2/

"There are so many ways that an #illness or #disability can fluctuate, so many ways that the effects of such can change. But when you do have a #fluctuatingillness or disability, it often comes with many of the same pitfalls of a #hiddendisability. Judgement from those uneducated in the realities of disability, high expectations that are realistically beyond your capabilities, assumptions from others."

#chroniclife #hiddenillness #invisibleillness #Spoonies
#Spoonie #ChronicallyIll #MEcfs

19/

“Be Flexible with the Roller Coaster

I know it can be frustrating that I can’t always make plans ahead of time, but please know that this is part of being on this roller coaster with me. Don’t take it personally if I cannot fulfill a duty or attend an event at the last minute. I will try my hardest, but there are just times when the roller coaster is on a down- even when I wish (with all my heart) that it was not.”

@chronicillness @spoonies #fluctuatingillness #spoonie