MediPaCe · @MediPaCe
13 followers · 29 posts · Server mastodon.worldCheck out the #Roundup of our #RareDiseaseDay campaign here:
https://medipace.com/2023/02/22/rare-disease-day-2023/
Topics include:
- #FamilyPerspectives & #PatientStories
- #PatientEngagement
- #OvercomingChallenges
Special thanks to our network, colleagues and Ines and Nick for sharing your thoughts!
#Roundup #rarediseaseday #familyperspectives #patientstories #PatientEngagement #overcomingchallenges
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.worldAre you interested in reading more about the #experiences of people living with #RareConditions?
Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#Experiences #rareconditions #familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Why Advocacy Matters: Chris’ story
A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.
What’s your experience as a family member of someone living with a rare condition?
https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace