Tom Kindlon · @tomkindlon
774 followers · 2027 posts · Server disabled.social
Full text just released for this from Spain:
Increased gut permeability & bacterial translocation are associated with #fibromyalgia and #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: implications for disease-related biomarker discovery
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/full
@mecfs
#MEcfs #CFS #PwME #MyalgicE @fibromyalgia #Fibrositis #Fibro #FMS #FM
#fibromyalgia #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #fibrositis #fibro #fms #fm
Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
"Wexford woman on a lifetime of chronic pain–‘if I ever get bed-ridden again I’m going to end my life’"
Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME & #Fibromyalgia
Shared with journalist's permission
We had difficulty getting an interviewee: thanks to Yvonne for stepping forward 👍
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia
#fibromyalgia #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
755 followers · 1941 posts · Server disabled.social
En français:
Alain Moreau:
La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai)
https://www.youtube.com/watch?v=ZPfE8vMZb8Y
#fibromyalgie #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia
#fibromyalgie #fibromyalgia #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
700 followers · 1704 posts · Server disabled.social
Ruling from Spain:
"Judge admits disability due to fibromyalgia, which Social Security rejected"
#fibromyalgia #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
668 followers · 1514 posts · Server disabled.social
Sinéad O'Connor obituary
https://www.bbc.com/news/entertainment-arts-35031186
In 2003 she announced "she was retiring from music. Both her mental and physical health were suffering, Diagnosed with bipolar disorder, she was also battling the painful condition of #fibromyalgia."
#fibromyalgia #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
588 followers · 1227 posts · Server disabled.social
New from Younger group (in USA):
Evidence of neuroinflammation in fibromyalgia syndrome: a [18F]DPA-714 positron emission tomography study
https://journals.lww.com/pain/Abstract/9900/Evidence_of_neuroinflammation_in_fibromyalgia.335.aspx
"We found increased binding of the translocator protein radioligand [18F]DPA-714 in several brain regions in fibromyalgia patients compared with healthy controls."
#fibromyalgia #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
574 followers · 955 posts · Server disabled.social
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This piece explains it in a way that might be easier to understand:
"Mouse Study Reveals An Immune Cell That May Cause #Fibromyalgia"
https://sciencealert.com/mouse-study-reveals-an-immune-cell-that-may-cause-fibromyalgia
#fibromyalgia #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
574 followers · 954 posts · Server disabled.social
🧵
UK #Fibro study:
Neutrophils infiltrate sensory ganglia and mediate chronic widespread pain in #fibromyalgia
Free:
https://www.pnas.org/doi/full/10.1073/pnas.2211631120
"Neutrophil depletion abolishes the establishment of chronic widespread pain in mice"
"Our observations suggest approaches for targeting fibromyalgia pain via mechanisms that cause altered neutrophil activity and interactions with sensory neurons."
#Fibrositis #FMS #FM @fibromyalgia
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#fibro #fibromyalgia #fibrositis #fms #fm
Tom Kindlon · @tomkindlon
553 followers · 848 posts · Server disabled.social“The Sir Jules Thorn Charitable Trust has granted £1,699,572 to fund the project 'Novel Diagnostic and Therapeutic Insights for #Fibromyalgia'.”
Great to see this promising research is being continued with a substantial grant
#Fibro #FM #FMS #Fibrositis @fibromyalgia #fibromyalgiasucks #Fibromialgia #fibrofun #fibrohell #fibroflare
#fibromyalgia #fibro #fm #fms #fibrositis #fibromyalgiasucks #Fibromialgia #fibrofun #fibrohell #fibroflare
Irish ME/CFS Association · @IrishMECFSAssociation
121 followers · 686 posts · Server mastodon.ie
Tuesday, April 11: Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-45/
3 PM ET/8 PM in GB & Ireland
Find the time in your time zone here https://www.timeanddate.com/worldcl...ine+support+group&iso=20230411T13&p1=220&ah=1
Topic: Working with #brainfog & cognitive processing
#MEcfs #CFS #PwME #LongCovid #PwLC @longcovid @mecfs #Fibromyalgia #Fibrositis #Fibro #FMS #FM
#brainfog #mecfs #cfs #pwme #LongCovid #pwLC #fibromyalgia #fibrositis #fibro #fms #fm
Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.socialFrom August 2022
From: National Health Executive
A (UK) survey has revealed a need for better #fibromyalgia services across the #NHS, with the study revealing 3 main themes:
• Troublesome labels
• Heavy burdens
• A low priority
Find out more below
https://www.nationalhealthexecutive.com/articles/need-better-fibromyalgia-services-highlighted-new-study
Dr Shepherd of the UK ME Association is quoted
@fibromyalgia #Fibrositis #Fibro #FMS #FM #MEcfs #CFS #MyalgicE #PwME
#fibromyalgia #nhs #fibrositis #fibro #fms #fm #mecfs #cfs #myalgice #pwme
Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social
I'm no expert on fibromyalgia but this seems a useful article
Importantly it highlights "For people with ME/CFS, symptoms of Fibromyalgia are likely to worsen during post-exertional malaise (PEM), and pacing may reduce FM symptoms, including pain, sleep disturbance, cognitive problems and fatigue."
https://mecfssa.org.au/resources/fibromyalgia
#Fibromyalgia #Fibrositis #Fibro #FMS #FM #ChronicPain #MEcfs #CFS #MyalgicE #PwME
#fibromyalgia #fibrositis #fibro #fms #fm #chronicpain #mecfs #cfs #myalgice #pwme
Tom Kindlon · @tomkindlon
254 followers · 50 posts · Server disabled.social🧵
Healthwatch Sheffield &
Sheffield ME and Fibromyalgia Group, worked on a project to help improve health & social care provision for people with ME/CFS & #fibromyalgia in Sheffield.
The focus was to identify barriers to accessing appropriate care, and find solutions
Report:
https://www.sheffieldmegroup.co.uk/post/speakup-the-results #CFS
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #ME #MyE #MEeps #CFSME #CFIDS #SEID #NeuroME @mecfs #Fibro #fibrositis
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#fibromyalgia #cfs #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #myalgice #pwme #me #mye #meeps #cfsme #cfids #seid #NeuroME #fibro #fibrositis