Over a decade with a #FeedingTube & when we go to dinners with people, either out at a restaurant or in the home, this usually is my setup

A large mug that my formula is poured into, a syringe to "eat with," a coffee cup of "flush" water and usually something from the menu like a cup of coffee cooled, juice, etc. Sometimes I need something with fizz

I will order a virgin Bloody Mary if there is a bar or something off the menu purred. Bartenders will mix drink me about anything, including meat

More than a decade with a #FeedingTube, strictly on medical formula, and I barely get cravings for old food anymore but today I have a hankering for iron skillet shortening cornbread, pinto beans with thick slices of onion, chow chow (like a cabbage relish) and fried potatoes with a stiff, strong cup of black coffee.

I used to eat that 4 or five times a week. We always had an ole fashion pot of pinto soup beans and a pan of cornbread in the house.

11 years ago this week, I got my #FeedingTube. I was nearly dead when I consented. Teens with tubes, living active lives, convinced me tubes were for the living & not dying. #MedMastodon

Here's a photo of my late Jake waiting for me to return home from the hospital. Wife said he stayed in that window the entire time I was gone.

Was blessed to have him for 16 yrs, vibrant, but elderly, until last few days of his life

Next week is the 2nd anniversary of him crossing over the rainbow bridge

Approaching my 11th year with a feeding tube.

I normally am fed with a pump but when it is time for dinner, or if we go out to dinner to a restaurant or event, I make a "plate" and push a jug of feeding tube formula in over time, as if I am taking bites.

It also helps those I am with not be so self-conscience about eating in front of me.

Often, I will order something, too, like a shake, milk, non-acid juice, coffee etc.

#MedMastodon #FeedingTube #Health

For 10 years, I've consumed nothing but feeding tube formula through a feeding tube. Can't swallow food or liquids.

Turns out, the calories in my "complete, balanced nutrition with fiber" prescription food comes from corn syrup, canola and corn oil.

I now have to add a diabetes medication because my glucose level and A1C is above normal.

#FeedingTube #Health #Healthcare #Medication #Diet #Nutrition #parkinsons #MSA #ParkinsonsPlus

Time to put up the #ChristmasTree
#Christmas

#FeedingTube #Xmas

RT @katimcf
$55/$120 🥳🥳

only $60 left to cover overdue rent by 5pm and get a ride to get #feedingtube formula tomorrow (or $300 left for the full week) 🫶🏻🫶🏻

http://paypal.me/katiwithoutthee

https://venmo.com/u/katiwithoutthee

http://cash.app/$katiwithoutthee https://twitter.com/katimcf/status/1600195015380172807

When I got my #FeedingTube in April 2012, #Parkinsons, over a decade ago, it took 3 months for my food addiction to end

Supporting Elon's Musk's :elon: #fascist takeover of #twitter not so much

There are some users I am going to grieve and miss. My hope is eventually they show up around here

I'm #SelfHosting my own instance & the #Fediverse will always be my new home

I do need to hire/find someone trustworthy @Gargron @Stux to make sure my server is secure and optimized

#TwitterMigration

I have had my #FeedingTube for exactly a week and have learned much so far. Things like one should not sneeze while venting their stomach. Good thing there wasn't much more than Gatorade in there.😂

Having a #FeedingTube for ten years now, #ThanksGiving dinner for me means exchanging the mic-key low-profile feeding tube and exchanging it for a 24 French sized G-tube and enjoying they turkey and all the side dishes pureed up as 'smoothies' to push through my tube.

Can I taste without "eating?" Do you taste the Taco Bell the morning after? I thought so. So, same theory.

About me:
https://tubefed.com/tales/meet-paul-chambers/

Today, after 2 years of starving with severe gastroperesis, I finally get my G-J tube. To quote my niecelette, I am nerxcited, but mostly just eager to get adequate nutrition for the first time in 2 years. It has been a long and difficult road to get here.
#chronicillness #gastroparesis #feedingtube #tubie

I am a #queer woman of many talents, currently felled by severe #gastroparesis which has left me literally starving for 20 months. In one week I get my much anticipated G-J #feedingtube and I am hoping that it allows me to rejoin the human race.

I am an avid fabric crafter. I enjoy #spinning #knitting #crocheting and #weaving

Also passionate about #publichealth #publicpolicy As a white-presenting #Jew I study #blackhistory and #Colonialism. I am also participating in this #dafyomi cycle.

@stux

My monthly #FeedingTube supplies and formula are billed over $10,000 per every month.

Luckily, Medicare helps with most of it, including driving down the max that I may be billed to around $100 per month
#HealthCare #Medicare

#IntroPost #TwitterMigration

I finally managed to figure out how to switch servers, so I’ve now moved over to disabled.social! Excited about the possibilities of this new space 🥰

So I’m Sarah (same name on Twitter), I’m in my 30s & live in the UK. I’ve had #SevereME #MECFS for 17 years, & been bedbound since 2019. I have a bunch of fun comorbidities as well, and also have a #jejunostomy #feedingtube.

I’m hoping this can be the source of knowledge & support that #DisabilityTwitter has been ❤️

5 Common Feeding Tube-related Complications and their Solutions

Enteral feeding techniques have always been challenging for the patients and the caregivers. The objective of enteral feedings is to provide nourishment to the patient through a tube inserted directly into the gastrointestinal (GI) tract.

Read more: https://woundcaresurgeonsca.tumblr.com/post/676233369912229888/5-common-feeding-tube-related-complications-and

#feedingtube #tubefeedings #GRV #gastroenterictube #woundcare #wounds