@KellyKellyKelly I've have heard it's possible to also have #Marfans with shorter stature although minority. My eldest was thoroughly checked dx EDS in an hour's app with the top Hypermobility CTD rheumatologist in the UK prof Grahame because son has Pectus #Excavatum & later developed scoliosis we both have marfanoid sign of longer armspans than height, I also have longer thigh bone which an wheelchair OT should mean taller height he actually thought I got my 5ft 3 height wrong!
#GrantWahl died from #aortic #aneurysm
These are often undetected until life threatening
Wahl’s brother encouraged everyone with a #tall, lanky body type and especially pectus #excavatum to get checked
Aortic #aneurysms are associated with #Marfan and #EhlersDanlos syndromes #EDS
#grantwahl #aortic #aneurysm #tall #excavatum #aneurysms #marfan #ehlersdanlos #eds