Full text just released for this from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia and #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: implications for disease-related biomarker discovery

https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/full

@mecfs
#MEcfs #CFS #PwME #MyalgicE @fibromyalgia #Fibrositis #Fibro #FMS #FM

"Wexford woman on a lifetime of chronic pain–‘if I ever get bed-ridden again I’m going to end my life’"

Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME & #Fibromyalgia

Shared with journalist's permission

We had difficulty getting an interviewee: thanks to Yvonne for stepping forward 👍

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

En français:

Alain Moreau:

La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai)

https://www.youtube.com/watch?v=ZPfE8vMZb8Y

#fibromyalgie #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

New from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia & #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome : implications for disease-related biomarker discovery

Only abstract available currently
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/abstract

"Biomarkers of intestinal barrier function and inflammation were associated with autonomic dysfunction assessed by COMPASS-31 scores in #FM & ME/CFS respectively"

@mecfs
#MEcfs #CFS #PwME #MyalgicE #Fibro #FMS @fibromyalgia

In other news: ouch. #MECFS #Crash #FMS I knew I was overdoing it yesterday and yep, here we are.

Is anyone else planning to sign up for the #Visible wearable/monthly plan?

Even though I already use the #Oura ring, I can’t wear that while working. I am game to try the #Polar wearable bc it goes on the upper arm, so I can wear it at work.

I tried wearing the Apple Watch around my ankle while working, but it doesn’t give good good readings there. 🤷🏽 Also, it’s too inflexible and yelly.

Ruling from Spain:

"Judge admits disability due to fibromyalgia, which Social Security rejected"

https://thegoaspotlight.com/judge-admits-disability-due-to-fibromyalgia-which-social-security-rejected/

#Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

My first business trip in a year coming up Monday. Off to Santa Clara, CA for the week. Will be at the Flash Memory Summit. While a stretch, feel free to let me know if you’re there and I’d be happy to meet up. #fms

Sinéad O'Connor obituary
https://www.bbc.com/news/entertainment-arts-35031186

In 2003 she announced "she was retiring from music. Both her mental and physical health were suffering, Diagnosed with bipolar disorder, she was also battling the painful condition of #fibromyalgia."

#Fibrositis #Fibro #FMS #FM @fibromyalgia

New from Younger group (in USA):

Evidence of neuroinflammation in fibromyalgia syndrome: a [18F]DPA-714 positron emission tomography study

https://journals.lww.com/pain/Abstract/9900/Evidence_of_neuroinflammation_in_fibromyalgia.335.aspx

"We found increased binding of the translocator protein radioligand [18F]DPA-714 in several brain regions in fibromyalgia patients compared with healthy controls."

#Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

Tuesday, June 13
Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-48/

Topic: Pain & Sleep Hacks

3 PM EST/8 PM in GB & Ireland

Find the time in your time zone here:
https://timeanddate.com/worldclock/fixedtime.html?msg=Tuesday%2C+June+13+Online+Support+Group&iso=20230613T13&p1=220&ah=1

#MEcfs #CFS #PwME #Fibromyalgia #Fibro #FMS #FM @mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid

Poor air quality, high UV, and a high heat index kept me very, very indoors today. I didn’t even run errands. It’s looking like it’ll be a long, boring, isolated summer for me, with work and errands being most of what I do “out there” and recovery most of what I do when home. I wish grocery stores were open late hours again. That is one thing I miss from before the #pandemic.

#AirQuality #UVIndex #FMS #Introvert

Poor air quality, high UV, and a high heat index kept me very, very indoors today. I didn’t even run errands. It’s looking like it’ll be a long, boring, isolated summer for me, with work and errands being most of what I do “out there” and recovery most of what I do when home. I wish grocery stores were open late hours again. That is one thing I miss from before the #pandemic.

#AirQuality #UVIndex #FMS #Introvert

2/

2/
This piece explains it in a way that might be easier to understand:

"Mouse Study Reveals An Immune Cell That May Cause #Fibromyalgia"
https://sciencealert.com/mouse-study-reveals-an-immune-cell-that-may-cause-fibromyalgia

#Fibrositis #Fibro #FMS #FM
@fibromyalgia

🧵
UK #Fibro study:

Neutrophils infiltrate sensory ganglia and mediate chronic widespread pain in #fibromyalgia

Free:
https://www.pnas.org/doi/full/10.1073/pnas.2211631120

"Neutrophil depletion abolishes the establishment of chronic widespread pain in mice"

"Our observations suggest approaches for targeting fibromyalgia pain via mechanisms that cause altered neutrophil activity and interactions with sensory neurons."

#Fibrositis #FMS #FM @fibromyalgia

1/

RT from Navy Recognition (@NavyRecognition)

#USStateDepartment approves #FMS to #Norway of #MH60R #Seahawk #helicopter
https://www.navyrecognition.com/index.php/naval-news/naval-news-archive/2023/april/13103-us-state-department-approves-fms-to-norway-of-mh-60r-seahawk-helicopters.html

Original tweet : https://twitter.com/NavyRecognition/status/1651516053275701249

Hey folks! I've switched roles and now lead the network firewall and firewall manager businesses at AWS. A bit more of a mouthful than VPN 😄. Super excited to learn what's working and what needs work, I'd love to hear your feedback!

#aws #firewall #anfw #fms #nfw

New from Younger team:

Abnormal immune system response in the brain of women with #Fibromyalgia after experimental endotoxin challenge

Free
https://www.sciencedirect.com/science/article/pii/S2666354623000388

"We found temperature increases and NAA decreases in FM that were not seen in [healthy controls]"

#Fibro #FMS #FM @fibromyalgia

“The Sir Jules Thorn Charitable Trust has granted £1,699,572 to fund the project 'Novel Diagnostic and Therapeutic Insights for #Fibromyalgia'.”

https://www.kcl.ac.uk/news/dr-david-andersson-awarded-the-sir-jules-thorn-award-for-biomedical-research

Great to see this promising research is being continued with a substantial grant

#Fibro #FM #FMS #Fibrositis @fibromyalgia #fibromyalgiasucks #Fibromialgia #fibrofun #fibrohell #fibroflare

Tuesday, April 11: Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-45/

3 PM ET/8 PM in GB & Ireland

Find the time in your time zone here https://www.timeanddate.com/worldcl...ine+support+group&iso=20230411T13&p1=220&ah=1

Topic: Working with #brainfog & cognitive processing

#MEcfs #CFS #PwME #LongCovid #PwLC @longcovid @mecfs #Fibromyalgia #Fibrositis #Fibro #FMS #FM

@pgs
Ja 😐.
Inzwischen krieg ich es am besten gehändelt nach dem Motto:
🔹Go with the Flow 🔹.
Crashs vermeiden, Pacing und mich in Gelassenheit üben, freundlich und gütig mit mir sein.
Hoffen, dass die Forschung voran geht und etwas für uns und die vielen noch viel heftiger Erkrankten findet 🙏.
#mecfs #cfs #fms #resilienz #TeamZuversicht