Thank you @touchNEUROLOGY for publishing expert interview with @DianneGove and @Ana_M_Diaz on recent “Guidelines for the Ethical and Inclusive Communication About/Portrayal of Dementia and People with Dementia”
#EWGPWD
https://www.alzheimer-europe.org/news/touchneurology-interviews-alzheimer-europe-recently-published-guidelines-ethical-and-inclusive

Lilo @LieselotteKlotz member of the European Working Group of People with Dementia #EWGPWD says "striving for a life worth living is worthwhile, and for as long as possible!"
https://www.alzheimer-europe.org/news/lieselotte-lilo-klotz-member-european-working-group-people-dementia-says-striving-life-worth

Thank you to all the members of the #EWGPWD for providing very useful contributions during the online consultation on 19 April. An interesting discussion about @EbrainHealth & digital brain twins!
https://www.alzheimer-europe.org/news/ewgpwd-meets-online-share-their-views-digital-brain-twins-and-ebrain-health-project

The Czech Alzheimer Society has a new video about its activities. Keep an eye out for Věra Ryšavá and Sylva Dneboská, members of European Working Group of People with Dementia #EWGPWD and European Dementia Carers Working Group #EDCWG respectively
https://www.alzheimer-europe.org/news/czech-alzheimer-society-has-new-video-about-its-activities

"Respectful commununication costs nothing but means everything" says @mason4233
Want to know how to communicate about dementia in an ethical & inclusive way, this #BrainAwarenessWeek? Download our recently-published guidelines, developed with the #EWGPWD
https://bit.ly/AEGuide_EthicalCommunication

It's #BrainAwarenessWeek!
Want to know more about life with #dementia? Read articles by people with lived experience - members of the #EWGPWD (some of whom are pictured below, at our last conference) and others - in our "Living with dementia" news section https://bit.ly/AEnews_LivingWithDementia

Lilo @LieselotteKlotz member of the European Working Group of People with Dementia #EWGPWD asks "Is there adequate dementia care in our communities?"
https://www.alzheimer-europe.org/news/lieselotte-lilo-klotz-member-european-working-group-people-dementia-asks-there-adequate

"I try to embrace my life with dementia every single day and I practice making it as meaningful as possible...But some days are hard" writes Pia Knudsen, member of the European Working Group of People with Dementia #EWGPWD Read on: https://www.alzheimer-europe.org/news/pia-knudsen-member-european-working-group-people-dementia-tells-us-about-life-her-diagnosis

Members of the #EWGPWD met online in the context of the @ADIS_JPND project!
Insightful feedback on the value of people knowing that they have #Alzheimer's disease in its different stages
https://www.alzheimer-europe.org/news/members-european-working-group-people-dementia-meet-adis-discuss-value-being-informed-having

Věra Ryšavá, member of the European Working Group of People with Dementia #EWGPWD introduces herself and tells us why she wants to raise awareness of Alzheimer's disease
https://www.alzheimer-europe.org/news/vera-rysava-member-european-working-group-people-dementia-introduces-herself-and-tells-us-why

Chris Roberts @mason4233 member of the @RADARAD7 Patient Advisory Board and Chairperson of the European Working Group of People with Dementia #EWGPWD spoke at a recent session on patient involvement
https://www.alzheimer-europe.org/news/chris-roberts-member-radar-ad-patient-advisory-board-and-chairperson-european-working-group

On 30 January, the #EWGPWD met online to discuss the concept of reciprocity in research and the barriers & facilitators to conducting #PI or research with people with dementia. #EPND #Research
https://www.alzheimer-europe.org/news/members-european-working-group-people-dementia-met-discuss-reciprocity-research-and-barriers

"Love and honesty are gifts; albeit occasionally painful" writes Lilo @LieselotteKlotz member of the European Working Group of People with Dementia #EWGPWD in her new blog piece about being a parent with dementia
https://www.alzheimer-europe.org/news/lieselotte-lilo-klotz-member-european-working-group-people-dementia-writes-about-being-parent

Marguerite Keating, member of the European Working Group of People with Dementia #EWGPWD is proud to be one of two people with dementia fronting Ireland's "Tea Day" this year
@IrishDementiaWG @alzheimersocirl
https://www.alzheimer-europe.org/news/marguerite-keating-member-european-working-group-people-dementia-proud-be-one-two-people

"Respectful commununication costs nothing but means everything" - @mason4233
Want to know how to communicate about dementia in an ethical & inclusive way? See our guidelines developed together with the European Working Group of People with Dementia #EWGPWD
https://bit.ly/AEGuide_EthicalCommunication