts · Server masto.esHola Titánicos, cada 24 de mayo se conmemora el día nacional de la epilepsia, recordándonos la importancia que tiene para esta enfermedad estar informado, conocer de primera mano cómo poder abordar esta patología o reaccionar ante una #crisis de #epilepsia.
https://somosdisca.es/dia-nacional-de-la-epilepsia-2023/
#epilepsy #epilepsyawareness #epilepsiarefrataria #epilepsiaespaña #epilepsie #discapacidad #somosdisca #crisisepiléptica #gentetitanica #visibilidad #cuidados #prevención #salud
#crisis #epilepsia #epilepsy #epilepsyawareness #epilepsiarefrataria #epilepsiaespana #epilepsie #discapacidad #somosdisca #crisisepileptica #gentetitanica #visibilidad #cuidados #prevencion #salud
Anna Who? Doc! · @CityHoosier
235 followers · 4051 posts · Server mysportgallery.com
I think I have a new favorite hockey player.
#PHF #WomensHockey #WomensSports #Hockey #Epilepsy #EpilepsyAwareness
https://www.theicegarden.com/mallory-soulitous-epilepsy-awareness/
#phf #womenshockey #womenssports #hockey #epilepsy #epilepsyawareness
Stephanie Ortoleva · @StephanieOrtoleva
9 followers · 56 posts · Server disabled.social
#Epilepsy and safety #webinar 04-20 at 9:00 pm EST https://us02web.zoom.us/webinar/register/WN_Vy4Eo_16Tx2WAoJqIRGY2Q?timezone_id=America/New_York
#disability #healthcare #EpilepsyAwareness
#epilepsy #webinar #disability #Healthcare #epilepsyawareness
Stephanie Ortoleva · @StephanieOrtoleva
11 followers · 85 posts · Server earthstream.social
#Epilepsy and safety #webinar 04-20 at 9:00 pm EST https://us02web.zoom.us/webinar/register/WN_Vy4Eo_16Tx2WAoJqIRGY2Q?timezone_id=America/New_York
#disability #healthcare #EpilepsyAwareness
#epilepsy #webinar #disability #healthcare #epilepsyawareness
Simon McCorry · @simonmccorry
139 followers · 167 posts · Server mastodon.sdf.orgStruggling with topiramate today & still have a way to go increasing the dose. These anticonvulsants aren’t much fun #EpilepsyAwareness
Simon McCorry · @simonmccorry
139 followers · 165 posts · Server mastodon.sdf.orgNow available on Bandcamp - Mood Purple - for Epilepsy Awareness Day. Proceeds to go to epilepsy.org.uk. If you not into the music donate directly. Or if you are into the music but rather not go via Bandcamp/PayPal or even me, donate directly & dm me, I’ll happily send you a dl code.
https://simonmccorry.bandcamp.com/album/mood-purple
#epilepsy #epilepsyawareness #epilepsyawarenessday #purpleday #modularsynth #ambientdrone #experiementalmusic #electronicmusic #eurorack #dronemusic
#epilepsy #epilepsyawareness #epilepsyawarenessday #purpleday #modularsynth #ambientdrone #experiementalmusic #electronicmusic #eurorack #dronemusic
HollyV · @klewlis
60 followers · 243 posts · Server mindly.socialEvery day is a struggle still, but we just keep putting one foot in front of the other. #epilepsy #EpilepsyAwareness
Antinous the Gay God · @antinousgaygod
107 followers · 588 posts · Server social.anoxinon.de
🪷 #PurpleDay is the international day for #EpilepsyAwareness. On 26 March we wear purple for #InternationalEpilepsyDay to raise funds and awareness for people living with epilepsy. 💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜 🪷
#purpleday #epilepsyawareness #internationalepilepsyday
The Hockey Hoosier · @CityHoosier
214 followers · 2957 posts · Server mysportgallery.comI'm so tired of there being no resources for epileptics on whether a game is safe to play or not. It's 2023, why aren't there any? Sigh. I'm going to have to make said resource myself, aren't I?
#epilepsy #epilepsyawareness #Gaming
Stephanie Ortoleva · @StephanieOrtoleva
0 followers · 29 posts · Server disabled.social
#Epilepsy advocacy and success stories #webinar 03-16 at 9:00 pm EST
https://us02web.zoom.us/webinar/register/WN_bkvJjZP1QnyZJr70lLBhbg?timezone_id=America/New_York
#disability #healthcare #EpilepsyAwareness #DisabledAndCapable
#epilepsy #webinar #disability #Healthcare #epilepsyawareness #disabledandcapable
Stephanie Ortoleva · @StephanieOrtoleva
8 followers · 50 posts · Server earthstream.social
#Epilepsy advocacy and success stories #webinar 03-16 at 9:00 pm EST
https://us02web.zoom.us/webinar/register/WN_bkvJjZP1QnyZJr70lLBhbg?timezone_id=America/New_York
#disability #healthcare #EpilepsyAwareness #DisabledAndCapable
#epilepsy #webinar #disability #healthcare #epilepsyawareness #disabledandcapable
nonsequiturcat · @nonsequiturcat
116 followers · 179 posts · Server ohai.social
