RT @KeyWorkerPetUK
A thread with some of the key findings of the @The_TUC report on #LongCovid out today: https://www.tuc.org.uk/research-analysis/reports/workers-experience-long-covid #fblc #YouClappedUsNowBackUs #Keyworker

“Long Covid Kids is doing all that it can to bang the drum for these youngsters, supporting them and those who support the youngsters.

“I’m proud to be a patron of Long Covid Kids.”
@michaelrosenyes

https://www.aol.co.uk/michael-rosen-unveiled-patron-charity-205043920.html?

#LongCovidKids #GettingBetter #childhood #cleaenair #longcovid #FBLC #PWLC

Airing on @BBC1 at 2000 GMT today. Featuring HCWs afflicted by #LongCovid. #FBLC #covid #nhs #keyworker

@jamesglen Although I don't have Long Covid, I think #FBLC is a great idea.

@LongCovidKids
Where does this leave the “do more exercise”, “reframe your thoughts to control your symptoms” and “CBT and being more positive” brigade?

It’s almost as if biomedical research could be useful. :ablobrollingeyes:

#LongCovid #fblc

The Autoimmune Registry has determined that biomarkers of immune system activity similar to those seen in many autoimmune and autoinflammatory diseases justify the inclusion of Long COVID on its list of diseases.

https://www.autoimmuneregistry.org/long-covid-announcement

#FBLC
#LongCovid #LongCovidKids

Ableism & the weaponisation of dead children: (Don’t mention that C word, or the proven persistent nature of it in all organs & blood vessels). #SARScov2 #COVID19 #StrepA #Ableism #GBD #UsForThem #propaganda #PublicHealth #fbLC https://open.substack.com/pub/counterdisinformationproject/p/strep-a-in-the-uk-a-mess-of-public?r=1dbmdq&utm_campaign=post&utm_medium=email

I just slept my first night with my #CPAP machine & it felt amazing, comfy & i feel noticeably better this morning. If you experience poor sleep, night sweats, gasping for air, feel like you forget to breathe, get evaluated for #SleepApnea! There's a link between long COVID and OSA that's not yet understood.

#LongCovid @longcovid @mecfs #FBLC #pwme #pwlc #CovidIsNotOver

RT @42soho
List of drugs trials that are set to be completed by the end of 2023. 🧵 #LongCovid #notrecovered #fblc

Link below for article I was interviewed for -- covers the awful experiences majority of #LongCovid patients have at clinics across US. Systemic issues mean that we don't receive adequate care, continue to suffer, are missing from our lives, & have no treatments. We manage pain, we reduce our lives, and we wait....

Still waiting!

And #MECFS patients have been waiting lifetimes.

Article is good & comprehensive, please share!

https://www.popsci.com/health/long-covid-care-chronic-illness

#pwme #fblc #CovidIsNotOver

Link below for article I was interviewed for -- covers the awful experiences majority of #LongCovid patients have at clinics across US. Systemic issues mean that we don't receive adequate care, continue to suffer, our missing from our lives, & have no treatments. We manage pain, we reduce our lives, and we wait....

Still waiting!

And #MECFS patients have been waiting lifetimes.

Article is good & comprehensive, please share!

https://www.popsci.com/health/long-covid-care-chronic-illness

#pwme #fblc #CovidIsNotOver

Hey long COVID & ME / post infectious folks - have you been diagnosed with obstructive sleep apnea? If yes, are you using a CPAP machine? If so, has it helped?

context : i am 2 years into long COVID / ME, just got diagnosed via a home sleep study, trying to decide if using a machine will help me abd figure out what to do as PCP is not very helpful and my access to specialist is limited

#mecfs #LongCovid #LongHaulers #pwme #pwlc #fblc #NEISvoid #PostViral #OSA #SleepApnea #CPAP

#RIPTwitter

We joined #Twitter to kick start our grassroots organisation in 2020.

Then we became a charity in 2021.

We had to learn how to use Twitter while managing #LongCovid.

We are still managing #LongCovid and can learn how to use another platform....we hope!

Please help us with your best tips, follows and what ever else one has to do here!

#LongCovid #FBLC #LongCovidKids #CleanAir #Education #ChildHealth #Childhood #charity

Ohhh la la , it's #followbackfriday ....

We are the only international, UK based charity for families, children and young people living with Long Covid.

We would love to connect with people interested in;

#LongCovid
#LongCovidKids
#SchoolNurses
#Education
#Science
#Covid19
#CleanAir
#ChildHealth
#ChildDevelopement
#Childhood
#Schools
#Family
#OccupationalTherapy
#Charity
#Volunteering
#Research

#FBLC #dogs #pets