Full text just released for this from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia and #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: implications for disease-related biomarker discovery

https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/full

@mecfs
#MEcfs #CFS #PwME #MyalgicE @fibromyalgia #Fibrositis #Fibro #FMS #FM

Sister came to visit this morning before I went to bed. We sat in awkward silence for a bit, until she said, "Your body language tells me you're bracing for me to say something awful."

I wish I'd had the presence of mind to be properly poetic to convey the truth of the situation: "I took extra painkillers on top of my prescription painkillers, and still every bone in my body is screaming at me in a different voice, and I'm trying to tune them all out so I can hear you." #Spoonie #Fibro

"Wexford woman on a lifetime of chronic pain–‘if I ever get bed-ridden again I’m going to end my life’"

Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME & #Fibromyalgia

Shared with journalist's permission

We had difficulty getting an interviewee: thanks to Yvonne for stepping forward 👍

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

crazy bizzy dr week anew dark horse DX #CentralSensitivation from a pain Dr. who said is why so many rxs no help pain. Heard v close pal n fam discussed me at a bd party concurred I should be asked if I've been tested for #hydrocephaly. Being #disabled can be so #confusing. I was just getting acquainted w my #fibro #dx

En français:

Alain Moreau:

La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai)

https://www.youtube.com/watch?v=ZPfE8vMZb8Y

#fibromyalgie #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

I have just woken up.
0815!
After 8am !!!!
And I am pretty sure I slept all the way through the night.

I can't remember the last time this has happened.
Got to get moving now and keep this positive vibe going 🤞

#fibromyalgia #fibro #fibrolife

New from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia & #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome : implications for disease-related biomarker discovery

Only abstract available currently
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/abstract

"Biomarkers of intestinal barrier function and inflammation were associated with autonomic dysfunction assessed by COMPASS-31 scores in #FM & ME/CFS respectively"

@mecfs
#MEcfs #CFS #PwME #MyalgicE #Fibro #FMS @fibromyalgia

Today I am officially a "healthy weight" according to the NHS.

However, that isn't why I lost weight.

I've lost weight because I feel better like this and my #ChronicPain is less bothersome like this. My #Fibro flares less when I'm lighter, I don't have to crawl up the stairs as often because my body is so exhausted it feels like gravity has been turned up to 11.

I don't care how thin I am. I care about feeling better and participating in life more!

#Fibromyalgia #WeightLoss

Overnight was very rough. I coughed more than I slept, and I no doubt spiked a fever. Feeling a bit better today but sinus drainage and cough are still giving me fits.

I didn't really drink any water yesterday. I'm doing a little better today on that front as well.

I hate being sick on top of fibro. I have basically zero spoons.

#spoonie #FluOrCovid #fibro

Figured I'd give this social thing a go.

Kind of housebound (night owl w fatigue, mostly) but don't want that to be my whole personality.
Still need to work out what My Thing is from here out

Into smart things & people, arty things, cool buildings, big ideas. More policy than politics. Cats more than dogs.

#intro #fibro #fatigue #housebound #books #music #politics #news

After a nice couple of days, today I am crashing out badly. Very resentful, I am. #MECFS #Fibro

But I'm okay apart from that [insert obligatory upbeat comment here].

I'm glad my LOTRO guides are needed by the community. I just wish my own code didn't always fuzz out at crucial moments. So, it's been a stressful 48hrs, making my #Fibro flare up.

I missed it yesterday, so now it's #MiqoteTime in #FFXIV.

Me whenever I meet anyone new IRL or online anywhere 😂 #meme #thoughtoftheday #wednesdaythoughts #randomthoughts #bpd #BPDfam #MadMastodon #MadTwitter #disability #disabled #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #neurodivergent #neurodiverse #mentalhealth #mentalillness #spoonie #fibromyalgia #fibro #twittermigration

Was a painful, restless night & a bad fibro day.
Top to toe and spasms
Maxed out on pain meds and diazepam.

Loving the nature pics and whimsy posts, helping me to stay positive.

Just about noon and off for a hot bath.
It feels like a bloody long day already

#fibro #fibromialgia

Ruling from Spain:

"Judge admits disability due to fibromyalgia, which Social Security rejected"

https://thegoaspotlight.com/judge-admits-disability-due-to-fibromyalgia-which-social-security-rejected/

#Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

2/

2/

Martine McCutcheon: “I also ask my friends to google CFS / #fibro symptoms. If they love you, it’s the least they can do! Understanding helps with support. So thank you to our friends who came with a few hours notice!

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE

I really should be asleep. So I guess I'll try to make that happen. Fun times.

#painsomnia #ChronicPain #fibro #fibromyalgia #spoonie

Journée douleur et migraine à errer entre le lit et le canapé, et maintenant qu'il est minuit passé, mon corps refuse d'aller se coucher. Yep, c'était un beau dimanche #fibro

Sinéad O'Connor obituary
https://www.bbc.com/news/entertainment-arts-35031186

In 2003 she announced "she was retiring from music. Both her mental and physical health were suffering, Diagnosed with bipolar disorder, she was also battling the painful condition of #fibromyalgia."

#Fibrositis #Fibro #FMS #FM @fibromyalgia

I've got a fairly significant fibro flare in progress right now. I clearly overdid today. I mean, everything I did needed to be done. And I didn't have the option to not do any of it.

I should have anticipated the flare, but I was a bit surprised when it started around three hours ago. I took some Tylenol, and hoped for the best. Didn't help. Just getting worse.

#whining #spoonie #fibromyalgia #fibro