I cannot express how huge this is. Being able to get a diagnosis via blood test is so HUGE. For those lucky enough to have never experienced it, many of the conditions along with #MECFS that they hope this blood test could diagnose with over 90% certainty normally take YEARS to be diagnosed. #LongCovid #fibromyalgia #ms #LymeDisease
These are all life changing illnesses. The quicker you are diagnosed the quicker you can be treated.

https://www.sciencealert.com/new-blood-test-for-chronic-fatigue-syndrome-has-91-accuracy

Fast forward two and a half years, give or take a week, and he sends me a marketing message on WhatsApp promoting the website he has dedicated to #fibromyalgia. I already knew the website, and I found it just to be a web version of what he thinks is the source of the syndrome: stress, depression, or both.

Now, I wonder if I should report him for possible violation of the GDPR because I never permitted him to send me blatant marketing messages.

The second doctor I had an appointment with, who confirmed my initial #fibromyalgia diagnosis, had this insistence that this syndrome is caused by stress and/or depression. He even insisted I was stressed when the pain began, even though I told him repeatedly that wasn't true and I was at a pretty good place. He never accepted my answers because they went against what he believed was the source of this syndrome in every patient. Of course the appointments with him didn't last.

this is huge

#MECFS #LongCovid #fibromyalgia

https://www.healthrising.org/blog/2023/09/09/blood-test-chronic-fatigue-syndrome/

Not going to post here more today. With today's head and humidity, being out of routine and other factors, I'm having my worst #Fibromyalgia day for quite some time.

Off to get a bit of #MiqoteTime in #FFXIV with one of my Miqo'te - haven't decided which yet. But I need to just get meds and try to absorb myself in another world until I can sleep in this one.

G'night folks.

Full text just released for this from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia and #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: implications for disease-related biomarker discovery

https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/full

@mecfs
#MEcfs #CFS #PwME #MyalgicE @fibromyalgia #Fibrositis #Fibro #FMS #FM

https://herbalremedies.one/how-to-treat-fibromyalgia/ Fibromyalgia can steal your joy in life and cause brain fog, and even depression. Discover the causes, symptoms and Natural Treatment for Fibromyalgia, Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. This Natural Holistic Treatment that works to reverse the cause of it for good so your symptoms go away permanently. #fibromyalgia #cfs #chronicfatigue #ME #autoimmune

"Wexford woman on a lifetime of chronic pain–‘if I ever get bed-ridden again I’m going to end my life’"

Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME & #Fibromyalgia

Shared with journalist's permission

We had difficulty getting an interviewee: thanks to Yvonne for stepping forward 👍

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

@rakuno Thank you. I hate "normal colds" because it affects my base pain level of #Fibromyalgia. So it might be "just a cold", but it's never _that_ simple 😝

En français:

Alain Moreau:

La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai)

https://www.youtube.com/watch?v=ZPfE8vMZb8Y

#fibromyalgie #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

#Fibromyalgia is messing with my temperature regulation. I am so intensely freezing cold. I might die of cold, lol. Or at least it feels like it.

2/2

I have chronic pain (via #Fibromyalgia) but I am awaiting assessment for possibly/probably being non-neurotypical. Changes of plan really unsettle me, even if they're reasonable.

The world doesn't revolve around me and #LOTRO need to do things when they do them. I am also only one content creator.

But I lost my chance to rest before the event bc it launched early and now I got stressed for no reason as it's been delayed.

And I have to replan 2 weeks of stuff.

I hate my brain...

https://holistichealth.one/treatment-for-fibromyalgia/ Fibromyalgia can steal your joy in life and cause brain fog, and even depression. Discover the causes, symptoms and Natural Treatment for Fibromyalgia, Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. This Natural Holistic Treatment that works to reverse the cause of it for good so your symptoms go away permanently. #fibromyalgia #cfs #chronicfatigue #ME #autoimmune

Hi #disabled foldk. I just got a new DX of #fibromyalgia. Got it? Wanna lay some facts or an intro on me? Hoping I can start this malady on the #GoodFoot ya know informed engaged hopeful

I have just woken up.
0815!
After 8am !!!!
And I am pretty sure I slept all the way through the night.

I can't remember the last time this has happened.
Got to get moving now and keep this positive vibe going 🤞

#fibromyalgia #fibro #fibrolife

New from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia & #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome : implications for disease-related biomarker discovery

Only abstract available currently
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/abstract

"Biomarkers of intestinal barrier function and inflammation were associated with autonomic dysfunction assessed by COMPASS-31 scores in #FM & ME/CFS respectively"

@mecfs
#MEcfs #CFS #PwME #MyalgicE #Fibro #FMS @fibromyalgia

Today I am officially a "healthy weight" according to the NHS.

However, that isn't why I lost weight.

I've lost weight because I feel better like this and my #ChronicPain is less bothersome like this. My #Fibro flares less when I'm lighter, I don't have to crawl up the stairs as often because my body is so exhausted it feels like gravity has been turned up to 11.

I don't care how thin I am. I care about feeling better and participating in life more!

#Fibromyalgia #WeightLoss

"Wexford woman on a lifetime of chronic pain – ‘if I ever get bed-ridden again I’m going to end my life’".

Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME & #Fibromyalgia

http://surl.li/kktdh
(in all the Wexford People newspapers)

Some of you will recall that we were desperately looking for somebody from Co. Wexford to do an interview.

Thanks very much to Yvonne for answering this call

@mecfs #MEcfs #CFS #MyalgicE #PwME

@jessdkant This is amazing and I hope everyone reads it. As someone AFAB who was dx'd with #fibromyalgia 20ish years ago, I've quit going to the dr for any pain including possible broken bones. I fell 2-3 years ago hard enough to knock the wind out of me. I fell across the edges of a wooden walkway. Daily I have sharp pain across the middle of my back. I'm guessing I cracked/broke a vertebrea, but "we don't treat pain" keeps me from telling anyone. Why bother? They won't do anything.

I had a pain appointment ~2 hours ago, and guess what? I had to be significantly assertive and a bit caustic so the doctor would stop insinuating I was exaggerating or lying.

And FINALLY, put in that brain that the medication I'm taking right now is inadequate for pain management. This one only took around two years.

Depending on how the appointment in November goes, I'll either continue or stop with them.

#ChronicPain #Fibromyalgia