This is a call to #MedMastodon for assistance! My team is looking to recruit patients with #Marfans or #Loeys-Dietz for a simple survey (~20 min) about their #gynecologic and #reproductive health. Please pass along to relevant physicians/patients.
Details can be found at:
https://marfan.org/research/current-studies/
To our knowledge, this is the first of its kind to characterize these aspects of health in these populations. Special thanks to the Marfan's Foundation @MarfanFdn@twitter.com!
#MedMastodon #marfans #loeys #gynecologic #reproductive